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Outpatient volumes and medical staffing resources as predictors for continuity of follow-up care during transfer of adolescents with congenital heart disease
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- Skogby, Sandra, 1989 (författare)
- Gothenburg University,Göteborgs universitet,University of Gothenburg,Queen Silvia Children’s Hospital,Institutionen för vårdvetenskap och hälsa,Institute of Health and Care Sciences
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- Moons, Philip, 1968 (författare)
- Gothenburg University,Göteborgs universitet,University of Gothenburg,University of Cape Town,Institutionen för vårdvetenskap och hälsa,Institute of Health and Care Sciences
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- Johansson, Bengt (författare)
- Umeå University,Umeå universitet,Kardiologi,Department of Public Health and Clinical Medicine, Umeå University, Umeå, Sweden,Umea Univ, Dept Publ Hlth & Clin Med, S-90185 Umea, Sweden.
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- Sunnegårdh, Jan (författare)
- Department of Paediatric Cardiology, Queen Silvia's Children's Hospital, Gothenburg, Sweden,Queen Silvias Childrens Hosp, Dept Paediat Cardiol, Rondvagen 10, S-41650 Gothenburg, Sweden.
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- Christersson, Christina (författare)
- Uppsala University,Uppsala universitet,Kardiologi,Uppsala Univ, Sweden
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- Nagy, Edit (författare)
- Karolinska Institutet
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- Winberg, Per (författare)
- Department of Paediatric Cardiology, Karolinska University Hospital, Stockholm, Sweden,Karolinska Univ Hosp, Dept Paediat Cardiol, S-17176 Stockholm, Sweden.
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- Hanséus, Katarina (författare)
- Department of Paediatric Cardiology, Skåne University Hospital, Barnhjärtcentrum avd 67, Lund, Sweden,Skane Univ Hosp, Dept Paediat Cardiol, Barnhjartctr Avd 67, S-22185 Lund, Sweden.
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- Trzebiatowska-Krzynska, Aleksandra, 1964- (författare)
- Linköping University,Linköpings universitet,Avdelningen för diagnostik och specialistmedicin,Medicinska fakulteten,Region Östergötland, Kardiologiska kliniken US
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- Fadl, Shalan, 1966- (författare)
- Örebro universitet,Institutionen för medicinska vetenskaper,Department of Paediatric and Women's Health Care, Örebro University Hospital, Örebro, Sweden,Orebro Univ Hosp, Dept Paediat & Womens Hlth Care, S-70185 Orebro, Sweden.
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- Fernlund, Eva (författare)
- Lund University,Lunds universitet,Linköpings universitet,Avdelningen för kirurgi, ortopedi och onkologi,Medicinska fakulteten,Region Östergötland, H.K.H. Kronprinsessan Victorias barn- och ungdomssjukhus,Lund Univ, Sweden,Pediatrik, Lund,Sektion V,Institutionen för kliniska vetenskaper, Lund,Paediatrics (Lund),Section V,Department of Clinical Sciences, Lund,Faculty of Medicine,Skåne University Hospital
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- Kazamia, Kalliopi (författare)
- Karolinska Institutet,Uppsala University,Uppsala universitet,Institutionen för kvinnors och barns hälsa,Uppsala Univ, Sweden
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- Rydberg, Annika (författare)
- Umeå universitet,Pediatrik,Department of Clinical Sciences, Unit of Paediatrics, Umeå University, Umeå University Hospital, Umeå, Sweden,Umea Univ, Umea Univ Hosp, Dept Clin Sci, Unit Paediat, S-90185 Umea, Sweden.,Norrland University Hospital
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- Zühlke, Liesl (författare)
- Division of Paediatric Cardiology, Department of Paediatric and Child Health, Red Cross War Memorial Children's Hospital, Faculty of Health Sciences, University of Cape Town, Cape Town, South Africa; Division of Cardiology, Department of Medicine, Groote Schuur Hospital, Faculty of Health Sciences, University of Cape Town, Cape Town, South Africa,Univ Cape Town, Red Cross War Mem Childrens Hosp, Fac Hlth Sci, Dept Paediat & Child Hlth,Div Paediat Cardiol, Klipfrontein Rd Mowbray, ZA-7700 Cape Town, South Africa.;Univ Cape Town, Groote Schuur Hosp, Fac Hlth Sci, Dept Med,Div Cardiol, Anzio Rd Mowbray, ZA-7700 Cape Town, South Africa.
