"Be an ambassador for change that you would like to see": a call to action to all stakeholders for co-creation in healthcare and medical research to improve quality of life of people with a neuromuscular disease

Ambrosini, A (author)

Quinlivan, R (author)

Sansone, VA (author)

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Meijer, I (author)

Schrijvers, G (author)

Tibben, A (author)

Padberg, G (author)

Wit, M (author)

Sterrenburg, E (author)

Mejat, A (author)

Breukel, A (author)

Rataj, M (author)

Lochmuller, H (author)

Willmann, R (author)

Athanasiou, D (author)

Bere, N (author)

Bertinotti, F (author)

Breukel, A (author)

Bungay, N (author)

Daly, C (author)

de Lemus, M (author)

De Wit, M (author)

Galluccio, E (author)

Gamroth, C (author)

Goemans, N (author)

Gomori, G (author)

Hansson, M (author)

Lamy, F (author)

Landfeldt, E (author)

Karolinska Institutet

Lennox, A (author)

Lochmuller, H (author)

Mansbach, H (author)

Mazzone, E (author)

Meijer, I (author)

Mejat, A (author)

Mels, A (author)

Monaco, L (author)

Padberg, G (author)

Peay, H (author)

Quinlivan, R (author)

Rahbek, J (author)

Rasconi, M (author)

Rataj, M (author)

Salama, F (author)

Sansone, V (author)

Schara, U (author)

Schrijvers, G (author)

Sterrenburg, E (author)

Tibben, A (author)

Trant, K (author)

Van Engelen, B (author)

Von Moers, A (author)

Vroom, E (author)

Willmann, R (author)

Zittersteijn, A (author)

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 (creator_code:org_t)

2019-06-07

2019

English.

In: Orphanet journal of rare diseases. - : Springer Science and Business Media LLC. - 1750-1172. ; 14:1, s. 126-

Related links:

https://ojrd.biomedc...

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https://doi.org/10.1...

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• Journal article (peer-reviewed)