Quality indicators for palliative and end of life care: a review of Swedish policy documents

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Lind, Susanne,1962-Karolinska Institutet,Ersta Sköndal högskola,Palliativt forskningscentrum, PFC (författare)

Quality indicators for palliative and end of life care : a review of Swedish policy documents

Background All patients with palliative and end of life care needs should be guaranteed equal and safe treatment and care, regardless of their disease or site of care. The inclusion of quality indicators in national guidelines and other guiding documents supports quality assurance and improvement in provision of care. The aim of this paper was to review existing quality indicators in national Swedish policy documents relevant to palliative and end of life care.Methods We reviewed existing guidelines for diseases expected to require palliative care issued by the National Board of Health and Welfare, existing regional clinical practice guidelines and the annual report of the Swedish Register of Palliative Care (SRPC) up until 2010.Results We found 11 quality indicators pertinent to palliative and end of life care in the guidelines for cancer diseases and ‘The care and nursing of the elderly’. The indicators included assessment and treatment of pain, communication with the patient and the family, documentation in the patient record and registration in the SRPC. In the national guidelines for cardiology, pulmonary diseases, stroke, diabetes and dementia, there were no indicators relevant for palliative or end of life care.Conclusions In the existing Swedish national guidelines for many different diseases, there is still a great need to define clinically relevant and feasible outcome measures of quality of palliative and end of life care.

Adolfsson, JanKarolinska Institutet,Department of Clinical Science, Intervention and Technology, Karolinska Institutet, Stockholm, Sweden (författare)
Axelsson, BertilUmeå universitet,Onkologi,Department of Radiation Sciences, University of Umeå, Umeå, Sweden; FoU unit, Östersunds Hospital, Östersund, Sweden(Swepub:umu)axbe0003 (författare)
Fürst, Carl JohanDepartment of Oncology–Pathology, Karolinska Institutet, Stockholm, Sweden; Department of Clinical Sciences, Lund University, Lund, Sweden (författare)
Ersta Sköndal högskolaPalliativt forskningscentrum, PFC (creator_code:org_t)

Ingår i:BMJ Supportive & Palliative Care: BMJ Publishing Group Ltd3:2, s. 174-1802045-435X2045-4368

Av författaren/redakt...: Lind, Susanne, 1 ...; Adolfsson, Jan; Axelsson, Bertil; Fürst, Carl Joha ...

Om ämnet

MEDICIN OCH HÄLSOVETENSKAP: MEDICIN OCH HÄLS ...; och Hälsovetenskap; och Omvårdnad

MEDICIN OCH HÄLSOVETENSKAP: MEDICIN OCH HÄLS ...; och Klinisk medicin; och Cancer och onkol ...

MEDICIN OCH HÄLSOVETENSKAP: MEDICIN OCH HÄLS ...; och Hälsovetenskap; och Hälso och sjukvå ...

Av lärosätet: Marie Cederschiöld högskola; Umeå universitet; Karolinska Institutet

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