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  • Mossey, Peter AUniversity of Dundee (author)

Core outcomes for orofacial clefts : reconciling traditional and ICHOM minimum datasets

  • Article/chapterEnglish2023

Publisher, publication year, extent ...

  • Oxford University Press,2023
  • 9
  • electronicrdacarrier

Numbers

  • LIBRIS-ID:oai:researchportal.hkr.se/admin:publications/7129b5b2-b570-4825-814d-b1250188c9a0
  • oai:researchportal.hkr.se/admin:publications/7129b5b2-b570-4825-814d-b1250188c9a0URI
  • https://doi.org/10.1093/ejo/cjad023DOI
  • https://gup.ub.gu.se/publication/327908URI

Supplementary language notes

  • Language:English
  • Summary in:English

Part of subdatabase

Classification

  • Subject category:ref swepub-contenttype
  • Subject category:art swepub-publicationtype

Notes

  • © The Author(s) 2023. Published by Oxford University Press on behalf of the European Orthodontic Society.
  • OBJECTIVE/DESIGN/SETTING: This retrospective study sought voluntary participation from leading cleft centres from Europe and Brazil regarding core outcome measures. The results of this study would inform the debate on core outcome consensus pertaining to the European Reference Network for rare diseases (ERN CRANIO) and achieve a core outcome set for cleft care providers worldwide. INTERVENTION/METHOD: Five orofacial cleft (OFC) disciplines were identified, within which all of the International Consortium of Health Outcomes Measurement (ICHOM) outcomes fall. One questionnaire was designed for each discipline and comprised 1. the relevant ICHOM's outcomes within that discipline, and 2. a series of questions targeted to clinicians. What core outcomes are currently measured and when, did these align with the ICHOM minimum, if not how did they differ, and would they recommend modified or additional outcomes?. RESULTS: For some disciplines participants agreed with the ICHOM minimums but urged for earlier and morefrequent intervention. Some clinicians felt that some of the ICHOM standards were compatible but that different ages were preferred and for others the ICHOM standards were acceptable but developmental stages should be preferred to absolute time points. CONCLUSION/IMPLICATIONS: Core outcomes for OFC were supported in principle but there are differences between the ICHOM recommendations and the 2002 WHO global consensus. The latter are established in many centres with historical archives of OFC outcome data, and it was concluded that with some modifications ICHOM could be moulded into useful core outcomes data for inter-centre comparisons worldwide.

Subject headings and genre

Added entries (persons, corporate bodies, meetings, titles ...)

  • Lai, JasonUniversity of Dundee (author)
  • Meazzini, Maria CostanzaUniversity of Milano, (author)
  • Breugem, CorstiaanUniversity of Amsterdam (author)
  • Mark, Hans,1961Gothenburg University,Göteborgs universitet,Institutionen för kliniska vetenskaper, Avdelningen för plastikkirurgi,Institute of Clinical Sciences, Department of Plastic Surgery(Swepub:gu)xmarkh (author)
  • Mink van der Molen, Aebele BUniversity Medical Center Utrecht, (author)
  • Persson, MartinPatient Reported Outcomes - Clinical Assessment Research and Education (PROCARE),Department of Nursing and Integrated Health Sciences,Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap (author)
  • Davies, GarethStichting European Cleft Organisation, (author)
  • Ozawa, Terumi OkadaHospital de Reabilitação de Anomalias Craniofaciais (HRAC), (author)
  • University of DundeeUniversity of Milano (creator_code:org_t)

Related titles

  • In:European Journal of Orthodontics: Oxford University Press45:6, s. 671-6790141-53871460-2210

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