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  • Hägglund, MariaParticipatory eHealth and Health Data Research Group, Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden; Medtech Science & Innovation Centre, Uppsala University Hospital, Uppsala, Sweden (författare)

NORDeHEALTH – Learning from the Nordic Experiences of Patient Online Record Access

  • Artikel/kapitelEngelska2023

Förlag, utgivningsår, omfång ...

  • JMIR Publications,2023
  • printrdacarrier

Nummerbeteckningar

  • LIBRIS-ID:oai:DiVA.org:oru-113082
  • https://urn.kb.se/resolve?urn=urn:nbn:se:oru:diva-113082URI
  • https://doi.org/10.2196/preprints.49084DOI

Kompletterande språkuppgifter

  • Språk:engelska
  • Sammanfattning på:engelska

Ingår i deldatabas

Klassifikation

  • Ämneskategori:vet swepub-contenttype
  • Ämneskategori:art swepub-publicationtype

Anmärkningar

  • This is an author submission that is not peer-reviewed or edited. Preprints - unless they show as "accepted" - should not be relied on to guide clinical practice or health-related behavior and should not be reported in news media as established information. 
  • The Nordic countries are forerunners in online record access (ORA) which has now become widespread. The importance of accessible and structured health data has also been highlighted by policymakers internationally. To ensure the full realization of ORA’spotential in the short and long term, there is a pressing need to study ORA from a cross-disciplinary, technical, clinical, humanistic, and social sciences perspective that looks beyond strictly technical aspects. In this viewpoint paper, we explore the policy changes in the European Health Data Space (EHDS) proposal to advance ORA across the European Union, and introduce a Nordic-led research project that carries out the first of its kind, large-scale international investigation of patients’ ORA; NORDeHEALTH. We argue that the EHDS proposal will pave the way for patients to access and control third-party access to their electronic health records (EHRs). This will have implications within Europe and globally as it will further extend the boundaries for accessing and using EHRs for primary and secondary data use. Research such as that led by the NORDeHEALTH project is essential in guiding the design and implementation of solutions to meet the requirements of the EHDS proposal. Further international collaboration and research are needed to ensure that socio-technical and contextual factors are considered to ensure successful and secure implementation.

Ämnesord och genrebeteckningar

Biuppslag (personer, institutioner, konferenser, titlar ...)

  • Kharko, AnnaParticipatory eHealth and Health Data Research Group, Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden; Medtech Science & Innovation Centre, Uppsala University Hospital, Uppsala, Sweden; School of Psychology, Faculty of Health, University of Plymouth, Plymouth, Great Britain (författare)
  • Bärkås, AnnikaParticipatory eHealth and Health Data Research Group, Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden; Medtech Science & Innovation Centre, Uppsala University Hospital, Uppsala, Sweden (författare)
  • Blease, CharlotteParticipatory eHealth and Health Data Research Group, Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden; Medtech Science & Innovation Centre, Uppsala University Hospital, Uppsala, Sweden; Department of Medicine, Division of General Medicine, Beth Israel Deaconess Medical Center, Harvard Medical School, Boston, USA (författare)
  • Cajander, ÅsaDepartment of Information Technology, Uppsala University, Uppsala, Sweden (författare)
  • DesRoches, CatherineDepartment of Medicine, Division of General Medicine, Beth Israel Deaconess Medical Center, Harvard Medical School, Boston, USA (författare)
  • Johansen Fagerlund, AsbjørnNorwegian Centre for E-Health Research, University Hospital of North Norway, Tromsø, Norway (författare)
  • Hagström, JosefinParticipatory eHealth and Health Data Research Group, Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden; Medtech Science & Innovation Centre, Uppsala University Hospital, Uppsala, Sweden (författare)
  • Huvila, IstoDepartment of Archives Libraries & Museums, Uppsala University, Uppsala, Sweden (författare)
  • Hörhammer, IirisDepartment of Computer Science, Aalto University, Espoo, Finland (författare)
  • Kane, BridgetBusiness School, Karlstad University, Karlstad, Sweden (författare)
  • Klein, Gunnar O.,1953-Örebro universitet,Handelshögskolan vid Örebro Universitet,Centre for Empirical Research on Information systems(Swepub:oru)grkn (författare)
  • Kristiansen, EliNorwegian Centre for E-Health Research, University Hospital of North Norway, Tromsø, Norway (författare)
  • Moll, Jonas,1982-Örebro universitet,Handelshögskolan vid Örebro Universitet,Centre for Empirical Research on Information systems(Swepub:oru)jsml (författare)
  • Muli, IreneParticipatory eHealth and Health Data Research Group, Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden; Medtech Science & Innovation Centre, Uppsala University Hospital, Uppsala, Sweden (författare)
  • Rexhepi, HanifeSchool of Informatics, University of Skövde, Skövde, Sweden (författare)
  • Riggare, SaraParticipatory eHealth and Health Data Research Group, Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden; Medtech Science & Innovation Centre, Uppsala University Hospital, Uppsala, Sweden (författare)
  • Ross, PeeterE-Medicine Centre Department of Health Technologies, Tallinn University of Technology, Tallinn, EstoniaE (författare)
  • Scandurra, Isabella,1973-Örebro universitet,Handelshögskolan vid Örebro Universitet,Centre for Empirical Research on Information systems(Swepub:oru)iasa (författare)
  • Simola, SaijaDepartment of Computer Science, Aalto University, Espoo, Finland (författare)
  • Soone, HedvigE-Medicine Centre Department of Health Technologies, Tallinn University of Technology, Tallinn, EstoniaE (författare)
  • Wang, BoNorwegian Centre for E-Health Research, University Hospital of North Norway, Tromsø, Norway (författare)
  • Ghorbanian Zolbin, MaedehDepartment of Computer Science, Aalto University, Espoo, Finland (författare)
  • Åhlfeldt, Rose-MharieSchool of Informatics, University of Skövde, Skövde, Sweden (författare)
  • Kujala, SariDepartment of Computer Science, Aalto University, Espoo, Finland (författare)
  • Alise Johansen, MonikaNorwegian Centre for E-Health Research, University Hospital of North Norway, Tromsø, Norway; Department of Clinical Medicine Telemedicine and E-health Research Group, Arctic University of Norway, Tromsø, Norway (författare)
  • Participatory eHealth and Health Data Research Group, Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden; Medtech Science & Innovation Centre, Uppsala University Hospital, Uppsala, SwedenParticipatory eHealth and Health Data Research Group, Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden; Medtech Science & Innovation Centre, Uppsala University Hospital, Uppsala, Sweden; School of Psychology, Faculty of Health, University of Plymouth, Plymouth, Great Britain (creator_code:org_t)

Sammanhörande titlar

  • Ingår i:Journal of Medical Internet Research: JMIR Publications1438-8871

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