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Needs of multimorbid heart failure patients and their carers : a qualitative interview study and the creation of personas as a basis for a blended collaborative care intervention

Engelmann, Petra (författare)
University Medical Center Hamburg-Eppendorf, Germany,Univ Med Ctr Hamburg Eppendorf, Germany
Eilerskov, Natasja (författare)
University of Southern Denmark, denmark,Univ Southern Denmark, Denmark
Thilsing, Trine (författare)
University of Southern Denmark, Denmark,Univ Southern Denmark, Denmark
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Bernardini, Francesco (författare)
University of Bologna, Italy,Univ Bologna, Italy
Rasmussen, Sanne (författare)
University of Southern Denmark, Denmark,Univ Southern Denmark, Denmark
Löwe, Bernd (författare)
University Medical Center Hamburg-Eppendorf, Germany,Univ Med Ctr Hamburg Eppendorf, Germany
Herrmann-Lingen, Christoph (författare)
University of Göttingen Medical Centre, Germany,Univ Gottingen, Germany; German Ctr Cardiovasc Res DZHK, Germany
Gostoli, Sara (författare)
University of Bologna, Italy,Univ Bologna, Italy
Andréasson, Frida (författare)
Linköpings universitet,Avdelningen för omvårdnad och reproduktiv hälsa,Medicinska fakulteten
Rafanelli, Chiara (författare)
University of Bologna, Italy,Univ Bologna, Italy
Pedersen, Susanne S (författare)
University of Southern Denmark, Denmark;Odense University Hospital, Denmark,Univ Southern Denmark, Denmark; Odense Univ Hosp, Denmark
Jaarsma, Tiny (författare)
Linköpings universitet,Avdelningen för omvårdnad och reproduktiv hälsa,Medicinska fakulteten
Kohlmann, Sebastian (författare)
University Medical Center Hamburg-Eppendorf, Germany,Univ Med Ctr Hamburg Eppendorf, Germany
Consortium, E S C A P E (författare)
visa färre...
 (creator_code:org_t)
Frontiers Media S.A. 2023
2023
Engelska.
Ingår i: Frontiers in Cardiovascular Medicine. - : Frontiers Media S.A.. - 2297-055X. ; 10
  • Tidskriftsartikel (refereegranskat)
Abstract Ämnesord
Stäng  
  • Introduction: Involving patients and carers in the development of blended collaborative care (BCC) interventions for multimorbid heart failure (HF) patients is recommended but rarely practised, and research on the patient perspective is scarce. The aim of this study is to investigate patients' and carers' care-related needs and preferences to better customize a novel international BCC intervention.Methods: A qualitative study design using framework analysis was employed. The study was performed in accordance with the EQUATOR standards for reporting qualitative research (SRQR). Patients aged at least 65 years with HF and at least two other physical diseases as well as their carers completed semistructured interviews in Germany, Italy, and Denmark. Based on these interviews, personas (prototype profiles of patients and carers) were created.Results: Data from interviews with 25 patients and 17 carers were analysed. Initially, seven country-specific personas were identified, which were iteratively narrowed down to a final set of 3 personas: (a) the one who needs and wants support, (b) the one who has accepted their situation with HF and reaches out when necessary, and (c) the one who feels neglected by the health care system. Carers identifying with the last persona showed high levels of psychological stress and a high need for support.Discussion: This is the first international qualitative study on patients' and carers' needs regarding a BCC intervention using the creation of personas. Across three European countries, data from interviews were used to develop three contrasting personas. Instead of providing "one size fits all" interventions, the results indicate that BCC interventions should offer different approaches based on the needs of individual patients and carers. The personas will serve as a basis for the development of a novel BCC intervention as part of the EU project ESCAPE (Evaluation of a patient-centred biopSychosocial blended collaborative CAre Pathway for the treatment of multimorbid Elderly patients).

Ämnesord

MEDICIN OCH HÄLSOVETENSKAP  -- Hälsovetenskap -- Omvårdnad (hsv//swe)
MEDICAL AND HEALTH SCIENCES  -- Health Sciences -- Nursing (hsv//eng)
MEDICIN OCH HÄLSOVETENSKAP  -- Hälsovetenskap -- Hälso- och sjukvårdsorganisation, hälsopolitik och hälsoekonomi (hsv//swe)
MEDICAL AND HEALTH SCIENCES  -- Health Sciences -- Health Care Service and Management, Health Policy and Services and Health Economy (hsv//eng)

Nyckelord

heart failure
multimorbidity
blended collaborative care
informal carers
care needs
qualitative study
OLDER-ADULTS
DEPRESSION
DISEASE
MANAGEMENT
OUTCOMES
DESIGN
SYMPTOMS
EVENTS
PEOPLE
LIFE
Omvårdnad
Nursing

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