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Congenital aniridia...
Congenital aniridia patients experience on their visual impairment in Hungary An ANIRIDIA-NET survey
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- Maria, Csidey (author)
- Semmelweis Egyet, Hungary; Heim Pal Orszag Gyermekgyogyaszat Int, Hungary; Maria U 39, Hungary
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- Christina, Grupcheva (author)
- Med Univ, Bulgaria
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- Tanja, Stachon (author)
- Univ Saarland, Germany
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- Dietmar, Hecker (author)
- Univ Klinikum Saarlandes, Germany; Univ Saarland, Germany
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- Annamaria, Naray (author)
- Semmelweis Egyet, Hungary; Univ Saarland, Germany
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- Klaudia, Keki-Kovacs (author)
- Semmelweis Egyet, Hungary
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- Orsolya, Nemeth (author)
- Markusovszky Egyet Oktatokorhaz, Hungary
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- Krisztina, Knezy (author)
- Semmelweis Egyet, Hungary
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- Maria, Bausz (author)
- Semmelweis Egyet, Hungary
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- Andrea, Szigeti (author)
- Semmelweis Egyet, Hungary
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- Anita, Csorba (author)
- Semmelweis Egyet, Hungary
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- Kitti, Kormanyos (author)
- Semmelweis Egyet, Hungary
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- Dorottya, Szabo (author)
- Semmelweis Egyet, Hungary
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- Marta, Corton (author)
- Hosp Univ Fdn Jimenez Diaz, Spain; Univ Autonoma Madrid IIS FJD UAM, Spain; ISCIII, Spain
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- Kalman, Tory (author)
- Magyar Tud Akad Semmelwe Egyet, Hungary; Semmelwe Egyet, Hungary
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- Zsolt, Nagy Zoltan (author)
- Semmelweis Egyet, Hungary
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- Lagali, Neil (author)
- Linköpings universitet,Avdelningen för sinnesorgan och kommunikation,Medicinska fakulteten
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- Erika, Maka (author)
- Semmelweis Egyet, Hungary
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- Nora, Szentmary (author)
- Semmelweis Egyet, Hungary; Univ Saarland, Germany
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(creator_code:org_t)
- AKADEMIAI KIADO ZRT, 2023
- 2023
- English.
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In: ORVOSI HETILAP. - : AKADEMIAI KIADO ZRT. - 0030-6002. ; 164:34, s. 1342-1349
- Related links:
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https://liu.diva-por... (primary) (Raw object)
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https://urn.kb.se/re...
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https://doi.org/10.1...
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Abstract
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- Introduction: Aniridia is a rare congenital panocular disease associated with varying degrees of visual acuity impair-ment. Objective: To assess the experiences of congenital aniridia patients in Hungary, with visual impairment using a ques-tionnaire developed by the ANIRIDIA-NET. Patients and method: Patients completed the Hungarian version of the 20-item ANIRIDIA-NET questionnaire with our assistance. The questionnaire covered demographic data, the most common complaints caused by the disease, the difficulties caused by low vision in different life situations and the frequency of low vision aids used in daily life. Results: 33 subjects (17 female [51.51%] and 16 male [48.48%]), 16 (48.5%) children and 17 (51.5%) adults com-pleted the questionnaire, with an age of 25.69 +/- 17.49 years (5-59 years). Daily photosensitivity was reported by 27 (81.8%), dry eyes by 5 (15.2%), tearing by 4 (12.1%), fluctuating vision by 3 (9.1%), and eye pain by 2 (6.1%) sub-jects. The majority of respondents said that personal communication with schoolmates (16 [48.5%]) or colleagues at work (11 [33.3%]) never caused difficulties because of their visual impairment. 29 people (87.9%) never needed help with daily routines at home, 24 (72.7%) with getting to school/work and 17 (51.5%) with various activities. 29 peo-ple (87.8%) never used low vision aids for communication, 23 (69.7%) for travelling, 20 (60.6%) for participating in social activities, 18 (54.5%) for studying/work. Conclusion: Although aniridia is associated with reduced visual acuity, the majority of people with congenital aniridia, especially in childhood, manage to cope with personal communication and various life situations without difficulty, despite their eye complaints. Low vision aids can be an important aid for them as they grow into adulthood and as they age.
Subject headings
- MEDICIN OCH HÄLSOVETENSKAP -- Klinisk medicin -- Cancer och onkologi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Clinical Medicine -- Cancer and Oncology (hsv//eng)
Keyword
- aniridia; visual impairment; questionnaire
Publication and Content Type
- ref (subject category)
- art (subject category)
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- By the author/editor
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Maria, Csidey
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Christina, Grupc ...
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Tanja, Stachon
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Dietmar, Hecker
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Annamaria, Naray
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Klaudia, Keki-Ko ...
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show more...
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Orsolya, Nemeth
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Krisztina, Knezy
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Maria, Bausz
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Andrea, Szigeti
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Anita, Csorba
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Kitti, Kormanyos
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Dorottya, Szabo
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Marta, Corton
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Kalman, Tory
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Zsolt, Nagy Zolt ...
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Lagali, Neil
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Erika, Maka
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Nora, Szentmary
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- About the subject
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- MEDICAL AND HEALTH SCIENCES
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MEDICAL AND HEAL ...
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and Clinical Medicin ...
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and Cancer and Oncol ...
- Articles in the publication
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ORVOSI HETILAP
- By the university
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Linköping University