Barriers and facilitators to the access to and use of formal dementia care: findings of a focus group study with people with dementia, informal carers and health and social care professionals in eight European countries

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Fältnamn	Indikatorer	Metadata
000		07195naa a2200817 4500
001		oai:DiVA.org:hig-26942
003		SwePub
008		180612s2018 \| \|\|\|\|\|\|\|\|\|\|\|000 \|\|eng\|
009		oai:prod.swepub.kib.ki.se:138435261
024	7	a https://urn.kb.se/resolve?urn=urn:nbn:se:hig:diva-269422 URI
024	7	a https://doi.org/10.1186/s12877-018-0816-12 DOI
024	7	a http://kipublications.ki.se/Default.aspx?queryparsed=id:1384352612 URI
040		a (SwePub)higd (SwePub)ki
041		a engb eng
042		9 SwePub
072	7	a ref2 swepub-contenttype
072	7	a art2 swepub-publicationtype
100	1	a Stephan, Astridu Institute for Health and Nursing Science, Martin Luther University Halle-Wittenberg, Halle (Saale), Germany4 aut
245	1 0	a Barriers and facilitators to the access to and use of formal dementia care :b findings of a focus group study with people with dementia, informal carers and health and social care professionals in eight European countries
264		c 2018-06-04
264	1	b BioMed Central,c 2018
338		a print2 rdacarrier
520		a BACKGROUND: People with dementia and informal carers often access formal care late in the process of dementia. The barriers and facilitators to service use from the perspectives of different stakeholders involved are not well understood. Thus, we aimed to explore the barriers and facilitators of access to and utilisation of formal care from the perspectives of people with dementia, their informal carers and health and social care professionals.METHOD: Focus groups with people with dementia, informal carers and professionals were conducted in eight European countries. Recruitment targeted people with dementia, informal carers with experience of formal care and professionals involved in providing (access to) formal care. Qualitative content analysis using open coding was used on a national level. Cross-national synthesis was based on the translated national reports.RESULTS: Overall, 55 focus groups with 261 participants were conducted, involving 51 people with dementia, 96 informal carers and 114 professionals. Sixteen categories describing barriers and facilitators were identified, referring to three global themes: Aspects related to 1) individuals involved, 2) the system or 3) overarching aspects. The attitudes and beliefs of people with dementia and their carers may have a major impact, and they often serve as barriers. Formal care was perceived as a threat to the individual independence of people with dementia and was thus avoided as long as possible. A healthcare professional serving as a constant key contact person could be an essential facilitator to overcome these barriers. Contact should be initiated proactively, as early as possible, and a trusting and consistent relationship needs to be established. Beyond that, the findings largely confirm former research and show that barriers to accessing and using formal care still exist across Europe despite a number of national and European initiatives.CONCLUSION: Further investigations are needed to elaborate how the concept of a key contact person could be integrated with existing case management approaches and how the independence and autonomy of people with dementia can be strengthened when formal care needs to be accessed and used. These may be meaningful facilitators regarding enhanced access to formal care for people with dementia and their families.
650	7	a MEDICIN OCH HÄLSOVETENSKAPx Hälsovetenskapx Omvårdnad0 (SwePub)303052 hsv//swe
650	7	a MEDICAL AND HEALTH SCIENCESx Health Sciencesx Nursing0 (SwePub)303052 hsv//eng
653		a Dementia
653		a Focus groups
653		a Formal care
653		a Informal carer
653		a Person with dementia
653		a Utilisation
653		a Health-Promoting Work
653		a Hälsofrämjande arbete
700	1	a Bieber, Anjau Institute for Health and Nursing Science, Martin Luther University Halle-Wittenberg, Halle (Saale), Germany4 aut
700	1	a Hopper, Louiseu School of Nursing and Human Sciences, Dublin City University, Dublin, Ireland4 aut
700	1	a Joyce, Rachaelu School of Nursing and Human Sciences, Dublin City University, Dublin, Ireland4 aut
700	1	a Irving, Kateu School of Nursing and Human Sciences, Dublin City University, Dublin, Ireland4 aut
700	1	a Zanetti, Oraziou Alzheimer Unit, Brescia (BS), Italy4 aut
700	1	a Portolani, Elisau Alzheimer Unit, Brescia (BS), Italy4 aut
700	1	a Kerpershoek, Liselotu Alzheimer Center Limburg, Maastricht University, Maastricht, The Netherlands4 aut
700	1	a Verhey, Fransu Alzheimer Center Limburg, Maastricht University, Maastricht, The Netherlands4 aut
700	1	a de Vugt, Marjoleinu Alzheimer Center Limburg, Maastricht University, Maastricht, The Netherlands4 aut
700	1	a Wolfs, Claireu Alzheimer Center Limburg, Maastricht University, Maastricht, The Netherlands4 aut
700	1	a Eriksen, Sirenu Norwegian National Advisory Unit on Ageing and Health, Vestfold Hospital Trust, Tønsberg, Norway4 aut
700	1	a Røsvik, Janneu Department of Geriatric Medicine, Oslo University Hospital, Aldring og Helse, Oslo, Norway4 aut
700	1	a Marques, Maria J.u Chronic Diseases Research Center, Nova Medical School \| Faculdade de Ciências Médicas, Universidade Nova de Lisboa, Lisbon, Portuga4 aut
700	1	a Gonçalves-Pereira, Manuelu Chronic Diseases Research Center, Nova Medical School \| Faculdade de Ciências Médicas, Universidade Nova de Lisboa, Lisbon, Portuga4 aut
700	1	a Sjölund, Britt-Marie,d 1958-u Karolinska Institutet,Högskolan i Gävle,Medicin- och vårdvetenskap4 aut0 (Swepub:hig)bresjd
700	1	a Jelley, Hannahu Dementia Services Development Centre Wales, Bangor University, Bangor, UK4 aut
700	1	a Woods, Bobu Dementia Services Development Centre Wales, Bangor University, Bangor, UK4 aut
700	1	a Meyer, Gabrieleu Institute for Health and Nursing Science, Martin Luther University Halle-Wittenberg, Halle (Saale), Germany4 aut
700	1	a Handels, R.4 ctb
700	1	a Broda, A.4 ctb
700	1	a Bartoszek, G.4 ctb
700	1	a Orrell, M.4 ctb
700	1	a Wimo, A.4 ctb
700	1	a Sköldunger, A.4 ctb
700	1	a Engedal, K.4 ctb
700	1	a Selbæk, G.4 ctb
700	1	a Michelet, M.4 ctb
700	1	a Irving, K.4 ctb
700	1	a Conceição Balsinha, M.4 ctb
700	1	a Bárrios, H.4 ctb
700	1	a Machado, A.4 ctb
710	2	a Institute for Health and Nursing Science, Martin Luther University Halle-Wittenberg, Halle (Saale), Germanyb School of Nursing and Human Sciences, Dublin City University, Dublin, Ireland4 org
773	0	t BMC Geriatricsd : BioMed Centralg 18:1q 18:1x 1471-2318
856	4	u https://doi.org/10.1186/s12877-018-0816-1y Fulltext
856	4	u https://bmcgeriatr.biomedcentral.com/track/pdf/10.1186/s12877-018-0816-1
856	4 8	u https://urn.kb.se/resolve?urn=urn:nbn:se:hig:diva-26942
856	4 8	u https://doi.org/10.1186/s12877-018-0816-1
856	4 8	u http://kipublications.ki.se/Default.aspx?queryparsed=id:138435261

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