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Dynamic Consent :
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Budin-Ljosne, IsabelleUniv Oslo, Inst Hlth & Soc, Ctr Med Eth, POB 1130, NO-0318 Oslo, Norway.;Cancergen No, Norwegian Canc Genom Consortium, Oslo, Norway.
(författare)
Dynamic Consent : a potential solution to some of the challenges of modern biomedical research
- Artikel/kapitelEngelska2017
Förlag, utgivningsår, omfång ...
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2017-01-25
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Springer Science and Business Media LLC,2017
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electronicrdacarrier
Nummerbeteckningar
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LIBRIS-ID:oai:DiVA.org:uu-316412
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https://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-316412URI
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https://doi.org/10.1186/s12910-016-0162-9DOI
Kompletterande språkuppgifter
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Språk:engelska
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Sammanfattning på:engelska
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Klassifikation
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Ämneskategori:ref swepub-contenttype
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Ämneskategori:art swepub-publicationtype
Anmärkningar
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Background: Innovations in technology have contributed to rapid changes in the way that modern biomedical research is carried out. Researchers are increasingly required to endorse adaptive and flexible approaches to accommodate these innovations and comply with ethical, legal and regulatory requirements. This paper explores how Dynamic Consent may provide solutions to address challenges encountered when researchers invite individuals to participate in research and follow them up over time in a continuously changing environment. Methods: An interdisciplinary workshop jointly organised by the University of Oxford and the COST Action CHIP ME gathered clinicians, researchers, ethicists, lawyers, research participants and patient representatives to discuss experiences of using Dynamic Consent, and how such use may facilitate the conduct of specific research tasks. The data collected during the workshop were analysed using a content analysis approach. Results: Dynamic Consent can provide practical, sustainable and future-proof solutions to challenges related to participant recruitment, the attainment of informed consent, participant retention and consent management, and may bring economic efficiencies. Conclusions: Dynamic Consent offers opportunities for ongoing communication between researchers and research participants that can positively impact research. Dynamic Consent supports inter-sector, cross-border approaches and large scale data-sharing. Whilst it is relatively easy to set up and maintain, its implementation will require that researchers re-consider their relationship with research participants and adopt new procedures.
Ämnesord och genrebeteckningar
Biuppslag (personer, institutioner, konferenser, titlar ...)
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Teare, Harriet J. A.Univ Oxford, Nuffield Dept Populat Hlth, Ctr Hlth Law & Emerging Technol HeLEX, Oxford, England.
(författare)
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Kaye, JaneUniv Oxford, Nuffield Dept Populat Hlth, Ctr Hlth Law & Emerging Technol HeLEX, Oxford, England.
(författare)
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Beck, StephanUCL, UCL Canc Inst, London, England.
(författare)
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Bentzen, Heidi BeateUniv Oslo, Inst Hlth & Soc, Ctr Med Eth, POB 1130, NO-0318 Oslo, Norway.;Cancergen No, Norwegian Canc Genom Consortium, Oslo, Norway.;Univ Oslo, Norwegian Res Ctr Comp & Law, Fac Law, Oslo, Norway.
(författare)
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Caenazzo, LucianaUniv Padua, Padua, Italy.
(författare)
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Collett, CliveHlth Res Author, London, England.
(författare)
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D'Abramo, FlavioFree Univ Berlin, Focus Area DynAge, Berlin, Germany.
(författare)
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Felzmann, HeikeNUI Galway, Ctr Bioeth Res & Anal, Galway, Ireland.
(författare)
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Finlay, TeresaUniv Oxford, Nuffield Dept Populat Hlth, Ctr Hlth Law & Emerging Technol HeLEX, Oxford, England.
(författare)
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Javaid, Muhammad KassimUniv Oxford, Nuffield Dept Orthopaed Rheumatol & Musculoskelet, NIHR Musculoskeletal Biomed Res Unit, Oxford, England.
(författare)
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Jones, EricaUCL, UCL Canc Inst, London, England.
(författare)
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Katic, VisnjaUniv Rijeka, Sch Med, Rijeka, Croatia.
(författare)
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Simpson, AmyGenet Alliance UK, London, England.
(författare)
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Mascalzoni, DeborahUppsala universitet,Centrum för forsknings- och bioetik,EURAC, Ctr Biomed, Bolzano, Italy.(Swepub:uu)debma696
(författare)
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Univ Oslo, Inst Hlth & Soc, Ctr Med Eth, POB 1130, NO-0318 Oslo, Norway.;Cancergen No, Norwegian Canc Genom Consortium, Oslo, Norway.Univ Oxford, Nuffield Dept Populat Hlth, Ctr Hlth Law & Emerging Technol HeLEX, Oxford, England.
(creator_code:org_t)
Sammanhörande titlar
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Ingår i:BMC Medical Ethics: Springer Science and Business Media LLC181472-6939
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Budin-Ljosne, Is ...
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Teare, Harriet J ...
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Kaye, Jane
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Beck, Stephan
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Bentzen, Heidi B ...
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Caenazzo, Lucian ...
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Collett, Clive
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D'Abramo, Flavio
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Felzmann, Heike
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Finlay, Teresa
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Javaid, Muhammad ...
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Jones, Erica
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Katic, Visnja
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Simpson, Amy
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Mascalzoni, Debo ...
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