Facilitators and Barriers of Participation in “Uptime” Activities in Girls and Women With Rett Syndrome : Perspectives From Parents and Professionals

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Fältnamn	Indikatorer	Metadata
000		03541naa a2200421 4500
001		oai:lup.lub.lu.se:644508d2-6665-4673-a189-3f05a84dcb84
003		SwePub
008		190117s2019 \| \|\|\|\|\|\|\|\|\|\|\|000 \|\|eng\|
024	7	a https://lup.lub.lu.se/record/644508d2-6665-4673-a189-3f05a84dcb842 URI
024	7	a https://doi.org/10.1177/10497323188033582 DOI
040		a (SwePub)lu
041		a engb eng
042		9 SwePub
072	7	a art2 swepub-publicationtype
072	7	a ref2 swepub-contenttype
100	1	a Stahlhut, Michelleu Lund University,Lunds universitet,Människan i rörelse: hälsa och rehabilitering,Forskargrupper vid Lunds universitet,Human Movement: health and rehabilitation,Lund University Research Groups,Copenhagen University Hospital4 aut0 (Swepub:lu)med-ms34
245	1 0	a Facilitators and Barriers of Participation in “Uptime” Activities in Girls and Women With Rett Syndrome : Perspectives From Parents and Professionals
264		c 2018-10-10
264	1	b SAGE Publications,c 2019
520		a Rett syndrome (RTT) is a rare neurodevelopmental disorder usually affecting females. It is associated with intellectual and multiple disabilities leading to a high level of dependency in all aspects of daily living including participation in physical activities. This study explored facilitators and barriers to “uptime” (non-sedentary) activities in Danish girls and women with RTT as perceived by parents and professionals using focus groups. Through thematic analysis, one central theme emerged: a constant balance to do the best thing for the girl or woman. Within the central theme, five subthemes of facilitators and barriers were identified relating to the individual and the physical, organizational, social, and attitudinal environments. Environmental barriers can be reduced through policy and management-level changes in health promotion and strong advocacy of physical activity by health professionals. Targeting both facilitators and barriers of “uptime” activities enables the planning and implementing of health-promoting interventions in individuals with RTT.
650	7	a MEDICIN OCH HÄLSOVETENSKAPx Hälsovetenskapx Arbetsterapi0 (SwePub)303062 hsv//swe
650	7	a MEDICAL AND HEALTH SCIENCESx Health Sciencesx Occupational Therapy0 (SwePub)303062 hsv//eng
653		a Focus groups
653		a health promotion
653		a intellectual and multiple disabilities
653		a physical activity
653		a sedentary behavior
653		a thematic analysis
700	1	a Esbensen, Bente Appelu University of Copenhagen,Copenhagen University Hospital4 aut0 (Swepub:lu)omv-bap
700	1	a Larsen, Jane Lundingu Copenhagen University Hospital4 aut
700	1	a Bisgaard, Anne Marieu Copenhagen University Hospital4 aut
700	1	a Downs, Jennyu University of Copenhagen4 aut
700	1	a Nordmark, Evau Lund University,Lunds universitet,Människan i rörelse: hälsa och rehabilitering,Forskargrupper vid Lunds universitet,Human Movement: health and rehabilitation,Lund University Research Groups4 aut0 (Swepub:lu)sgym-eno
710	2	a Människan i rörelse: hälsa och rehabiliteringb Forskargrupper vid Lunds universitet4 org
773	0	t Qualitative Health Researchd : SAGE Publicationsg 29:4, s. 609-619q 29:4<609-619x 1049-7323x 1552-7557
856	4	u http://dx.doi.org/10.1177/1049732318803358y FULLTEXT
856	4 8	u https://lup.lub.lu.se/record/644508d2-6665-4673-a189-3f05a84dcb84
856	4 8	u https://doi.org/10.1177/1049732318803358

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Av författaren/redakt...: Stahlhut, Michel ...; Esbensen, Bente ...; Larsen, Jane Lun ...; Bisgaard, Anne M ...; Downs, Jenny; Nordmark, Eva

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