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Women's experience of the health information process involving a digital information tool before commencing radiation therapy for breast cancer : a deductive interview study
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- Grynne, A. (author)
- Jönköping University,HHJ, Avdelningen för omvårdnad,The Jönköping Academy for Improvement of Health and Welfare,School of Health and Welfare, Jönköping
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- Wångdahl, J. (author)
- Karolinska Institutet,Karolinska Institute,Stockholms universitet,Centrum för forskning om äldre och åldrande (ARC), (tills m KI),Aging Research Center, Department of Neurobiology, Care Sciences and Society, Karolinska Institutet and Stockholm University, Stockholm, Sweden
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- Fristedt, Sofi, 1969- (author)
- Jönköping University,HHJ, Avdelningen för kvalitetsförbättring och ledarskap,The Jönköping Academy for Improvement of Health and Welfare,HHJ. ARN-J (Aging Research Network - Jönköping),Lunds universitet,Lund University,Tillämpad Gerontologi,Forskargrupper vid Lunds universitet,Applied Gerontology,Lund University Research Groups
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- Smith, Frida, 1973 (author)
- Chalmers University of Technology,Regional Cancer Center Western Sweden
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- Browall, Maria (author)
- Gothenburg University,Jönköping University,HHJ, Avdelningen för omvårdnad,The Jönköping Academy for Improvement of Health and Welfare,Göteborgs universitet,University of Gothenburg,Institutionen för kliniska vetenskaper, Avdelningen för onkologi,Institute of Clinical Sciences, Department of Oncology,School of Health and Welfare, Jönköping,Sahlgrenska Academy
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(creator_code:org_t)
- BioMed Central (BMC), 2023
- 2023
- English.
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In: BMC Health Services Research. - : BioMed Central (BMC). - 1472-6963. ; 23:1
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Abstract
Subject headings
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- BACKGROUND: Individuals undergoing radiation therapy for breast cancer frequently request information before, throughout and after the treatment as a means to reduce distress. Nevertheless, the provision of information to meet individuals needs from their level of health literacy is often overlooked. Thus, individuals information needs are often unmet, leading to reports of discontent. Internet and digital information technology has significantly augmented the available information and changed the way in which persons accesses and comprehends information. As health information is no longer explicitly obtained from healthcare professionals, it is essential to examine the sequences of the health information process in general, and in relation to health literacy. This paper reports on qualitative interviews, targeting women diagnosed with breast cancer who were given access to a health information technology tool, Digi-Do, before commencing radiation therapy, during, and after treatment. METHODS: A qualitative research design, inspired by the integrated health literacy model, was chosen to enable critical reflection by the participating women. Semi-structured interviews were conducted with 15 women with access to a digital information tool, named Digi-Do, in addition to receiving standard information (oral and written) before commencing radiation therapy, during, and after treatment. A deductive thematic analysis process was conducted. RESULTS: The results demonstrate how knowledge, competence, and motivation influence women's experience of the health information process. Three main themes were found: Meeting interactive and personal needs by engaging with health information; Critical recognition of sources of information; and Capability to communicate comprehended health information. The findings reflect the women's experience of the four competencies: to access, understand, appraise, and apply, essential elements of the health information process. CONCLUSIONS: We can conclude that there is a need for tailored digital information tools, such as the Digi-Do, to enable iterative access and use of reliable health information before, during and after the radiation therapy process. The Digi-Do can be seen as a valuable complement to the interpersonal communication with health care professionals, facilitating a better understanding, and enabling iterative access and use of reliable health information before, during and after the radiotherapy treatment. This enhances a sense of preparedness before treatment starts.
Subject headings
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Omvårdnad (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Nursing (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Klinisk medicin -- Cancer och onkologi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Clinical Medicine -- Cancer and Oncology (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Klinisk medicin -- Radiologi och bildbehandling (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Clinical Medicine -- Radiology, Nuclear Medicine and Medical Imaging (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences (hsv//eng)
- SAMHÄLLSVETENSKAP -- Medie- och kommunikationsvetenskap -- Biblioteks- och informationsvetenskap (hsv//swe)
- SOCIAL SCIENCES -- Media and Communications -- Information Studies (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Hälso- och sjukvårdsorganisation, hälsopolitik och hälsoekonomi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Health Care Service and Management, Health Policy and Services and Health Economy (hsv//eng)
Keyword
- Breast cancer
- Digital information tool
- Health information process
- Radiation therapy
- Breast Neoplasms
- Cognition
- Communication
- Female
- Humans
- Qualitative Research
- breast tumor
- human
- interpersonal communication
- Breast cancer
- Health information process
- Digital information tool
- Radiation therapy
Publication and Content Type
- ref (subject category)
- art (subject category)
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