WFRF:(Houben Andreas)
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The emotional well-being of parents with children at genetic risk for type 1 diabetes before and during participation in the POInT-study
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- Houben, Janne (författare)
- University Hospitals Leuven
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- Janssens, Martha (författare)
- University Hospitals Leuven
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- Winkler, Christiane (författare)
- Helmholtz Zentrum München
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- Hommel, Angela (författare)
- Roloff, Frank (författare)
- Zubizarreta, Nicole (författare)
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- (creator_code:org_t)
- 2022-12-20
- 2022
- Engelska 10 s.
- Ingår i: Pediatric Diabetes. - : Hindawi Limited. - 1399-543X .- 1399-5448. ; 23:8, s. 1707-1716
- Tidskriftsartikel (refereegranskat)
Abstract
Ämnesord
Stäng
- Introduction: This study examined the emotional impact that parents experience when confronted with an increased genetic risk of type 1 diabetes (T1D) in their child. Population-based screening of neonates for genetic risk of chronic disease carries the risk of increased emotional burden for parents. Methods: Information was collected using a well-being questionnaire for parents of infants identified as having an increased risk for T1D in a multinational research study. Parents were asked to complete this questionnaire after they were told their child had an increased risk for T1D (Freder1k-study) and at several time points during an intervention study (POInT-study), where oral insulin was administered daily. Results: Data were collected from 2595 parents of 1371 children across five countries. Panic-related anxiety symptoms were reported by only 4.9% after hearing about their child having an increased risk. Symptoms of depression were limited to 19.4% of the parents at the result-communication visit and declined over time during the intervention study. When thinking about their child's risk for developing T1D (disease-specific anxiety), 47.2% worried, felt nervous and tense. Mothers and parents with a first-degree relative (FDR) with T1D reported more symptoms of depression and disease-specific anxiety (p < 0.001) than fathers and parents without a FDR. Conclusion: Overall, symptoms of depression and panic-related anxiety are comparable with the German population. When asked about their child's risk for T1D during the intervention study, some parents reported disease-specific anxiety, which should be kept in mind when considering population-based screening. As certain subgroups are more prone, it will be important to continue psychological screening and, when necessary, to provide support by an experienced, multidisciplinary team.
Ämnesord
- MEDICIN OCH HÄLSOVETENSKAP -- Klinisk medicin -- Endokrinologi och diabetes (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Clinical Medicine -- Endocrinology and Diabetes (hsv//eng)
Nyckelord
- emotional well-being
- genetic risk
- parents
- prevention
- type 1 diabetes
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- Houben, Janne
- Janssens, Martha
- Winkler, Christi ...
- Besser, Rachel E ...
- Dzygalo, Katarzy ...
- Fehn, Annika
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- Hommel, Angela
- Lange, Karin
- Elding Larsson, ...
- Lundgren, Markus
- Roloff, Frank
- Snape, Matthew
- Szypowska, Agnie ...
- Weiss, Andreas
- Zapardiel-Gonzal ...
- Zubizarreta, Nic ...
- Ziegler, Anette ...
- Casteels, Kristi ...
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