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- Goossens, Eva (författare)
- KU Leuven Department of Public Health and Primary Care, Leuven, Belgium; Research Foundation Flanders (FWO), Brussels, Belgium,Katholieke Univ Leuven, Dept Publ Hlth & Primary Care, Kapucijnenvoer 35,PB 7001, B-3000 Leuven, Belgium.;Res Fdn Flanders FWO, Egrnontstr 5, B-1030 Brussels, Belgium.,Catholic University of Leuven
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- Bratt, Ewa-Lena, 1970 (författare)
- Gothenburg University,Göteborgs universitet,University of Gothenburg,Queen Silvia Children’s Hospital,Institutionen för vårdvetenskap och hälsa,Institute of Health and Care Sciences
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(creator_code:org_t)
- Elsevier, 2020
- 2020
- Engelska.
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Ingår i: International Journal of Cardiology. - : Elsevier. - 0167-5273 .- 1874-1754. ; 310, s. 51-57
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Abstract
Ämnesord
Stäng
- BACKGROUND: Providing continuous follow-up care to patients with congenital heart disease (CHD) remains a challenge in many settings. Previous studies highlight that patients with CHD experience discontinuation of follow-up care, but mainly describe a single-centre perspective, neglecting inter-institutional variations. Hospital-related factors above and beyond patient-related factors are believed to affect continuity of care. The present multicentre study therefore investigated (i) proportion of "no follow-up care"; (ii) transfer destinations after leaving paediatric cardiology; (iii) variation in proportions of no follow-up between centres; (iv) the association between no follow-up and outpatient volumes, and (v) its relationship with staffing resources at outpatient clinics.METHODS: An observational, multicentre study was conducted in seven university hospitals. In total, 654 adolescents with CHD, born between 1991 and 1993, with paediatric outpatient visit at age 14-18 years were included. Transfer status was determined 5 years after the intended transfer to adult care (23y), based on medical files, self-reports and registries.RESULTS: Overall, 89.7% of patients were receiving adult follow-up care after transfer; 6.6% had no follow-up; and 3.7% were untraceable. Among patients in follow-up care, only one remained in paediatric care and the majority received specialist adult CHD care. Significant variability in proportions of no follow-up were identified across centres. Higher outpatient volumes at paediatric outpatient clinics were associated with better continued follow-up care after transfer (OR = 1.061; 95% CI = 1.001 - 1.124). Medical staffing resources were not found predictive.CONCLUSION: Our findings support the theory of hospital-related factors influencing continuity of care, above and beyond patient-related characteristics.
Ämnesord
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Hälso- och sjukvårdsorganisation, hälsopolitik och hälsoekonomi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Health Care Service and Management, Health Policy and Services and Health Economy (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Klinisk medicin -- Kardiologi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Clinical Medicine -- Cardiac and Cardiovascular Systems (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Folkhälsovetenskap, global hälsa, socialmedicin och epidemiologi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Public Health, Global Health, Social Medicine and Epidemiology (hsv//eng)
Nyckelord
- Adolescent
- Continuity of patient care
- Heart defects
- congenital
- Patient transfer
- Transition to adult care
- Young adult
- Medicine
- medicin
- Adolescent
- Continuity of patient care
- Heart defects, congenital
- Patient transfer
- Transition to adult care
- Young adult
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- ref (ämneskategori)
- art (ämneskategori)
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Skogby, Sandra, ...
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Moons, Philip, 1 ...
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Johansson, Bengt
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Sunnegårdh, Jan
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Christersson, Ch ...
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Nagy, Edit
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Winberg, Per
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Hanséus, Katarin ...
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Trzebiatowska-Kr ...
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Fadl, Shalan, 19 ...
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Fernlund, Eva
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Kazamia, Kalliop ...
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Rydberg, Annika
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Zühlke, Liesl
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Goossens, Eva
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Bratt, Ewa-Lena, ...
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MEDICIN OCH HÄLS ...
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- MEDICIN OCH HÄLSOVETENSKAP
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MEDICIN OCH HÄLS ...
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och Klinisk medicin
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och Kardiologi
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Umeå universitet
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Örebro universitet
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Uppsala universitet
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Linköpings universitet
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Lunds universitet
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Karolinska Institutet
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Göteborgs universitet
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