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LIBRIS Formathandbok  (Information om MARC21)
FältnamnIndikatorerMetadata
00005303naa a2200505 4500
001oai:DiVA.org:uu-303406
003SwePub
008160919s2016 | |||||||||||000 ||eng|
0247 a https://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-3034062 URI
0247 a https://doi.org/10.1136/bmjopen-2015-0105552 DOI
040 a (SwePub)uu
041 a engb eng
042 9 SwePub
072 7a ref2 swepub-contenttype
072 7a art2 swepub-publicationtype
1001 a Stack, Rebecca J.u Univ Birmingham, Inst Inflammat & Ageing, Coll Med & Dent Sci, Birmingham, W Midlands, England.;Nottingham Trent Univ, Div Psychol, Nottingham, England.4 aut
2451 0a Perceptions of risk and predictive testing held by the first-degree relatives of patients with rheumatoid arthritis in England, Austria and Germany :b a qualitative study
264 c 2016-06-29
264 1b BMJ,c 2016
338 a electronic2 rdacarrier
520 a Objectives The family members of patients with rheumatoid arthritis (RA) are at increased risk of developing RA and are potential candidates for predictive testing. This study explored the perceptions of first-degree relatives of people with RA about being at risk of RA and engaging in predictive testing. Methods 34 first-degree relatives (siblings and offspring) of patients with RA from the UK, Germany and Austria participated in semistructured interviews about their perceptions of RA risk and the prospect of predictive testing. Interviews were audio-recorded, transcribed verbatim and analysed using thematic analysis. Results First-degree relatives were aware of their susceptibility to RA, but were unsure of the extent of their risk. When considering their future risk, some relatives were concerned about the potential impact that RA would have on their lives. Relatives were concerned that knowing their actual risk would increase their anxiety and would affect decisions about their future. Also, relatives were concerned about the levels of uncertainty associated with predictive testing. Those in favour of knowing their future risk felt that they would need additional support to understand the risk information and cope with the emotional impact of this information. Conclusions Identifying individuals at risk of RA may allow targeted interventions to reduce the risk and consequence of future disease; however, relatives have concerns about predictive testing and risk information. The development of strategies to quantify and communicate risk needs to take these views into account and incorporate approaches to mitigate concerns and minimise the psychological impact of risk information.
650 7a MEDICIN OCH HÄLSOVETENSKAPx Hälsovetenskapx Medicinsk etik0 (SwePub)303102 hsv//swe
650 7a MEDICAL AND HEALTH SCIENCESx Health Sciencesx Medical Ethics0 (SwePub)303102 hsv//eng
653 a Risk
653 a Rheumatoid Arthritis
653 a QUALITATIVE RESEARCH
7001 a Stoffer, Michaelau Med Univ Vienna, Div Rheumatol, Dept Internal Med 3, Vienna, Austria.;Univ Appl Sci Hlth Profess, Upper Austria, Austria.4 aut
7001 a Englbrecht, Mathiasu Univ Erlangen Nurnberg, Dept Internal Med 3, Erlangen, Germany.4 aut
7001 a Mosor, Erikau Med Univ Vienna, Div Rheumatol, Dept Internal Med 3, Vienna, Austria.4 aut
7001 a Falahee, Marieu Univ Birmingham, Inst Inflammat & Ageing, Coll Med & Dent Sci, Birmingham, W Midlands, England.4 aut
7001 a Simons, Gwendau Univ Birmingham, Inst Inflammat & Ageing, Coll Med & Dent Sci, Birmingham, W Midlands, England.4 aut
7001 a Smolen, Josefu Med Univ Vienna, Div Rheumatol, Dept Internal Med 3, Vienna, Austria.4 aut
7001 a Schett, Georgu Univ Erlangen Nurnberg, Dept Internal Med 3, Erlangen, Germany.4 aut
7001 a Buckley, Chris D.u Univ Birmingham, Inst Inflammat & Ageing, Coll Med & Dent Sci, Birmingham, W Midlands, England.;Nottingham Trent Univ, Div Psychol, Nottingham, England.4 aut
7001 a Kumar, Kantau Univ Manchester, Sch Nursing, Fac Med & Human Sci, Manchester, Lancs, England.4 aut
7001 a Hansson, Matsu Uppsala universitet,Centrum för forsknings- och bioetik4 aut0 (Swepub:uu)matshans
7001 a Hueber, Axelu Univ Erlangen Nurnberg, Dept Internal Med 3, Erlangen, Germany.4 aut
7001 a Stamm, Tanjau Med Univ Vienna, Div Rheumatol, Dept Internal Med 3, Vienna, Austria.4 aut
7001 a Raza, Karimu Univ Birmingham, Inst Inflammat & Ageing, Coll Med & Dent Sci, Birmingham, W Midlands, England.;Sandwell & West Birmingham Hosp NHS Trust, Dept Rheumatol, Birmingham, W Midlands, England.4 aut
7102 a Univ Birmingham, Inst Inflammat & Ageing, Coll Med & Dent Sci, Birmingham, W Midlands, England.;Nottingham Trent Univ, Div Psychol, Nottingham, England.b Med Univ Vienna, Div Rheumatol, Dept Internal Med 3, Vienna, Austria.;Univ Appl Sci Hlth Profess, Upper Austria, Austria.4 org
7730 t BMJ Opend : BMJg 6:6q 6:6x 2044-6055
8564 u https://uu.diva-portal.org/smash/get/diva2:971738/FULLTEXT01.pdfx primaryx Raw objecty fulltext:print
8564 u https://bmjopen.bmj.com/content/bmjopen/6/6/e010555.full.pdf
8564 8u https://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-303406
8564 8u https://doi.org/10.1136/bmjopen-2015-010555

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