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LIBRIS Formathandbok  (Information om MARC21)
FältnamnIndikatorerMetadata
00003567naa a2200433 4500
001oai:prod.swepub.kib.ki.se:136166388
003SwePub
008240701s2017 | |||||||||||000 ||eng|
024a http://kipublications.ki.se/Default.aspx?queryparsed=id:1361663882 URI
024a https://doi.org/10.1016/j.eurpsy.2017.01.10892 DOI
040 a (SwePub)ki
041 a engb eng
042 9 SwePub
072 7a vet2 swepub-contenttype
072 7a kon2 swepub-publicationtype
100a Goncalves-Pereira, M4 aut
2451 0a The Portuguese participation in the Actifcare (access to timely formal care in dementia) European study: Preliminary results of systematic reviews, qualitative and quantitative data
264 c 2020-03-23
264 1b Cambridge University Press (CUP),c 2017
520 a In the context of untimely access to community formal services, unmet needs of persons with dementia (PwD) and their carers may compromise their quality of life.Objectives/aimsThe Actifcare EU-JPND project (www.actifcare.eu) focuses on access to and (non) utilization of dementia formal care in eight countries (The Netherlands, Germany, United Kingdom, Sweden, Norway, Ireland, Italy, Portugal), as related to unmet needs and quality of life. Evaluations included systematic reviews, qualitative explorations, and a European cohort study (PwD in early/intermediate phases and their primary carers; n = 453 days; 1 year follow-up). Preliminary Portuguese results are presented here (FCT-JPND-HC/0001/2012).Methods(1) extensive systematic searches on access to/utilization of services; (2) focus groups of PwD, carers and health/social professionals; (3) prospective study (n = 66 days from e.g., primary care, hospital outpatient services, Alzheimer Portugal).ResultsIn Portugal, nationally representative data is scarce regarding health/social services utilization in dementia. There are important barriers to access to community services, according to users, carers and professionals, whose views not always coincide. The Portuguese cohort participants were 66 PwD (62.1% female, 77.3 ± 6.2 years, 55.5% Alzheimer's/mixed subtypes, MMSE 17.8 ± 4.8, CDR1 89.4%) and 66 carers (66.7% female, 64.9 ± 15.0 years, 56.1% spouses), with considerable unmet needs in some domains.ConclusionsAll Actifcare milestones are being reached. The consortium is now analyzing international differences in (un) timely access to services and its impact on quality of life and needs for care (e.g., formal community support is weaker in Portugal than in many European countries). National best-practice recommendations in dementia are also in preparation.Abstract submitted on behalf of the Actifcare Eu-JPND consortium.Disclosure of interestThe authors have not supplied their declaration of competing interest.
700a Marques, MJ4 aut
700a Balsinha, C4 aut
700a Reis, T4 aut
700a Machado, A4 aut
700a Barrios, H4 aut
700a Alves, L4 aut
700a Verdelho, A4 aut
700a Meyer, G4 aut
700a Woods, B4 aut
700a Wimo, A4 aut
700a Selbaeck, G4 aut
700a Irving, K4 aut
700a Zanetti, O4 aut
700a Orrell, M4 aut
700a De Vugt, M4 aut
700a Verhey, F4 aut
773t EUROPEAN PSYCHIATRYd : Cambridge University Press (CUP)g 41, s. S652-S652q 41<S652-S652x 0924-9338x 1778-3585
8564 8u http://kipublications.ki.se/Default.aspx?queryparsed=id:136166388
8564 8u https://doi.org/10.1016/j.eurpsy.2017.01.1089

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