Physical Functioning, Mental Health, and Quality of Life in Different Congenital Heart Defects: Comparative Analysis in 3538 Patients From 15 Countries

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Physical Functioning, Mental Health, and Quality of Life in Different Congenital Heart Defects : Comparative Analysis in 3538 Patients From 15 Countries

Moons, Philip, 1968 (författare): Gothenburg University,Göteborgs universitet,Centrum för personcentrerad vård vid Göteborgs universitet (GPCC),Institutionen för vårdvetenskap och hälsa,University of Gothenburg Centre for person-centred care (GPCC),Institute of Health and Care Sciences

Luyckx, Koen (författare): KU Leuven - University of Leuven, School Psychology and Child and Adolescent Development,Leuven, (BEL); University of the Free State, UNIBS, Bloemfontein, (ZAF)

Thomet, Corina (författare): KU Leuven Department of Public Health and Primary Care, KU Leuven, Leuven, (BEL);University of Bern, Center for Congenital Heart Disease, Department of Cardiology, Inselspital, Bern University Hospital, Bern,(CHE)

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Budts, Werner (författare): Division of Congenital and Structural Cardiology, University Hospitals Leuven, Leuven, (BEL); KU Leuven - University of Leuven, KU Leuven Department of Cardiovascular Sciences, Leuven,( BEL)

Enomoto, Junko (författare): Toyo University, Department of Education, Tokyo (JPN)

Sluman, Maayke A (författare): Coronel Institute of Occupational Health, Amsterdam UMC, University of Amsterdam, Amsterdam (NLD); Department of Cardiology, Jeroen Bosch Hospital, Hertogenbosch, Amsterdam (NLD)

Lu, Chun-Wei (författare): National Taiwan University Children’s Hospital, Adult Congenital Heart Center, Taipei (TWN)

Jackson, Jamie L (författare): Center for Biobehavioral Health, Nationwide Children's Hospital, Columbus, OH (USA)

Khairy, Paul (författare): Université de Montréal, Adult Congenital Heart Center, Montreal Heart Institute, Montreal (CAN)

Cook, Stephen C (författare): Adult Congenital Heart Disease Center, Helen DeVos Children's Hospital, Grand Rapids, MI (USA)

Chidambarathanu, Shanthi (författare): Pediatric Cardiology, Frontier Lifeline Hospital (Dr. K. M. Cherian Heart Foundation), Chennai (IND)

Alday, Luis (författare): Division of Cardiology, Hospital de Niños, Córdoba(ARG)

Eriksen, Katrine (författare): Department of Cardiology, Oslo University Hospital - Rikshospitalet, Oslo (NOR)

Dellborg, Mikael, 1954 (författare): Gothenburg University,Göteborgs universitet,Centrum för personcentrerad vård vid Göteborgs universitet (GPCC),Institutionen för medicin,University of Gothenburg Centre for person-centred care (GPCC),Institute of Medicine

Berghammer, Malin, 1970- (författare): Gothenburg University,Göteborgs universitet,Högskolan Väst,Avdelningen för omvårdnad - avancerad nivå,LOV,Centrum för personcentrerad vård vid Göteborgs universitet (GPCC),University of Gothenburg Centre for person-centred care (GPCC)

Johansson, Bengt (författare): Umeå universitet,Avdelningen för medicin,Umeå University, Department of Public Health and Clinical Medicine, Umeå (SWE)

Mackie, Andrew S (författare): University of Alberta, Division of Cardiology, Stollery Children's Hospital, Edmonton (CAN)

Menahem, Samuel (författare): Monash University, Monash Heart, Monash Medical Centre, Melbourne (AUS)

Caruana, Maryanne (författare): Department of Cardiology, Mater Dei Hospital, Birkirkara Bypass (MLT)

Veldtman, Gruschen (författare): Adult Congenital Heart Disease Center, Cincinnati Children's Hospital Medical Center, Cincinnati, OH (USA)

Soufi, Alexandra (författare): Department of Congenital Heart Disease, Louis Pradel Hospital, Hospices civils de Lyon, Lyon (FRA)

