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LIBRIS Formathandbok  (Information om MARC21)
FältnamnIndikatorerMetadata
00005247naa a2200577 4500
001oai:DiVA.org:uu-316412
003SwePub
008170302s2017 | |||||||||||000 ||eng|
0247 a https://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-3164122 URI
0247 a https://doi.org/10.1186/s12910-016-0162-92 DOI
040 a (SwePub)uu
041 a engb eng
042 9 SwePub
072 7a ref2 swepub-contenttype
072 7a art2 swepub-publicationtype
1001 a Budin-Ljosne, Isabelleu Univ Oslo, Inst Hlth & Soc, Ctr Med Eth, POB 1130, NO-0318 Oslo, Norway.;Cancergen No, Norwegian Canc Genom Consortium, Oslo, Norway.4 aut
2451 0a Dynamic Consent :b a potential solution to some of the challenges of modern biomedical research
264 c 2017-01-25
264 1b Springer Science and Business Media LLC,c 2017
338 a electronic2 rdacarrier
520 a Background: Innovations in technology have contributed to rapid changes in the way that modern biomedical research is carried out. Researchers are increasingly required to endorse adaptive and flexible approaches to accommodate these innovations and comply with ethical, legal and regulatory requirements. This paper explores how Dynamic Consent may provide solutions to address challenges encountered when researchers invite individuals to participate in research and follow them up over time in a continuously changing environment. Methods: An interdisciplinary workshop jointly organised by the University of Oxford and the COST Action CHIP ME gathered clinicians, researchers, ethicists, lawyers, research participants and patient representatives to discuss experiences of using Dynamic Consent, and how such use may facilitate the conduct of specific research tasks. The data collected during the workshop were analysed using a content analysis approach. Results: Dynamic Consent can provide practical, sustainable and future-proof solutions to challenges related to participant recruitment, the attainment of informed consent, participant retention and consent management, and may bring economic efficiencies. Conclusions: Dynamic Consent offers opportunities for ongoing communication between researchers and research participants that can positively impact research. Dynamic Consent supports inter-sector, cross-border approaches and large scale data-sharing. Whilst it is relatively easy to set up and maintain, its implementation will require that researchers re-consider their relationship with research participants and adopt new procedures.
650 7a MEDICIN OCH HÄLSOVETENSKAPx Hälsovetenskapx Medicinsk etik0 (SwePub)303102 hsv//swe
650 7a MEDICAL AND HEALTH SCIENCESx Health Sciencesx Medical Ethics0 (SwePub)303102 hsv//eng
653 a Dynamic consent
653 a Participant engagement
653 a Research communication
653 a Ethics
653 a Biobank
653 a Clinical trials
653 a Clinical research
653 a Software tools
7001 a Teare, Harriet J. A.u Univ Oxford, Nuffield Dept Populat Hlth, Ctr Hlth Law & Emerging Technol HeLEX, Oxford, England.4 aut
7001 a Kaye, Janeu Univ Oxford, Nuffield Dept Populat Hlth, Ctr Hlth Law & Emerging Technol HeLEX, Oxford, England.4 aut
7001 a Beck, Stephanu UCL, UCL Canc Inst, London, England.4 aut
7001 a Bentzen, Heidi Beateu Univ Oslo, Inst Hlth & Soc, Ctr Med Eth, POB 1130, NO-0318 Oslo, Norway.;Cancergen No, Norwegian Canc Genom Consortium, Oslo, Norway.;Univ Oslo, Norwegian Res Ctr Comp & Law, Fac Law, Oslo, Norway.4 aut
7001 a Caenazzo, Lucianau Univ Padua, Padua, Italy.4 aut
7001 a Collett, Cliveu Hlth Res Author, London, England.4 aut
7001 a D'Abramo, Flaviou Free Univ Berlin, Focus Area DynAge, Berlin, Germany.4 aut
7001 a Felzmann, Heikeu NUI Galway, Ctr Bioeth Res & Anal, Galway, Ireland.4 aut
7001 a Finlay, Teresau Univ Oxford, Nuffield Dept Populat Hlth, Ctr Hlth Law & Emerging Technol HeLEX, Oxford, England.4 aut
7001 a Javaid, Muhammad Kassimu Univ Oxford, Nuffield Dept Orthopaed Rheumatol & Musculoskelet, NIHR Musculoskeletal Biomed Res Unit, Oxford, England.4 aut
7001 a Jones, Ericau UCL, UCL Canc Inst, London, England.4 aut
7001 a Katic, Visnjau Univ Rijeka, Sch Med, Rijeka, Croatia.4 aut
7001 a Simpson, Amyu Genet Alliance UK, London, England.4 aut
7001 a Mascalzoni, Deborahu Uppsala universitet,Centrum för forsknings- och bioetik,EURAC, Ctr Biomed, Bolzano, Italy.4 aut0 (Swepub:uu)debma696
7102 a Univ Oslo, Inst Hlth & Soc, Ctr Med Eth, POB 1130, NO-0318 Oslo, Norway.;Cancergen No, Norwegian Canc Genom Consortium, Oslo, Norway.b Univ Oxford, Nuffield Dept Populat Hlth, Ctr Hlth Law & Emerging Technol HeLEX, Oxford, England.4 org
7730 t BMC Medical Ethicsd : Springer Science and Business Media LLCg 18q 18x 1472-6939
8564 u https://uu.diva-portal.org/smash/get/diva2:1078021/FULLTEXT01.pdfx primaryx Raw objecty fulltext:print
8564 u https://bmcmedethics.biomedcentral.com/track/pdf/10.1186/s12910-016-0162-9
8564 8u https://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-316412
8564 8u https://doi.org/10.1186/s12910-016-0162-9

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