Overview of the current status of familial hypercholesterolaemia care in over 60 countries - The EAS Familial Hypercholesterolaemia Studies Collaboration (FHSC)

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Fältnamn	Indikatorer	Metadata
000		10705naa a2201321 4500
001		oai:DiVA.org:liu-152076
003		SwePub
008		181024s2018 \| \|\|\|\|\|\|\|\|\|\|\|000 \|\|eng\|
024	7	a https://urn.kb.se/resolve?urn=urn:nbn:se:liu:diva-1520762 URI
024	7	a https://doi.org/10.1016/j.atherosclerosis.2018.08.0512 DOI
040		a (SwePub)liu
041		a engb eng
042		9 SwePub
072	7	a ref2 swepub-contenttype
072	7	a art2 swepub-publicationtype
100	1	a Vallejo-Vaz, Antonio J.u Imperial Coll London, England4 aut
245	1 0	a Overview of the current status of familial hypercholesterolaemia care in over 60 countries - The EAS Familial Hypercholesterolaemia Studies Collaboration (FHSC)
264	1	b ELSEVIER IRELAND LTD,c 2018
338		a print2 rdacarrier
500		a Funding Agencies\|Pfizer Independent Grant for Learning Change 2014 [16157823]; Amgen; MSD; Sanofi-Aventis
520		a Background and aims: Management of familial hypercholesterolaemia (FH) may vary across different settings due to factors related to population characteristics, practice, resources and/or policies. We conducted a survey among the worldwide network of EAS FHSC Lead Investigators to provide an overview of FH status in different countries. Methods: Lead Investigators from countries formally involved in the EAS FHSC by mid-May 2018 were invited to provide a brief report on FH status in their countries, including available information, programmes, initiatives, and management. Results: 63 countries provided reports. Data on FH prevalence are lacking in most countries. Where available, data tend to align with recent estimates, suggesting a higher frequency than that traditionally considered. Low rates of FH detection are reported across all regions. National registries and education programmes to improve FH awareness/knowledge are a recognised priority, but funding is often lacking. In most countries, diagnosis primarily relies on the Dutch Lipid Clinics Network criteria. Although available in many countries, genetic testing is not widely implemented (frequent cost issues). There are only a few national official government programmes for FH. Under-treatment is an issue. FH therapy is not universally reimbursed. PCSK9-inhibitors are available in similar to 2/3 countries. Lipoprotein-apheresis is offered in similar to 60% countries, although access is limited. Conclusions: FH is a recognised public health concern. Management varies widely across countries, with overall suboptimal identification and under-treatment. Efforts and initiatives to improve FH knowledge and management are underway, including development of national registries, but support, particularly from health authorities, and better funding are greatly needed.
