Sökning: WFRF:(Wickström Anette 1959 ) >
Material and relati...
Material and relational challenges of home-based renal care : a parental perspective on child chronic kidney disease
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- Bruno de Sousa, Andréa, 1967- (författare)
- Linköpings universitet,Avdelningen för filosofi och tillämpad etik,Filosofiska fakulteten
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- Wickström, Anette, 1959- (författare)
- Linköpings universitet,Tema Barn,Filosofiska fakulteten
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(creator_code:org_t)
- Bristol, United Kingdom : Policy Press, 2022
- 2022
- Engelska.
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Ingår i: International Journal of Care and Caring. - Bristol, United Kingdom : Policy Press. - 2397-8821 .- 2397-883X. ; 6:4, s. 547-563
- Relaterad länk:
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https://liu.diva-por... (primary) (Raw object)
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https://urn.kb.se/re...
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https://doi.org/10.1...
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Abstract
Ämnesord
Stäng
- Caring for a child with chronic kidney disease (CKD) requires parents to reorganise mundane routines and develop advanced technical skills. Parents’ strategies used to meet these challenges need greater understanding. This article takes inspiration from phenomenology of practice and material culture studies to analyse interviews with parents in Portugal. It shows that, although home-based care leads to worsened social inequities, parents use the available financial and human resources to manage the situation and create normality. While they experience becoming confined and close relationships are strained, the mundane practices and social relations of care bring hope and meaning to the family.
Ämnesord
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Omvårdnad (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Nursing (hsv//eng)
Nyckelord
- paediatric chronic kidney disease
- home-based renal care
- phenomenology of practice
- materialities of care
Publikations- och innehållstyp
- ref (ämneskategori)
- art (ämneskategori)
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