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Patients’ access to...
Patients’ access to their psychiatric notes : Current policies and practices in Sweden
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- Bärkås, Annika (author)
- Uppsala universitet,Hälsovetenskap och e-hälsa
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- Scandurra, Isabella, 1973- (author)
- Örebro universitet,Handelshögskolan vid Örebro Universitet,School of Business, Örebro University, Sweden
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- Rexhepi, Hanife, 1984- (author)
- Högskolan i Skövde,Institutionen för informationsteknologi,Forskningsmiljön Informationsteknologi,Informationssystem, Information Systems,School of Informatics, Skövde University, Skövde, Sweden
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- Blease, Charlotte (author)
- General Medicine and Primary Care, Beth Israel Deaconess Medical Center, Boston, United States,General Medicine and Primary Care, Beth Israel Deaconess Medical Center, Boston, MA, USA
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- Cajander, Åsa, Professor, 1971- (author)
- Uppsala universitet,Bildanalys och människa-datorinteraktion,Avdelningen för visuell information och interaktion,Datavetenskapens didaktik
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- Hägglund, Maria, Lektor, 1975- (author)
- Karolinska Institutet,Uppsala universitet,Hälsovetenskap och e-hälsa
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(creator_code:org_t)
- 2021-08-30
- 2021
- English.
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In: International Journal of Environmental Research and Public Health. - : MDPI. - 1661-7827 .- 1660-4601. ; 18:17
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Abstract
Subject headings
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- Patients’ access to electronic health records (EHRs) is debated worldwide, and access to psychiatry records is even more criticized. There is a nationwide service in Sweden which offers all citizens the opportunity to read their EHR, including clinical notes. This study aims to explore Swedish national and local policy regulations regarding patients’ access to their psychiatric notes and describe to what extent patients currently are offered access to them. The rationale behind the study is that current policies and current practices may differ between the 21 self-governing regions, although there is a national regulation. We gathered web-based information from policy documents and regulations from each region’s website. We also conducted key stakeholder interviews with respondents from the regions and cross-regional private care providers, using a qualitative approach. The results show that 17 of 21 regions share psychiatric notes with patients, where forensic psychiatric care was the most excluded psychiatric care setting. All private care providers reported that they mainly follow the regions’ guidelines. Our findings show that regional differences concerning sharing psychiatric notes persist, despite Swedish regulations and a national policy that stipulates equal care for everyone. The differences, however, appear to have decreased over time, and we report evidence that the regions are moving toward increased transparency for psychiatry patients.
Subject headings
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Hälso- och sjukvårdsorganisation, hälsopolitik och hälsoekonomi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Health Care Service and Management, Health Policy and Services and Health Economy (hsv//eng)
- NATURVETENSKAP -- Data- och informationsvetenskap -- Systemvetenskap, informationssystem och informatik (hsv//swe)
- NATURAL SCIENCES -- Computer and Information Sciences -- Information Systems (hsv//eng)
Keyword
- Mental health
- Open notes
- PAEHR
- Patient accessible electronic health record
- Policies
- Psychiatric notes
- Psychiatric record
- Psychiatry
- adult
- article
- clinical article
- electronic health record
- female
- human
- interview
- male
- mental health care
- practice guideline
- Sweden
- Information Systems
- Informationssystem (IS)
- Medical Informatics
Publication and Content Type
- ref (subject category)
- art (subject category)
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