650	7	a MEDICIN OCH HÄLSOVETENSKAPx Hälsovetenskapx Folkhälsovetenskap, global hälsa, socialmedicin och epidemiologi0 (SwePub)303022 hsv//swe
650	7	a MEDICAL AND HEALTH SCIENCESx Health Sciencesx Public Health, Global Health, Social Medicine and Epidemiology0 (SwePub)303022 hsv//eng
653		a Familial hypercholesterolaemia; Primary dyslipidaemia; FHSC
700	1	a De Marco, Martinau Imperial Coll London, England4 aut
700	1	a Stevens, Christophe A. T.u Imperial Coll London, England4 aut
700	1	a Akram, Asifu Living Goods, Kenya4 aut
700	1	a Freiberger, Tomasu Ctr Cardiovasc Surg and Transplantat, Czech Republic; Masaryk Univ, Czech Republic4 aut
700	1	a Hovingh, G. Keesu Acad Med Ctr, Netherlands4 aut
700	1	a Kastelein, John J. P.u Acad Med Ctr, Netherlands4 aut
700	1	a Mata, Pedrou Fdn Hipercolesterolemia Familiar, Spain4 aut
700	1	a Raal, Frederick J.u Univ Witwatersrand, South Africa4 aut
700	1	a Santos, Raul D.u Univ Sao Paulo, Brazil; Hosp Israelita Albert Einstein, Brazil4 aut
700	1	a Soran, Handreanu Manchester Univ Hosp NHS Fdn Trust, England4 aut
700	1	a Watts, Gerald F.u Univ Western Australia, Australia; Royal Perth Hosp, Australia; FH Australasia Network FHAN, Australia4 aut
700	1	a Abifadel, Marianneu St Joseph Univ, Lebanon4 aut
700	1	a Aguilar-Salinas, Carlos A.u Inst Nacl Ciencias Med and Nutr Salvador Zubiran, Mexico4 aut
700	1	a Al-Khnifsawi, Mutazu Al Qadisiyah Univ, Iraq4 aut
700	1	a AlKindi, Fahad A.u Hamad Med Corp, Qatar4 aut
700	1	a Alnouri, Fahadu Prince Sultan Cardiac Ctr Riyadh, Saudi Arabia4 aut
700	1	a Alonso, Rodrigou Clin Las Condes, Chile4 aut
700	1	a Al-Rasadi, Khalidu Sultan Qaboos Univ Hosp, Oman4 aut
700	1	a Al-Sarraf, Ahmadu Kuwait Canc Control Ctr, Kuwait4 aut
700	1	a Ashavaid, Tester F.u PD Hinduja Natl Hosp and Med Res Ctr, India4 aut
700	1	a Binder, Christoph J.u Med Univ Vienna, Austria4 aut
700	1	a Bogsrud, Martin P.u Oslo Univ Hosp, Norway; Oslo Univ Hosp, Norway4 aut
700	1	a Bourbon, Mafaldau Inst Nacl Saude Doutor Ricardo Jorge, Portugal; Univ Lisbon, Portugal4 aut
700	1	a Bruckert, Ericu Hop La Pitie Salpetriere, France; Hop La Pitie Salpetriere, France4 aut
700	1	a Chlebus, Krzysztofu Med Univ Gdansk, Poland; Univ Clin Ctr, Poland4 aut
700	1	a Corral, Pablou FASTA Univ, Argentina4 aut
700	1	a Descamps, Olivieru Ctr Hosp Jolimont, Belgium4 aut
700	1	a Durst, Ronenu Hadassah Hebrew Univ Med Ctr, Israel; Hadassah Hebrew Univ Med Ctr, Israel4 aut
700	1	a Ezhov, Maratu Minist Hlth Russian Federat, Russia4 aut
700	1	a Fras, Zlatkou Univ Med Ctr Ljubljana, Slovenia; Univ Ljubljana, Slovenia4 aut
700	1	a Genest, Jacquesu McGill Univ, Canada4 aut
700	1	a Groselj, Urhu Univ Med Ctr Ljubljana, Slovenia4 aut
700	1	a Harada-Shiba, Marikou Natl Cerebral and Cardiovasc Ctr, Japan4 aut
700	1	a Kayikcioglu, Meralu Ege Univ, Turkey4 aut
700	1	a Lalic, Katarinau Univ Belgrade, Serbia; Clin Ctr Serbia, Serbia4 aut
700	1	a Lam, Carolyn S. P.u Natl Heart Ctr, Singapore; Duke NUS Med Sch, Singapore4 aut
700	1	a Latkovskis, Gustavsu Univ Latvia, Latvia4 aut
