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A validation study ...
A validation study of the CarerQol instrument in informal caregivers of people with dementia from eight European countries
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- Voormolen, Daphne C. (author)
- Univ Med Ctr Rotterdam, Dept Publ Hlth, Erasmus MC, POB 2040, NL-3000 CA Rotterdam, Netherlands.;Erasmus Univ, Erasmus Sch Hlth Policy & Management, Rotterdam, Netherlands.
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- van Exel, Job (author)
- Erasmus Univ, Erasmus Sch Hlth Policy & Management, Rotterdam, Netherlands.;Erasmus Univ, Erasmus Sch Econ, Rotterdam, Netherlands.
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- Brouwer, Werner (author)
- Erasmus Univ, Erasmus Sch Hlth Policy & Management, Rotterdam, Netherlands.;Erasmus Univ, Erasmus Sch Econ, Rotterdam, Netherlands.
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- Sköldunger, Anders (author)
- Karolinska Institutet
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- Goncalves-Pereira, Manuel (author)
- Univ Nova Lisboa, NOVA Med Sch, Comprehens Hlth Res Ctr CEDOC, Fac Ciencias Med, Lisbon, Portugal.
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- Irving, Kate (author)
- Dublin City Univ, Sch Nursing & Human Sci, Dublin, Ireland.
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- Bieber, Anja (author)
- Martin Luther Univ Halle Wittenberg, Med Fac, Inst Hlth & Nursing Sci, Magdeburger Str 8, D-06112 Halle, Saale, Germany.
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- Selbaek, Geir (author)
- Vestfold Hosp Trust, Norwegian Natl Advisory Unit Ageing & Hlth, Tonsberg, Norway.;Oslo Univ Hosp, Dept Geriatr Med, Oslo, Norway.;Univ Oslo, Fac Med, Inst Clin Med, Oslo, Norway.
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- Woods, Bob (author)
- Bangor Univ, Dementia Serv Dev Ctr Wales DSDC, Bangor, Gwynedd, Wales.
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- Zanetti, Orazio (author)
- IRCCS Ist Ctr San Giovanni Dio Fatebenefratelli, Brescia, Italy.
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- Verhey, Frans (author)
- Maastricht Univ, Fac Hlth Med & Life Sci, Alzheimer Ctr Limburg,Med Ctr, Sch Mental Hlth & Neurosci,Dept Psychiat & Neurop, Maastricht, Netherlands.
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- Wimo, Anders (author)
- Karolinska Institutet,Uppsala universitet,Centrum för klinisk forskning, Gävleborg,Karolinska Inst, Dept Neurobiol Care Sci & Soc, Div Neurogeriatr, Solna, Sweden.
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- Handels, Ron L. H. (author)
- Karolinska Institutet
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Univ Med Ctr Rotterdam, Dept Publ Hlth, Erasmus MC, POB 2040, NL-3000 CA Rotterdam, Netherlands;Erasmus Univ, Erasmus Sch Hlth Policy & Management, Rotterdam, Netherlands. Erasmus Univ, Erasmus Sch Hlth Policy & Management, Rotterdam, Netherlands.;Erasmus Univ, Erasmus Sch Econ, Rotterdam, Netherlands. (creator_code:org_t)
- 2020-10-28
- 2021
- English.
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In: Quality of Life Research. - : Springer Nature. - 0962-9343 .- 1573-2649. ; 30:2, s. 577-588
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Abstract
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- Purpose: Informal care constitutes an important part of the total care for people with dementia. Therefore, the impact of the syndrome on their caregivers as well as that of health and social care services for people with dementia should be considered. This study investigated the convergent and clinical validity of the CarerQol instrument, which measures and values the impact of providing informal care, in a multi-country sample of caregivers for people with dementia.Methods Cross-sectional data from a sample of 451 respondents in eight European countries, collected by the Actifcare project, were evaluated. Convergent validity was analysed with Spearman's correlation coefficients and multivariate correlations between the CarerQol-7D utility score and dimension scores, and other similar quality of life measures such as CarerQol-VAS, ICECAP-O, and EQ-5D. Clinical validity was evaluated by bivariate and multivariate analyses of the degree to which the CarerQol instrument can differentiate between characteristics of caregivers, care receivers and caregiving situation. Country dummies were added to test CarerQol score differences between countries.Results: The mean CarerQol utility score was 77.6 and varied across countries from 74.3 (Italy) to 82.3 (Norway). The scores showed moderate to strong positive correlations with the CarerQol-VAS, ICECAP-O, and EQ-5D health problems score of the caregiver. Multivariate regression analysis showed that various characteristics of the caregiver, care receiver and caregiving situation were associated with caregiver outcomes, but there was no evidence of a country-level effect.Conclusion: This study demonstrates the convergent and clinical validity of the CarerQol instrument to evaluate the impact of providing informal care for people with dementia.
Subject headings
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Folkhälsovetenskap, global hälsa, socialmedicin och epidemiologi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Public Health, Global Health, Social Medicine and Epidemiology (hsv//eng)
Keyword
- Construct validity
- CarerQol instrument
- Informal care
- Dementia
Publication and Content Type
- ref (subject category)
- art (subject category)
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Voormolen, Daphn ...
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van Exel, Job
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Brouwer, Werner
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Sköldunger, Ande ...
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Goncalves-Pereir ...
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Irving, Kate
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show more...
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Bieber, Anja
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Selbaek, Geir
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Woods, Bob
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Zanetti, Orazio
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Verhey, Frans
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Wimo, Anders
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Handels, Ron L. ...
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- MEDICAL AND HEALTH SCIENCES
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MEDICAL AND HEAL ...
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Quality of Life ...
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Uppsala University
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Karolinska Institutet