Fernandes, Susan M (författare): Adult Congenital Heart Program at Stanford, Lucile Packard Children’s Hospital and Stanford Health Care (USA)

White, Kamila S (författare): Washington University, Adult Congenital Heart Disease Center, Seattle (USA); University of Missouri, Barnes Jewish Heart & Vascular Center, Saint Louis, Missouri (USA)

Callus, Edward (författare): Clinical Psychology Service, IRCCS Policlinico San Donato, Milan (ITA); Università degli Studi di Milano, Department of Biomedical Sciences for Health, Milan (ITA)

Kutty, Shelby (författare): University of Nebraska Medical Center, Adult Congenital Heart Disease Center, Children's Hospital and Medical Center, Omaha, NE (USA)

Ombelet, Fouke (författare): KU Leuven Department of Public Health and Primary Care, KU Leuven, Leuven (BEL)

Apers, Silke (författare): KU Leuven - University of Leuven, KU Leuven Department of Public Health and Primary Care, Leuven (BEL)

Kovacs, Adrienne H (författare): Peter Munk Cardiac Centre, University Health Network, University of Toronto, Toronto, Ontario (CAN); Knight Cardiovascular Institute, Oregon Health & Science University, Portland,Oregon (USA)

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Elsevier BV, 2021
2021
Engelska.
Ingår i: Canadian Journal of Cardiology. - : Elsevier BV. - 0828-282X .- 1916-7075. ; 37:2, s. 215-223

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Tidskriftsartikel (refereegranskat)

Abstract Ämnesord

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BACKGROUND: We compared physical functioning, mental health, and quality of life (QoL) of patients with different subtypes of congenital heart disease (CHD) in a large international sample and investigated the role of functional class in explaining the variance in outcomes across heart defects.METHODS: In the cross-sectional Assessment of Patterns of Patient-Reported Outcome in Adults with Congenital Heart Disease-International Study (APPROACH-IS), we enrolled 4028 adult patients with CHD from 15 countries. Diagnostic groups with at least 50 patients were included in these analyses, yielding a sample of 3538 patients (median age: 32 years; 52% women). Physical functioning, mental health, and QoL were measured with the SF-12 health status survey, Hospital Anxiety and Depression Scale (HADS), linear analog scale (LAS) and Satisfaction with Life Scale, respectively. Functional class was assessed using the patient-reported New York Heart Association (NYHA) class. Multivariable general linear mixed models were applied to assess the relationship between the type of CHD and patient-reported outcomes, adjusted for patient characteristics, and with country as random effect.RESULTS: Patients with coarctation of the aorta and those with isolated aortic valve disease reported the best physical functioning, mental health, and QoL. Patients with cyanotic heart disease or Eisenmenger syndrome had worst outcomes. The differences were statistically significant, above and beyond other patient characteristics. However, the explained variances were small (0.6% to 4.1%) and decreased further when functional status was added to the models (0.4% to 0.9%).CONCLUSIONS: Some types of CHD predict worse patient-reported outcomes. However, it appears that it is the functional status associated with the heart defect rather than the heart defect itself that shapes the outcomes.

Ämnesord

MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Omvårdnad (hsv//swe)
MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Nursing (hsv//eng)
MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Folkhälsovetenskap, global hälsa, socialmedicin och epidemiologi (hsv//swe)
MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Public Health, Global Health, Social Medicine and Epidemiology (hsv//eng)
MEDICIN OCH HÄLSOVETENSKAP -- Klinisk medicin -- Kardiologi (hsv//swe)
MEDICAL AND HEALTH SCIENCES -- Clinical Medicine -- Cardiac and Cardiovascular Systems (hsv//eng)
SAMHÄLLSVETENSKAP -- Psykologi (hsv//swe)
SOCIAL SCIENCES -- Psychology (hsv//eng)
MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap (hsv//swe)
MEDICAL AND HEALTH SCIENCES -- Health Sciences (hsv//eng)

Nyckelord

Mental health
quality of life
Vårdvetenskap
Nursing science

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Av lärosätet: Högskolan Väst; Umeå universitet; Göteborgs universitet

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