Sökning: onr:"swepub:oai:DiVA.org:uu-491405" > Data standards for ...
Fältnamn | Indikatorer | Metadata |
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000 | 04719naa a2200661 4500 | |
001 | oai:DiVA.org:uu-491405 | |
003 | SwePub | |
008 | 221221s2023 | |||||||||||000 ||eng| | |
024 | 7 | a https://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-4914052 URI |
024 | 7 | a https://doi.org/10.1093/ehjqcco/qcac0682 DOI |
040 | a (SwePub)uu | |
041 | a engb eng | |
042 | 9 SwePub | |
072 | 7 | a ref2 swepub-contenttype |
072 | 7 | a art2 swepub-publicationtype |
100 | 1 | a Batra, Goravu Uppsala universitet,Uppsala kliniska forskningscentrum (UCR),Kardiologi4 aut0 (Swepub:uu)gorba357 |
245 | 1 0 | a Data standards for atrial fibrillation/flutter and catheter ablation :b The European Unified Registries for Heart Care Evaluation and Randomized Trials (EuroHeart) |
264 | c 2022-10-15 | |
264 | 1 | b Oxford University Press,c 2023 |
338 | a electronic2 rdacarrier | |
520 | a AIMS: Standardized data definitions are essential for monitoring and assessment of care and outcomes in observational studies and randomized controlled trials (RCTs). The European Unified Registries for Heart Care Evaluation and Randomized Trials (EuroHeart) project of the European Society of Cardiology aimed to develop contemporary data standards for atrial fibrillation/flutter (AF/AFL) and catheter ablation.METHODS AND RESULTS: We used the EuroHeart methodology for development of data standards and formed a Working Group comprising 23 experts in AF/AFL and catheter ablation registries, as well as representatives from the European Heart Rhythm Association and EuroHeart. We conducted a systematic literature review of AF/AFL and catheter ablation registries and data standard documents to generate candidate variables. We used a modified Delphi method to reach consensus on a final variable set. For each variable, the Working Group developed permissible values and definitions, and agreed as to whether the variable was mandatory (Level 1) or additional (Level 2). In total, 70 Level 1 and 92 Level 2 variables were selected and reviewed by a wider Reference Group of 42 experts from 24 countries. The Level 1 variables were implemented into the EuroHeart IT platform as the basis for continuous registration of individual patient data.CONCLUSION: By means of a structured process and working with international stakeholders, harmonized data standards for AF/AFL and catheter ablation for AF/AFL were developed. In context of the EuroHeart project, this will facilitate country-level quality of care improvement, international observational research, registry-based RCTs and post-marketing surveillance of devices and pharmacotherapies. | |
650 | 7 | a MEDICIN OCH HÄLSOVETENSKAPx Klinisk medicinx Kardiologi0 (SwePub)302062 hsv//swe |
650 | 7 | a MEDICAL AND HEALTH SCIENCESx Clinical Medicinex Cardiac and Cardiovascular Systems0 (SwePub)302062 hsv//eng |
653 | a Atrial fibrillation | |
653 | a Atrial flutter | |
653 | a Catheter ablation | |
653 | a Data standards | |
653 | a Data variables | |
653 | a EuroHeart | |
700 | 1 | a Aktaa, Suleman4 aut |
700 | 1 | a Camm, A. John4 aut |
700 | 1 | a Costa, Francisco4 aut |
700 | 1 | a Di Biase, Luigi4 aut |
700 | 1 | a Duncker, David4 aut |
700 | 1 | a Fauchier, Laurent4 aut |
700 | 1 | a Fragakis, Nikolaos4 aut |
700 | 1 | a Frost, Lars4 aut |
700 | 1 | a Hijazi, Ziadu Uppsala universitet,Uppsala kliniska forskningscentrum (UCR),Kardiologi4 aut0 (Swepub:uu)ziahi940 |
700 | 1 | a Juhlin, Tord4 aut |
700 | 1 | a Merino, José L.4 aut |
700 | 1 | a Mont, Lluis4 aut |
700 | 1 | a Nielsen, Jens C.4 aut |
700 | 1 | a Oldgren, Jonas,d 1964-u Uppsala universitet,Uppsala kliniska forskningscentrum (UCR),Kardiologi4 aut0 (Swepub:uu)jonaoldg |
700 | 1 | a Polewczyk, Anna4 aut |
700 | 1 | a Potpara, Tatjana4 aut |
700 | 1 | a Sacher, Frederic4 aut |
700 | 1 | a Sommer, Philipp4 aut |
700 | 1 | a Tilz, Roland4 aut |
700 | 1 | a Maggioni, Aldo P.4 aut |
700 | 1 | a Wallentin, Lars,d 1943-u Uppsala universitet,Uppsala kliniska forskningscentrum (UCR),Kardiologi4 aut0 (Swepub:uu)larswall |
700 | 1 | a Casadei, Barbara4 aut |
700 | 1 | a Gale, Chris P.4 aut |
710 | 2 | a Uppsala universitetb Uppsala kliniska forskningscentrum (UCR)4 org |
773 | 0 | t European Heart Journal - Quality of Care and Clinical Outcomesd : Oxford University Pressg 9:6, s. 609-620q 9:6<609-620x 2058-5225x 2058-1742 |
856 | 4 | u https://doi.org/10.1093/ehjqcco/qcac068y Fulltext |
856 | 4 | u https://uu.diva-portal.org/smash/get/diva2:1721145/FULLTEXT01.pdfx primaryx Raw objecty fulltext:print |
856 | 4 8 | u https://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-491405 |
856 | 4 8 | u https://doi.org/10.1093/ehjqcco/qcac068 |
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