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LIBRIS Formathandbok  (Information om MARC21)
FältnamnIndikatorerMetadata
00004081naa a2200529 4500
001oai:gup.ub.gu.se/191612
003SwePub
008240528s2013 | |||||||||||000 ||eng|
0247 a https://gup.ub.gu.se/publication/1916122 URI
0247 a https://doi.org/10.1093/eurpub/cks0432 DOI
040 a (SwePub)gu
041 a eng
042 9 SwePub
072 7a ref2 swepub-contenttype
072 7a art2 swepub-publicationtype
1001 a Iorio Di, C T4 aut
2451 0a Cross-border flow of health information: is 'privacy by design' enough? Privacy performance assessment in EUBIROD.
264 c 2012-05-04
264 1b Oxford University Press (OUP),c 2013
520 a Background: The EUBIROD project aims to perform a cross-border flow of diabetes information across 19 European countries using the BIRO information system, which embeds privacy principles and data protection mechanisms in its architecture (privacy by design). A specific task of EUBIROD was to investigate the variability in the implementation of the EU Data Protection Directive (DPD) across participating centres. Methods: Compliance with privacy requirements was assessed by means of a specific questionnaire administered to all participating diabetes registers. Items included relevant issues e.g. patient consent, accountability of data custodian, communication (openness) and complaint procedures (challenging compliance), authority to disclose, accuracy, access and use of personal information, and anonymization. The identification of an ad hoc scoring system and statistical software allowed an overall quali-quantitative analysis and independent evaluation of questionnaire responses, automated through a dedicated IT platform (‘privacy performance assessment’). Results: A total of 18 diabetes registers from different countries completed the survey. Over 50% of the registers recorded a maximum score for accountability, openness, anonymization and challenging compliance. Low average values were found for disclosure and disposition, access, consent, use of personal information and accuracy. A high heterogeneity was found for anonymization, consent, accuracy and access. Conclusions: The novel method of privacy performance assessment realized in EUBIROD may improve the respect of privacy in each data source, reduce overall variability in the implementation of privacy principles and favour a sound and legitimate cross-border exchange of high quality data across Europe.
650 7a MEDICIN OCH HÄLSOVETENSKAPx Klinisk medicinx Allmänmedicin0 (SwePub)302242 hsv//swe
650 7a MEDICAL AND HEALTH SCIENCESx Clinical Medicinex General Practice0 (SwePub)302242 hsv//eng
7001 a Carinci, Fabrizio4 aut
7001 a Brillante, Massimo4 aut
7001 a Azzopardi, Joseph4 aut
7001 a Beck, Peter4 aut
7001 a Bratina, Natasa4 aut
7001 a Cunningham, Scott G4 aut
7001 a de Beaufort, Carine4 aut
7001 a Debacker, Noemi4 aut
7001 a Jarosz-Chobot, P4 aut
7001 a Jecht, Michael4 aut
7001 a Lindblad, Ulf,d 1950u Gothenburg University,Göteborgs universitet,Institutionen för medicin, avdelningen för samhällsmedicin och folkhälsa,Institute of Medicine, School of Public Health and Community Medicine4 aut0 (Swepub:gu)xliulf
7001 a Moulton, Tony4 aut
7001 a Metelko, Z4 aut
7001 a Nagy, Attila4 aut
7001 a Olympios, George4 aut
7001 a Pruna, Simion4 aut
7001 a Röder, Michael4 aut
7001 a Skeie, Svein4 aut
7001 a Storms, Fred4 aut
7001 a Benedetti Massi, M4 aut
7102 a Göteborgs universitetb Institutionen för medicin, avdelningen för samhällsmedicin och folkhälsa4 org
7730 t European Journal of Public Healthd : Oxford University Press (OUP)g 23:2, s. 247-53q 23:2<247-53x 1101-1262x 1464-360X
8564 u https://academic.oup.com/eurpub/article-pdf/23/2/247/1981638/cks043.pdf
8564 8u https://gup.ub.gu.se/publication/191612
8564 8u https://doi.org/10.1093/eurpub/cks043

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