A comprehensive rehabilitation programme tailored to the needs of adults with muscular dystrophy.

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A comprehensive rehabilitation programme tailored to the needs of adults with muscular dystrophy.

Ahlström, Gerd (author): Jönköping University,HHJ, Avdelningen för omvårdnad,HHJ. Kvalitetsförbättringar, innovationer och ledarskap inom vård och socialt arbete,Ahlström, G., Department of Health Sciences, University of Örebro, SE-701 82 Örebro, Sweden

Lindvall, Björn (author): Östergötlands Läns Landsting,Linköpings universitet,Hälsouniversitetet,Neurologi,Neurologiska kliniken

Wenneberg, Stig (author): Örebro universitet,Institutionen för vårdvetenskap och omsorg,Department of Health Sciences, University of Örebro, SE-701 82 Örebro, Sweden

Gunnarsson, Lars-Gunnar, 1948- (author): Örebro universitet,Institutionen för klinisk medicin,Department of Neurology and Neurophysiology, Örebro University Hospital, Örebro, Sweden

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SAGE Publications, 2006
2006
English.
In: Clinical Rehabilitation. - : SAGE Publications. - 0269-2155 .- 1477-0873. ; 20:2, s. 132-141

Related links:: http://www.ncbi.nlm....; show more...; https://urn.kb.se/re...; https://urn.kb.se/re...; https://doi.org/10.1...; https://urn.kb.se/re...; show less...

Journal article (peer-reviewed)

Abstract Subject headings

OBJECTIVE: To assess if activities of daily living (ADL), coping and quality of life could be improved in adults with muscular dystrophy through a comprehensive rehabilitation programme. DESIGN: Quasi-experimental, controlled clinical study comparing patients with similar age and disease aspects. SETTING: Two different counties in Sweden, being either study or control setting. SUBJECTS: The study group comprised 37 adults (21 women, 16 men; mean age 50 years), while the control group comprised 39 people (25 women, 14 men; mean age 46 years). INTERVENTIONS: Four rehabilitation sessions tailored to different medical, physical and psychosocial needs of the patients, comprising a total of 10 days over a period of 18 months. MAIN MEASURES: ADL, the Mental Adjustment to Cancer Scale measuring coping strategies, the Sickness Impact Profile measuring health-related quality of life, the Hospital Anxiety and Depression Scale, and the Psychosocial Well-being Questionnaire. RESULTS: No significant differences were found between groups with regard to the outcome measures. There was increased dependence on others in ADL after 18 months in both groups, but it was more pronounced in the control group. Furthermore, a clear trend was observed in the data with regard to coping patterns, the control group using more coping strategies such as 'Helplessness/hopelessness' (P= 0.057), 'Anxious preoccupation' (P = 0.085) and 'Fatalistic' (P= 0.073) when being compared to the study group. CONCLUSIONS: No apparent effects on ADL were found from the rehabilitation programme, although there was a tendency of reduction of maladaptive coping patterns in the study group. This initial study may provide the rationale and basis for a randomized controlled trial.

Subject headings

MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Omvårdnad (hsv//swe)
MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Nursing (hsv//eng)
MEDICIN OCH HÄLSOVETENSKAP -- Klinisk medicin -- Neurologi (hsv//swe)
MEDICAL AND HEALTH SCIENCES -- Clinical Medicine -- Neurology (hsv//eng)

Keyword

Activities of Daily Living
Adaptation; Psychological
Adult
Aged
Anxiety/epidemiology
Depression/epidemiology
Disability Evaluation
Female
Humans
Male
Middle Aged
Muscular Dystrophies/*rehabilitation
Quality of Life
Questionnaires
Nursing
Omvårdnad
MEDICINE
Neurology
Nursing Science
Neurology

Publication and Content Type

ref (subject category)
art (subject category)

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MEDICAL AND HEALTH SCIENCES: MEDICAL AND HEAL ...; and Health Sciences; and Nursing

MEDICAL AND HEALTH SCIENCES: MEDICAL AND HEAL ...; and Clinical Medicin ...; and Neurology

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By the university: Jönköping University; Örebro University; Linköping University

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