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Needs and quality o...
Needs and quality of life of people with middle-stage dementia and their family carers from the European Actifcare study. When informal care alone may not suffice
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- Kerpershoek, Liselot (author)
- Maastricht Univ, Alzheimer Ctr Limburg, Maastricht, Netherlands
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- de Vugt, Marjolein (author)
- Maastricht Univ, Alzheimer Ctr Limburg, Maastricht, Netherlands
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- Wolfs, Claire (author)
- Maastricht Univ, Alzheimer Ctr Limburg, Maastricht, Netherlands
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- Woods, Bob (author)
- Bangor Univ, Bangor, Gwynedd, Wales
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- Jelley, Hannah (author)
- Bangor Univ, Bangor, Gwynedd, Wales
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- Orrell, Martin (author)
- Bangor Univ, Bangor, Gwynedd, Wales
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- Stephan, Astrid (author)
- Martin Luther Univ Halle Wittenberg DE, Inst Hlth & Nursing Sci, Halle, Germany
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- Bieber, Anja (author)
- Martin Luther Univ Halle Wittenberg DE, Inst Hlth & Nursing Sci, Halle, Germany
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- Meyer, Gabriele (author)
- Martin Luther Univ Halle Wittenberg DE, Inst Hlth & Nursing Sci, Halle, Germany
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- Selbaek, Geir (author)
- Oslo Univ Hosp, Dept Geriatr Med, Oslo, Norway
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- Handels, Ron (author)
- Karolinska Institutet
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- Wimo, Anders (author)
- Karolinska Institutet,Uppsala universitet,Centrum för klinisk forskning, Gävleborg,Karolinska Inst, Div Neurogeriatr, Dept Neurobiol Care Sci & Soc, Stockholm, Sweden
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- Hopper, Louise (author)
- Dublin City Univ, Sch Nursing & Human Sci, Dublin, Ireland
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- Irving, Kate (author)
- Dublin City Univ, Sch Nursing & Human Sci, Dublin, Ireland
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- Marques, Maria (author)
- Univ Nova Lisboa, Nova Med Sch, CEDOC, Fac Ciencias Med, Lisbon, Portugal
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- Goncalves-Pereira, Manuel (author)
- Univ Nova Lisboa, Nova Med Sch, CEDOC, Fac Ciencias Med, Lisbon, Portugal
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- Portolani, Elisa (author)
- IRCCS Ctr S Giovanni di Dio, Memory Clin, Alzheimers Res Unit, Milan, Italy
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- Zanetti, Orazio (author)
- IRCCS Ctr S Giovanni di Dio, Memory Clin, Alzheimers Res Unit, Milan, Italy
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- Verhey, Frans (author)
- Maastricht Univ, Alzheimer Ctr Limburg, Maastricht, Netherlands
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(creator_code:org_t)
- 2017-10-25
- 2018
- English.
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In: Aging & Mental Health. - : ROUTLEDGE JOURNALS, TAYLOR & FRANCIS LTD. - 1360-7863 .- 1364-6915. ; 22:7, s. 897-902
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https://www.tandfonl...
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https://doi.org/10.1...
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Abstract
Subject headings
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- Objective: The Actifcare (Access to timely formal care) study investigated needs of people with dementia and their families during the phase in which formal care is being considered, and examined whether higher need levels are related to lower quality of life (QOL).Method: From eight European countries 451 people with dementia and their carers participated. Needs were measured with the Camberwell Assessment of Need for the Elderly. QOL was measured with the QOL-AD, and carer quality of life was measured with the CarerQol. The relationship between needs and QOL was analysed with multiple regression analyses.Results: Needs were expressed in the domains of psychological distress, daytime activities, company and information. People with dementia rated their unmet needs significantly lower than their carers: the mean number of self-rated unmet needs was 0.95, whereas the mean proxy ratings were 1.66. For met needs, the self-rated mean was 5.5 and was 8 when proxy-rated. The level of needs reported was negatively associated with QOL for both.Conclusion: The study results show that informal carers reported almost twice as many needs as people with dementia. The domains in which needs are expressed should be the primary focus for interventions to support QOL.The perspectives of people with dementia are informative when identifying needs.
Subject headings
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Omvårdnad (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Nursing (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Annan medicin och hälsovetenskap -- Gerontologi, medicinsk/hälsovetenskaplig inriktning (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Other Medical and Health Sciences -- Gerontology, specialising in Medical and Health Sciences (hsv//eng)
Keyword
- Dementia
- (un)met needs
- informal carer
- quality of life
Publication and Content Type
- ref (subject category)
- art (subject category)
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- By the author/editor
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Kerpershoek, Lis ...
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de Vugt, Marjole ...
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Wolfs, Claire
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Woods, Bob
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Jelley, Hannah
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Orrell, Martin
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show more...
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Stephan, Astrid
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Bieber, Anja
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Meyer, Gabriele
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Selbaek, Geir
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Handels, Ron
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Wimo, Anders
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Hopper, Louise
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Irving, Kate
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Marques, Maria
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Goncalves-Pereir ...
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Portolani, Elisa
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Zanetti, Orazio
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Verhey, Frans
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- About the subject
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- MEDICAL AND HEALTH SCIENCES
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MEDICAL AND HEAL ...
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and Health Sciences
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and Nursing
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- MEDICAL AND HEALTH SCIENCES
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MEDICAL AND HEAL ...
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and Other Medical an ...
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and Gerontology spec ...
- Articles in the publication
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Aging & Mental H ...
- By the university
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Uppsala University
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Karolinska Institutet