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Family caregivers’ experiences of discussing their needs with a nurse during specialised home care utilizing the carer support needs assessment tool intervention : A qualitative study

Norinder, Maria (författare)
Marie Cederschiöld högskola,Palliativt forskningscentrum, PFC,Capio Palliative Care, Dalen Hospital, 121 87, Stockholm, Sweden,Marie Cederschiöld University, Sweden;Dalen Hospital, Sweden
Axelsson, Lena (författare)
Sophiahemmet Högskola,Sophiahemmet University, Sweden,Department of Nursing Science, Sophiahemmet University, Stockholm
Årestedt, Kristofer, 1968- (författare)
Linnéuniversitetet,Institutionen för hälso- och vårdvetenskap (HV),Region Kalmar County, Sweden,Faculty of Health and Life Sciences, Linnaeus University, Kalmar; Department of Research, Region Kalmar County, Kalmar
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Grande, Gunn (författare)
Division of Nursing, Midwifery & Social Care, Faculty of Biology, Medicine and Health, University of Manchester, Manchester, United Kingdom,Univ Manchester, UK
Ewing, Gail (författare)
Centre for Family Research, University of Cambridge, Cambridge, United Kingdom,Univ Cambridge, UK
Alvariza, Anette (författare)
Marie Cederschiöld högskola,Palliativt forskningscentrum, PFC,Department of Research and Development / Palliative Care, Stockholms Sjukhem,Marie Cederschiöld University, Sweden;Stockholms Sjukhem, Sweden
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 (creator_code:org_t)
Elsevier, 2023
2023
Engelska.
Ingår i: European Journal of Oncology Nursing. - : Elsevier. - 1462-3889 .- 1532-2122. ; 66
  • Tidskriftsartikel (refereegranskat)
Abstract Ämnesord
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  • Purpose The Carer Support Needs Assessment Tool Intervention (CSNAT-I) was designed to help family caregivers identify, reflect upon, and express their support needs in a conversation with a health care professional and gain tailored support. The CSNAT-I has shown positive effects for both nurses and family caregivers but for more comprehensive understanding this study aims to examine family caregivers' experiences of discussing their needs with a nurse during specialised home care, utilizing the CSNAT-I.Methods The study used an inductive qualitative descriptive design based on framework analysis. Data was collected using individual semi-structured telephone interviews with 10 family caregivers, with a median age of 66, from four specialised home care services.Results Family caregivers appreciated having scheduled meetings with nurses utilizing the CSNAT-I which gave them an opportunity to focus on what was important to them. Family caregivers experienced that the conversations were co-created with a flexible dialogue. The conversations provided new perspectives and insights which helped in finding possible solutions. Family caregivers felt empowered by the co-created conversation and took on a more active role in involving the rest of their family to find support to themselves and the patients.Conclusion The CSNAT-I can facilitate communication between family caregivers and nurses leading to adequate supportive inputs. The intervention gives family caregivers an increased opportunity to be involved in their own support, which may enhance their sense of security. According to family caregivers’ experiences, CSNAT-I may be an adequate way to support family caregivers to reflect and discuss their needs.

Ämnesord

MEDICIN OCH HÄLSOVETENSKAP  -- Hälsovetenskap -- Omvårdnad (hsv//swe)
MEDICAL AND HEALTH SCIENCES  -- Health Sciences -- Nursing (hsv//eng)

Nyckelord

Caregivers
Home care
Intervention
Palliative
Qualitative
Support
Människan i välfärdssamhället, Palliativ vård
The Individual in the Welfare Society, Palliative Care
Omvårdnad

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