700	1	a Laufs, Ulrichu Univ Klinikum Leipzig, Germany4 aut
700	1	a Liberopoulos, Evangelosu Univ Ioannina, Greece4 aut
700	1	a Lin, Jieu Capital Med Univ, Peoples R China4 aut
700	1	a Maher, Vincentu Adv Lipid Management and Res ALMAR Ctr, Ireland4 aut
700	1	a Majano, Nelsonu Hosp Mil Caracas, Venezuela4 aut
700	1	a Marais, A. Davidu Univ Cape Town, South Africa; Natl Hlth Lab Serv, South Africa4 aut
700	1	a Maerz, Winfriedu Heidelberg Univ, Germany; Med Univ Graz, Austria; Synlab Holding Deutschland GmbH, Germany; Synlab Holding Deutschland GmbH, Germany; D A CH Gesell Pravent Herz Kreislauf Erkrankungen, Germany4 aut
700	1	a Mirrakhimov, Erkinu Kyrgyz State Med Acad, Kyrgyzstan4 aut
700	1	a Miserez, Andre R.u Swiss FH Ctr, Switzerland; Univ Basel, Switzerland4 aut
700	1	a Mitchenko, Olenau Natl Acad Med Sci Ukraine, Ukraine4 aut
700	1	a Nawawi, Hapizah M.u Inst Pathol Lab and Forens Med I PPerForM, Malaysia; Univ Teknol Malaysia, Malaysia4 aut
700	1	a Nordestgaard, Borge G.u Copenhagen Univ Hosp, Denmark; Copenhagen Univ Hosp, Denmark; Univ Copenhagen, Denmark4 aut
700	1	a Paragh, Gyorgyu Univ Debrecen, Hungary4 aut
700	1	a Petrulioniene, Zanetau Vilnius Univ, Lithuania; Vilnius Univ Hosp Santaros Klin, Lithuania4 aut
700	1	a Pojskic, Belmau Cantonal Hosp Zenica, Bosnia and Herceg4 aut
700	1	a Postadzhiyan, Armanu Med Univ Sofia, Bulgaria4 aut
700	1	a Reda, Ashrafu Menoufia Univ, Egypt; Egyptian Assoc Vernacular Biol and Atherosclerosis, Egypt4 aut
700	1	a Reiner, Zeljkou Univ Zagreb, Croatia4 aut
700	1	a Sadoh, Wilson E.u Univ Benin, Nigeria4 aut
700	1	a Sahebkar, Amirhosseinu Mashhad Univ Med Sci, Iran; Mashhad Univ Med Sci, Iran; Mashhad Univ Med Sci, Iran4 aut
700	1	a Shehab, Abdullahu United Arab Emirates Univ, U Arab Emirates4 aut
700	1	a Shek, Aleksander B.u Minist Hlth Republ Uzbekistan, Uzbekistan4 aut
700	1	a Stoll, Mariou Honorary Commiss Cardiovasc Hlth CHSCV, Uruguay4 aut
700	1	a Su, Ta-Chenu Natl Taiwan Univ Hosp, Taiwan4 aut
700	1	a Subramaniam, Tavintharanu Admiralty Med Ctr, Singapore; Khoo Teck Puat Hosp, Singapore; Khoo Teck Puat Hosp, Singapore4 aut
700	1	a Susekov, Andrey V.u Acad Postgrad Med Educ, Russia; Acad Med Sci, Russia4 aut
700	1	a Symeonides, Phivosu Hippocrateon Private Hosp, Cyprus4 aut
700	1	a Tilney, Myrau Univ Malta, Malta; Mater Dei Hosp, Malta4 aut
700	1	a Tomlinson, Brianu Chinese Univ Hong Kong, Peoples R China4 aut
700	1	a Thanh-Huong, Truongu Hanoi Med Univ, Vietnam; Bach Mai Hosp, Vietnam4 aut
700	1	a Tselepis, Alexandros D.u Univ Ioannina, Greece4 aut
700	1	a Tybjaerg-Hansenb, Anneu Copenhagen Univ Hosp, Denmark; Copenhagen Univ Hosp, Denmark; Univ Copenhagen, Denmark; Copenhagen Univ Hosp, Denmark4 aut
700	1	a Vazquez-Cardenas, Alejandrau Univ Autonoma Guadalajara, Mexico4 aut
700	1	a Viigimaa, Margusu Tallinn Univ Technol, Estonia4 aut
700	1	a Vohnout, Branislavu Slovak Med Univ, Slovakia4 aut
700	1	a Widen, Elisabethu Univ Helsinki, Finland4 aut
