WFRF:(Gupta Ramneek)
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The governance structure for data access in the DIRECT consortium : An innovative medicines initiative (IMI) project
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- Teare, Harriet J.A. (author)
- University of Oxford,University of Melbourne
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- De Masi, Federico (author)
- Technical University of Denmark
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- Banasik, Karina (author)
- University of Copenhagen
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- (creator_code:org_t)
- 2018-09-04
- 2018
- English.
- In: Life Sciences, Society and Policy. - : Springer Science and Business Media LLC. - 2195-7819. ; 14:1
- Journal article (peer-reviewed)
Abstract
Subject headings
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- Biomedical research projects involving multiple partners from public and private sectors require coherent internal governance mechanisms to engender good working relationships. The DIRECT project is an example of such a venture, funded by the Innovative Medicines Initiative Joint Undertaking (IMI JU). This paper describes the data access policy that was developed within DIRECT to support data access and sharing, via the establishment of a 3-tiered Data Access Committee. The process was intended to allow quick access to data, whilst enabling strong oversight of how data were being accessed and by whom, and any subsequent analyses, to contribute to the overall objectives of the consortium.
Subject headings
- SAMHÄLLSVETENSKAP -- Medie- och kommunikationsvetenskap -- Biblioteks- och informationsvetenskap (hsv//swe)
- SOCIAL SCIENCES -- Media and Communications -- Information Studies (hsv//eng)
Keyword
- Data access
- Data access committee
- Governance
- IMI project
Publication and Content Type
- art (subject category)
- ref (subject category)
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- Herrgard, Sanna
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- Forgie, Ian
- Chmura, Piotr J.
- Rydzka, Emil K.
- Gupta, Ramneek
- Brunak, Soren
- Pearson, Ewan
- Kaye, Jane
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- SOCIAL SCIENCES
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- Lund University
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