Randomised controlled trial of a person-centred transition programme for adolescents with type 1 diabetes (STEPSTONES-DIAB): a study protocol

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Fältnamn	Indikatorer	Metadata
000		04613naa a2200529 4500
001		oai:gup.ub.gu.se/294287
003		SwePub
008		240910s2020 \| \|\|\|\|\|\|\|\|\|\|\|000 \|\|eng\|
009		oai:prod.swepub.kib.ki.se:143864654
024	7	a https://gup.ub.gu.se/publication/2942872 URI
024	7	a https://doi.org/10.1136/bmjopen-2019-0364962 DOI
024	7	a http://kipublications.ki.se/Default.aspx?queryparsed=id:1438646542 URI
040		a (SwePub)gud (SwePub)ki
041		a eng
042		9 SwePub
072	7	a ref2 swepub-contenttype
072	7	a art2 swepub-publicationtype
100	1	a Brorsson, Anna Lena,d 1964u Karolinska Institutet,Gothenburg University,Göteborgs universitet,Centrum för personcentrerad vård vid Göteborgs universitet (GPCC),University of Gothenburg Centre for person-centred care (GPCC)4 aut0 (Swepub:gu)xbrorm
245	1 0	a Randomised controlled trial of a person-centred transition programme for adolescents with type 1 diabetes (STEPSTONES-DIAB): a study protocol
264		c 2020-04-14
264	1	b BMJ,c 2020
520		a Introduction Adolescence is a critical period for youths with chronic conditions, when they are supposed to take over the responsibility for their health. Type 1 diabetes (T1D) is one of the most common chronic conditions in childhood and inadequate self-management increases the risk of short-term and long-term complications. There is a lack of evidence regarding the effectiveness of transition programmes. As a part of the Swedish Transition Effects Project Supporting Teenagers with chrONic mEdical conditionS research programme, the objective of this study is to evaluate the effectiveness and experiences of different transitional care models, including a person-centred transition programme aiming to empower adolescents with T1D to become active partners in their health and care. Methods and analysis In this randomised controlled trial, patients are recruited from two paediatric diabetes clinics at the age of 16 years. Patients are randomly assigned to either the intervention group (n=70) where they will receive usual care plus the structured transition programme, or to the control group (n=70) where they will only receive usual care. Data will be collected at 16, 17 and 18.5 years of age. In a later stage, the intervention group will be compared with adolescents in a dedicated youth clinic in a third setting. The primary outcome is patient empowerment. Secondary outcomes include generic, diabetes-specific and transfer-specific variables. Ethics and dissemination The study has been approved by the Ethical Review Board in Stockholm (Dnr 2018/1725-31). Findings will be reported following the Consolidated Standards of Reporting Trials statement and disseminated in peer-reviewed journals and at international conferences.
650	7	a MEDICIN OCH HÄLSOVETENSKAPx Klinisk medicin0 (SwePub)3022 hsv//swe
650	7	a MEDICAL AND HEALTH SCIENCESx Clinical Medicine0 (SwePub)3022 hsv//eng
653		a quality-of-life
653		a health-care
653		a psychometric properties
653		a emerging adults
653		a young-adults
653		a children
653		a interventions
653		a statement
653		a outcomes
653		a burden
653		a General & Internal Medicine
700	1	a Bratt, Ewa-Lena,d 1970u Gothenburg University,Göteborgs universitet,Institutionen för vårdvetenskap och hälsa,Institute of Health and Care Sciences4 aut0 (Swepub:gu)xbraew
700	1	a Moons, Philip,d 1968u Gothenburg University,Göteborgs universitet,Institutionen för vårdvetenskap och hälsa,Institute of Health and Care Sciences4 aut0 (Swepub:gu)xmooph
700	1	a Ek, A.u Karolinska Institutet4 aut
700	1	a Jelleryd, E.u Karolinska Institutet4 aut
700	1	a Torbjornsdotter, T.4 aut
700	1	a Sparud Lundin, Carina,d 1964u Gothenburg University,Göteborgs universitet,Institutionen för vårdvetenskap och hälsa,Centrum för personcentrerad vård vid Göteborgs universitet (GPCC),Institute of Health and Care Sciences,University of Gothenburg Centre for person-centred care (GPCC)4 aut0 (Swepub:gu)xspaca
710	2	a Göteborgs universitetb Centrum för personcentrerad vård vid Göteborgs universitet (GPCC)4 org
773	0	t BMJ Opend : BMJg 10:4q 10:4x 2044-6055
856	4	u https://bmjopen.bmj.com/content/bmjopen/10/4/e036496.full.pdf
856	4 8	u https://gup.ub.gu.se/publication/294287
856	4 8	u https://doi.org/10.1136/bmjopen-2019-036496
856	4 8	u http://kipublications.ki.se/Default.aspx?queryparsed=id:143864654

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Av lärosätet: Göteborgs universitet; Karolinska Institutet

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