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The ‘Survivorship P...
The ‘Survivorship Passport’ for childhood cancer survivors
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- Haupt, Riccardo (författare)
- Gaslini Children's Hospital
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- Essiaf, Samira (författare)
- The European Society of Paediatric Oncology (SIOPE)
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- Dellacasa, Chiara (författare)
- Inter-University Consortium Cineca
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- Ronckers, Cecile M. (författare)
- Princess Maxima Center for Pediatric Oncology/Hematology,Emma Children’s Hospital
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- Caruso, Silvia (författare)
- Gaslini Children's Hospital
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- Sugden, Elaine (författare)
- PanCare, UK,Oxford University Hospital
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- Zadravec Zaletel, Lorna (författare)
- Institute of Oncology, Ljubljana
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- Muraca, Monica (författare)
- Gaslini Children's Hospital
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- Morsellino, Vera (författare)
- Gaslini Children's Hospital
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- Kienesberger, Anita (författare)
- Austrian Childhood Cancer Organisation
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- Blondeel, Anne (författare)
- The European Society of Paediatric Oncology (SIOPE)
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- Saraceno, Davide (författare)
- Inter-University Consortium Cineca
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- Ortali, Maurizio (författare)
- Inter-University Consortium Cineca
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- Kremer, Leontien C.M. (författare)
- Princess Maxima Center for Pediatric Oncology/Hematology,Emma Children’s Hospital
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- Skinner, Roderick (författare)
- Royal Victoria Infirmary
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- Roganovic, Jelena (författare)
- University Hospital Rijeka
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- Bagnasco, Francesca (författare)
- Gaslini Children's Hospital
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- Levitt, Gill A. (författare)
- Great Ormond Street Hospital
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- De Rosa, Marisa (författare)
- Inter-University Consortium Cineca
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- Schrappe, Martin (författare)
- University of Kiel,University Medical Center Schleswig-Holstein
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- Hjorth, Lars (författare)
- Lund University,Lunds universitet,Sena effekter efter barncancerbehandling,Forskargrupper vid Lunds universitet,Late effects after childhood cancer treatment,Lund University Research Groups,Skåne University Hospital
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- Ladenstein, Ruth (författare)
- St. Anna Children's Hospital
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- Menoni, Stefania (författare)
- Gaslini Children's Hospital
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- Bergeron, Christophe (författare)
- Centre Léon Bérard
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- den Hartogh, Jaap (författare)
- Dutch Childhood Cancer Parent Organisation (VOKK)
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- Karner, Sabine (författare)
- Austrian Childhood Cancer Organisation
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- Fresneau, Brice (författare)
- University of Paris-Saclay
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- Jones, Kathy Pritchard (författare)
- University College London
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- Vassal, Gilles (författare)
- Institut Gustave Roussy
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- Bode, Gerlind (författare)
- Childhood Cancer International
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- Frey, Eva (författare)
- St. Anna Children's Hospital
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- Hennewig, Ulrike (författare)
- University Hospital Giessen and Marburg
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- Iris, Maia (författare)
- Instituto Português de Oncologia do Porto Francisco Gentil (IPO)
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- Jakab, Zsuzsanna (författare)
- Semmelweis University
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- Kosmidis, Helen (författare)
- Hospital MITERA
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- Kriviene, Izolda (författare)
- Siauliai Hospital
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- Marquez, Catalina (författare)
- University Hospital Virgen del Rocío
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- Modan-Moses, Dalit (författare)
- Sheba Medical Center,Tel-Aviv University
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- Panasiuk, Anna (författare)
- Medical University of Bialystok
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- Vetsch, Janine (författare)
- University of Lucerne
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- Elsevier BV, 2018
- 2018
- Engelska 13 s.
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Ingår i: European Journal of Cancer. - : Elsevier BV. - 0959-8049. ; 102, s. 69-81
- Relaterad länk:
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http://dx.doi.org/10... (free)
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http://www.ejcancer....
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https://lup.lub.lu.s...
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https://doi.org/10.1...
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Abstract
Ämnesord
Stäng
- Background: Currently, there are between 300,000 and 500,000 childhood cancer survivors (CCSs) in Europe. A significant proportion is at high risk, and at least 60% of them develop adverse health-related outcomes that can appear several years after treatment completion. Many survivors are unaware of their personal risk, and there seems to be a general lack of information among healthcare providers about pathophysiology and natural history of treatment-related complications. This can generate incorrect or delayed diagnosis and treatments. Method: The Survivorship Passport (SurPass) consists of electronic documents, which summarise the clinical history of the childhood or adolescent cancer survivor. It was developed by paediatric oncologists of the PanCare and SIOPE networks and IT experts of Cineca, together with parents, patients, and survivors’ organisations within the European Union–funded European Network for Cancer research in Children and Adolescents. It consists of a template of a web-based, simply written document, translatable in all European languages, to be given to each CCS. The SurPass provides a summary of each survivor's clinical history, with detailed information about the original cancer and of treatments received, together with personalised follow-up and screening recommendations based on guidelines published by the International Guidelines Harmonization Group and PanCareSurFup. Results: The SurPass data schema contains a maximum of 168 variables and uses internationally approved nomenclature, except for radiotherapy fields, where a new classification was defined by radiotherapy experts. The survivor-specific screening recommendations are mainly based on treatment received and are automatically suggested, thanks to built-in algorithms. These may be adapted and further individualised by the treating physician in case of special disease and survivor circumstances. The SurPass was tested at the Istituto Giannina Gaslini, Italy, and received positive feedback. It is now being integrated at the institutional, regional and national level. Conclusions: The SurPass is potentially an essential tool for improved and more harmonised follow-up of CCS. It also has the potential to be a useful tool for empowering CCSs to be responsible for their own well-being and preventing adverse events whenever possible. With sufficient commitment on the European level, this solution should increase the capacity to respond more effectively to the needs of European CCS.
Ämnesord
- MEDICIN OCH HÄLSOVETENSKAP -- Klinisk medicin -- Cancer och onkologi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Clinical Medicine -- Cancer and Oncology (hsv//eng)
Nyckelord
- Cancer treatment summary
- Childhood cancer
- Late effects
- Long-term care
- Long-term follow-up
- Paediatric cancer
- Survivorship
Publikations- och innehållstyp
- art (ämneskategori)
- ref (ämneskategori)
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Haupt, Riccardo
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Essiaf, Samira
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Dellacasa, Chiar ...
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Ronckers, Cecile ...
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Caruso, Silvia
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Sugden, Elaine
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visa fler...
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Zadravec Zaletel ...
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Muraca, Monica
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Morsellino, Vera
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Kienesberger, An ...
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Blondeel, Anne
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Saraceno, Davide
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Ortali, Maurizio
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Kremer, Leontien ...
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Skinner, Roderic ...
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Roganovic, Jelen ...
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Bagnasco, France ...
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Levitt, Gill A.
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De Rosa, Marisa
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Schrappe, Martin
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Hjorth, Lars
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Ladenstein, Ruth
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Menoni, Stefania
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Bergeron, Christ ...
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den Hartogh, Jaa ...
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Karner, Sabine
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Fresneau, Brice
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Jones, Kathy Pri ...
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Vassal, Gilles
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Bode, Gerlind
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Frey, Eva
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Hennewig, Ulrike
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Iris, Maia
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Jakab, Zsuzsanna
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Kosmidis, Helen
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Kriviene, Izolda
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Marquez, Catalin ...
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Modan-Moses, Dal ...
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Panasiuk, Anna
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Vetsch, Janine
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