Symptoms affecting children with malignancies during the last month of life: a nationwide follow-up

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Fältnamn	Indikatorer	Metadata
000		04448naa a2200637 4500
001		oai:gup.ub.gu.se/45659
003		SwePub
008		240528s2006 \| \|\|\|\|\|\|\|\|\|\|\|000 \|\|eng\|
009		oai:DiVA.org:esh-5099
009		oai:prod.swepub.kib.ki.se:1949685
024	7	a https://gup.ub.gu.se/publication/456592 URI
024	7	a https://doi.org/10.1542/peds.2005-14792 DOI
024	7	a https://urn.kb.se/resolve?urn=urn:nbn:se:esh:diva-50992 URI
024	7	a http://kipublications.ki.se/Default.aspx?queryparsed=id:19496852 URI
040		a (SwePub)gud (SwePub)eshd (SwePub)ki
041		a eng
042		9 SwePub
072	7	a ref2 swepub-contenttype
072	7	a art2 swepub-publicationtype
100	1	a Jalmsell, Liu Karolinska Institutet4 aut0 (Swepub:esh)lijalm
245	1 0	a Symptoms affecting children with malignancies during the last month of life: a nationwide follow-up
264		c 2006-04-01
264	1	b American Academy of Pediatrics (AAP),c 2006
520		a OBJECTIVE: In a population-based nationwide survey, we aimed to study symptoms in children with malignancies during the last month of their lives. Understanding which symptoms affect children in the terminal phase of disease is crucial to improve palliative care. METHODS: We attempted to contact all parents in Sweden who had lost a child to cancer during a 6-year period. The parents were asked, through an anonymous postal questionnaire, about symptoms that affected the child's sense of well-being during the last month of life. RESULTS: Information was supplied by 449 (80%) of 561 eligible parents. The symptoms most frequently reported with high or moderate impact on the child's well-being were: physical fatigue (86%), reduced mobility (76%), pain (73%), and decreased appetite (71%). Irrespective of the specific malignancy, physical fatigue was the most frequently reported symptom, and pain was among the 3 most frequently reported. Children who died at 9 to 15 years of age were reported to be moderately or severely affected, by a number of symptoms, significantly more often than other children. The gender of the reporting parent had no significant bearing on any of the symptoms reported. CONCLUSIONS: The most frequently reported symptoms in children with malignancies to be aware of and possibly address during the terminal phase are physical fatigue, reduced mobility, pain, and decreased appetite. Children aged 9 to 15 years are reported to be moderately or severely affected by more symptoms than children in other age groups. Mothers and fathers report a similar prevalence of symptoms.
650	7	a MEDICIN OCH HÄLSOVETENSKAPx Klinisk medicinx Cancer och onkologi0 (SwePub)302032 hsv//swe
650	7	a MEDICAL AND HEALTH SCIENCESx Clinical Medicinex Cancer and Oncology0 (SwePub)302032 hsv//eng
650	7	a MEDICIN OCH HÄLSOVETENSKAPx Annan medicin och hälsovetenskapx Övrig annan medicin och hälsovetenskap0 (SwePub)305992 hsv//swe
650	7	a MEDICAL AND HEALTH SCIENCESx Other Medical and Health Sciencesx Other Medical and Health Sciences not elsewhere specified0 (SwePub)305992 hsv//eng
653		a Adolescent
653		a Adult
653		a Appetite
653		a Child
653		a Child
653		a Preschool
653		a Fatigue/etiology
653		a Female
653		a Humans
653		a Infant
653		a Locomotion
653		a Male
653		a Neoplasms/*complications
653		a Pain/etiology
653		a *Quality of Life
653		a Sweden
653		a *Terminal Care
653		a Cancer
700	1	a Kreicbergs, Ulrikau Karolinska Institutet4 aut0 (Swepub:esh)ulrkre
700	1	a Onelov, E.u Karolinska Institutet4 aut
700	1	a Steineck, Gunnar,d 1952u Karolinska Institutet,Gothenburg University,Göteborgs universitet,Institutionen för kliniska vetenskaper,Institute of Clinical Sciences4 aut0 (Swepub:gu)xstegu
700	1	a Henter, J. I.u Karolinska Institutet4 aut
710	2	a Karolinska Institutetb Institutionen för kliniska vetenskaper4 org
773	0	t Pediatricsd : American Academy of Pediatrics (AAP)g 117:4, s. 1314-20q 117:4<1314-20x 1098-4275x 0031-4005
856	4 8	u https://gup.ub.gu.se/publication/45659
856	4 8	u https://doi.org/10.1542/peds.2005-1479
856	4 8	u https://urn.kb.se/resolve?urn=urn:nbn:se:esh:diva-5099
856	4 8	u http://kipublications.ki.se/Default.aspx?queryparsed=id:1949685

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Av författaren/redakt...: Jalmsell, Li; Kreicbergs, Ulri ...; Onelov, E.; Steineck, Gunnar ...; Henter, J. I.

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