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Sharing life with a...
Sharing life with a gluten-intolerant person--the perspective of close relatives.
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- Sverker, Annette, 1958 (author)
- Gothenburg University,Göteborgs universitet,Institutionen för medicin, avdelningen för samhällsmedicin och folkhälsa,Institute of Medicine, School of Public Health and Community Medicine,Linköpings universitet,Gothenburg University, Sverige
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- östlund, Gunnel, 1956- (author)
- Linköpings universitet,Samhälle, mångfald, Identitet (SMI),Filosofiska fakulteten
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- Hallert, Claes, 1945- (author)
- Östergötlands Läns Landsting,Linköpings universitet,Hälsouniversitetet,Hälsa, Aktivitet, Vård (HAV),Medicinkliniken ViN
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- Hensing, Gunnel, 1956 (author)
- Gothenburg University,Göteborgs universitet,Institutionen för medicin, avdelningen för samhällsmedicin och folkhälsa,Institute of Medicine, School of Public Health and Community Medicine
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(creator_code:org_t)
- 2007
- 2007
- English.
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In: Journal of human nutrition and dietetics : the official journal of the British Dietetic Association. - 0952-3871 .- 1365-277X. ; 20:5, s. 412-22
- Related links:
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https://gup.ub.gu.se...
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https://doi.org/10.1...
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https://urn.kb.se/re...
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https://urn.kb.se/re...
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Abstract
Subject headings
Close
- BACKGROUND: Several studies indicate the importance of social support in the case of chronic disease. AIM: The aim was to explore dilemmas experienced by close relatives living with a person suffering from coeliac disease, and to describe the strategies they used to deal with these dilemmas. METHODS: Twenty-three informants were interviewed. A systematic inductive qualitative method, the critical incident technique was used. RESULTS: Disease-related worries included having bad conscience about not being affected by the disease, experiencing anxiety and witnessing the vulnerability of the affected relative in social situations. Dilemmas related to manage daily life were connected with increased domestic work, restricted freedom of action and the diseased person's preferential right of interpretation of health risks associated with the coeliac disease and deviations from the diet restrictions. Dilemmas related to disturbances in social life, concerned lack of information, knowledge and understanding. Different strategies were described to manage daily life. CONCLUSIONS: Close relatives experienced a variety of dilemmas that affected the situation of the whole family. The role of relatives in handling the coeliac disease with the diseased person in the everyday life might be underestimated, and to provide relatives with better knowledge regarding the disease might improve the situation also for patients.
Subject headings
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Folkhälsovetenskap, global hälsa, socialmedicin och epidemiologi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Public Health, Global Health, Social Medicine and Epidemiology (hsv//eng)
Keyword
- Adaptation
- Psychological
- Adult
- Celiac Disease
- diet therapy
- psychology
- Demography
- Educational Status
- Emotions
- Employment
- Family
- psychology
- Female
- Gluten
- administration & dosage
- Humans
- Interviews as Topic
- Male
- Middle Aged
- Parents
- psychology
- Quality of Life
- Social Support
- Spouses
- psychology
- Coeliac disease
- MEDICINE
Publication and Content Type
- ref (subject category)
- art (subject category)
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