700	1	a Yamashita, Shizuyau Rinku Gen Med Ctr, Japan; Osaka Univ, Japan4 aut
700	1	a Banach, Macieju Med Univ Lodz, Poland4 aut
700	1	a Gaita, Danu Univ Med and Farm Victor Babes Timisoara, Romania4 aut
700	1	a Jiang, Lixinu Natl Ctr Cardiovasc Dis, Peoples R China4 aut
700	1	a Nilsson, Lennartu Linköpings universitet,Avdelningen för kardiovaskulär medicin,Medicinska fakulteten,Region Östergötland, Kardiologiska kliniken US4 aut0 (Swepub:liu)lenni29
700	1	a Santos, Lourdes E.u Univ Philippines, Philippines4 aut
700	1	a Schunkert, Heribertu Tech Univ Munich, Germany4 aut
700	1	a Tokgozoglu, Laleu Hacettepe Univ, Turkey4 aut
700	1	a Car, Josipu Imperial Coll London, England; Nanyang Technol Univ, Singapore4 aut
700	1	a Catapano, Alberico L.u Univ Milan, Italy; IRCCS MultiMed, Italy4 aut
700	1	a Ray, Kausik K.u Imperial Coll London, England4 aut
710	2	a Imperial Coll London, Englandb Living Goods, Kenya4 org
773	0	t Atherosclerosisd : ELSEVIER IRELAND LTDg 277, s. 234-255q 277<234-255x 0021-9150x 1879-1484
856	4	u http://www.atherosclerosis-journal.com/article/S0021915018313595/pdf
856	4 8	u https://urn.kb.se/resolve?urn=urn:nbn:se:liu:diva-152076
856	4 8	u https://doi.org/10.1016/j.atherosclerosis.2018.08.051

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Av författaren/redakt...: Vallejo-Vaz, Ant ...; De Marco, Martin ...; Stevens, Christo ...; Akram, Asif; Freiberger, Toma ...; Hovingh, G. Kees; visa fler...; Kastelein, John ...; Mata, Pedro; Raal, Frederick ...; Santos, Raul D.; Soran, Handrean; Watts, Gerald F.; Abifadel, Marian ...; Aguilar-Salinas, ...; Al-Khnifsawi, Mu ...; AlKindi, Fahad A ...; Alnouri, Fahad; Alonso, Rodrigo; Al-Rasadi, Khali ...; Al-Sarraf, Ahmad; Ashavaid, Tester ...; Binder, Christop ...; Bogsrud, Martin ...; Bourbon, Mafalda; Bruckert, Eric; Chlebus, Krzyszt ...; Corral, Pablo; Descamps, Olivie ...; Durst, Ronen; Ezhov, Marat; Fras, Zlatko; Genest, Jacques; Groselj, Urh; Harada-Shiba, Ma ...; Kayikcioglu, Mer ...; Lalic, Katarina; Lam, Carolyn S. ...; Latkovskis, Gust ...; Laufs, Ulrich; Liberopoulos, Ev ...; Lin, Jie; Maher, Vincent; Majano, Nelson; Marais, A. David; Maerz, Winfried; Mirrakhimov, Erk ...; Miserez, Andre R ...; Mitchenko, Olena; Nawawi, Hapizah ...; Nordestgaard, Bo ...; Paragh, Gyorgy; Petrulioniene, Z ...; Pojskic, Belma; Postadzhiyan, Ar ...; Reda, Ashraf; Reiner, Zeljko; Sadoh, Wilson E.; Sahebkar, Amirho ...; Shehab, Abdullah; Shek, Aleksander ...; Stoll, Mario; Su, Ta-Chen; Subramaniam, Tav ...; Susekov, Andrey ...; Symeonides, Phiv ...; Tilney, Myra; Tomlinson, Brian; Thanh-Huong, Tru ...; Tselepis, Alexan ...; Tybjaerg-Hansenb ...; Vazquez-Cardenas ...; Viigimaa, Margus; Vohnout, Branisl ...; Widen, Elisabeth; Yamashita, Shizu ...; Banach, Maciej; Gaita, Dan; Jiang, Lixin; Nilsson, Lennart; Santos, Lourdes ...; Schunkert, Herib ...; Tokgozoglu, Lale; Car, Josip; Catapano, Alberi ...; Ray, Kausik K.; visa färre...

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