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Towards a European ...
Towards a European health research and innovation cloud (HRIC)
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- Aarestrup, FM (author)
- Tech Univ Denmark, Lyngby, Denmark.,Technical University of Denmark
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- Albeyatti, A (author)
- Karolinska Institutet
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Armitage, WJ (author)
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- Auffray, C (author)
- EISBM, Vourles, France.
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Augello, L (author)
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Balling, R (author)
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- Benhabiles, N (author)
- Univ Paris Saclay, CEA, French Atom Energy & Alternat Energy Commiss, Direct Rech Fondamentale, F-91191 Gif Sur Yvette, France.
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Bertolini, G (author)
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Bjaalie, JG (author)
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Black, M (author)
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- Blomberg, N (author)
- ELIXIR, Welcome Genome Campus, Cambridge CB10 1SD, England.
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Bogaert, P (author)
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Bubak, M (author)
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Claerhout, B (author)
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Clarke, L (author)
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De Meulder, B (author)
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D'Errico, G (author)
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Di Meglio, A (author)
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Forgo, N (author)
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Gans-Combe, C (author)
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Gray, AE (author)
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Gut, I (author)
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- Gyllenberg, A (author)
- Karolinska Institutet
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Hemmrich-Stanisak, G (author)
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- Hjorth, Lars (author)
- Lund University,Lunds universitet,Sena effekter efter barncancerbehandling,Forskargrupper vid Lunds universitet,LUCC: Lunds universitets cancercentrum,Övriga starka forskningsmiljöer,Late effects after childhood cancer treatment,Lund University Research Groups,LUCC: Lund University Cancer Centre,Other Strong Research Environments
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Ioannidis, Y (author)
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Jarmalaite, S (author)
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Kel, A (author)
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Kherif, F (author)
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- Korbel, JO (author)
- European Mol Biol Lab, Genome Biol Unit, Heidelberg, Germany.
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Larue, C (author)
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Laszlo, M (author)
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Maas, A (author)
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Magalhaes, L (author)
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Manneh-Vangramberen, I (author)
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Morley-Fletcher, E (author)
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Ohmann, C (author)
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- Oksvold, Per (author)
- KTH,Science for Life Laboratory, SciLifeLab,Sci Life Lab, Stockholm, Sweden.
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Oxtoby, NP (author)
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Perseil, I (author)
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Pezoulas, V (author)
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Riess, O (author)
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Riper, H (author)
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Roca, J (author)
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Rosenstiel, P (author)
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Sabatier, P (author)
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Sanz, F (author)
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Tayeb, M (author)
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Thomassen, G (author)
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Van Bussel, J (author)
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Van den Bulcke, M (author)
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- Van Oyen, H (author)
- Univ Sci & Technol, Dept Comp Sci, Krakow, Poland.;Univ Sci & Technol, Akad Gornizco Hutnizca, Acad Comp Ctr Cyfronet, Krakow, Poland.;Sciensano, Juliette Wystmanstr, B-1050 Brussels, Belgium.,AGH University of Science and Technology
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Tech Univ Denmark, Lyngby, Denmark Technical University of Denmark (creator_code:org_t)
- 2020-02-19
- 2020
- English.
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In: Genome medicine. - : Springer Science and Business Media LLC. - 1756-994X. ; 12:1, s. 18-
- Related links:
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https://genomemedici...
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https://doi.org/10.1...
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http://dx.doi.org/10... (free)
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http://kipublication...
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https://doi.org/10.1...
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https://urn.kb.se/re...
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https://lup.lub.lu.s...
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Abstract
Subject headings
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- The European Union (EU) initiative on the Digital Transformation of Health and Care (Digicare) aims to provide the conditions necessary for building a secure, flexible, and decentralized digital health infrastructure. Creating a European Health Research and Innovation Cloud (HRIC) within this environment should enable data sharing and analysis for health research across the EU, in compliance with data protection legislation while preserving the full trust of the participants. Such a HRIC should learn from and build on existing data infrastructures, integrate best practices, and focus on the concrete needs of the community in terms of technologies, governance, management, regulation, and ethics requirements. Here, we describe the vision and expected benefits of digital data sharing in health research activities and present a roadmap that fosters the opportunities while answering the challenges of implementing a HRIC. For this, we put forward five specific recommendations and action points to ensure that a European HRIC: i) is built on established standards and guidelines, providing cloud technologies through an open and decentralized infrastructure; ii) is developed and certified to the highest standards of interoperability and data security that can be trusted by all stakeholders; iii) is supported by a robust ethical and legal framework that is compliant with the EU General Data Protection Regulation (GDPR); iv) establishes a proper environment for the training of new generations of data and medical scientists; and v) stimulates research and innovation in transnational collaborations through public and private initiatives and partnerships funded by the EU through Horizon 2020 and Horizon Europe.
Subject headings
- SAMHÄLLSVETENSKAP -- Medie- och kommunikationsvetenskap -- Systemvetenskap, informationssystem och informatik med samhällsvetenskaplig inriktning (hsv//swe)
- SOCIAL SCIENCES -- Media and Communications -- Information Systems, Social aspects (hsv//eng)
- TEKNIK OCH TEKNOLOGIER -- Medicinteknik -- Medicinsk apparatteknik (hsv//swe)
- ENGINEERING AND TECHNOLOGY -- Medical Engineering -- Medical Equipment Engineering (hsv//eng)
Keyword
- article
- computer security
- Europe
- European Union
- human
- medical research
- practice guideline
- vision
Publication and Content Type
- ref (subject category)
- art (subject category)
Find in a library
To the university's database
- By the author/editor
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Aarestrup, FM
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Albeyatti, A
-
Armitage, WJ
-
Auffray, C
-
Augello, L
-
Balling, R
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show more...
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Benhabiles, N
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Bertolini, G
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Bjaalie, JG
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Black, M
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Blomberg, N
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Bogaert, P
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Bubak, M
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Claerhout, B
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Clarke, L
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De Meulder, B
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D'Errico, G
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Di Meglio, A
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Forgo, N
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Gans-Combe, C
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Gray, AE
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Gut, I
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Gyllenberg, A
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Hemmrich-Stanisa ...
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Hjorth, Lars
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Ioannidis, Y
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Jarmalaite, S
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Kel, A
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Kherif, F
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Korbel, JO
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Larue, C
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Laszlo, M
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Maas, A
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Magalhaes, L
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Manneh-Vangrambe ...
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Morley-Fletcher, ...
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Ohmann, C
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Oksvold, Per
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Oxtoby, NP
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Perseil, I
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Pezoulas, V
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Riess, O
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Riper, H
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Roca, J
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Rosenstiel, P
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Sabatier, P
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Sanz, F
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Tayeb, M
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Thomassen, G
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Van Bussel, J
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Van den Bulcke, ...
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Van Oyen, H
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show less...
- About the subject
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- SOCIAL SCIENCES
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SOCIAL SCIENCES
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and Media and Commun ...
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and Information Syst ...
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- ENGINEERING AND TECHNOLOGY
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ENGINEERING AND ...
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and Medical Engineer ...
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and Medical Equipmen ...
- Articles in the publication
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Genome medicine
- By the university
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Karolinska Institutet
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Royal Institute of Technology
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Lund University