Discontinuation of follow-up care for young people with complex chronic conditions: conceptual definitions and operational components

↓ Direkt till sidans innehåll
↓ Direkt till sidans sekundära innehåll (sidomenyn)

Search: WFRF:(Johansson Ewa Lena) > Discontinuation of ...

Discontinuation of follow-up care for young people with complex chronic conditions : conceptual definitions and operational components

Skogby, Sandra, 1989 (author): Gothenburg University,Göteborgs universitet,Institutionen för vårdvetenskap och hälsa,Institute of Health and Care Sciences

Bratt, Ewa-Lena, 1970 (author): Gothenburg University,Göteborgs universitet,Institutionen för vårdvetenskap och hälsa,Institute of Health and Care Sciences

Johansson, Bengt (author): Umeå universitet,Klinisk fysiologi

Moons, Philip, 1968 (author): Gothenburg University,Göteborgs universitet,Institutionen för vårdvetenskap och hälsa,Institute of Health and Care Sciences

Goossens, Eva (author): KU Leuven Department of Public Health and Primary Care, Leuven, Belgium; Research Foundation Flanders, Brussels, Belgium; Center for Research and Innovation in Care, Faculty of Nursing, University of Antwerp, Antwerp, Belgium; Department of Patient Care Services, Antwerp University Hospital, Antwerp, Belgium

show less...

(creator_code:org_t)

2021-12-15
2021
English.
In: BMC Health Services Research. - : BioMed Central. - 1472-6963. ; 21:1

Related links:: https://doi.org/10.1...; show more...; https://umu.diva-por... (primary) (Raw object); https://bmchealthser...; https://urn.kb.se/re...; https://doi.org/10.1...; https://gup.ub.gu.se...; show less...

Journal article (peer-reviewed)

Abstract Subject headings

Background: A substantial proportion of young people with Complex Chronic Conditions (CCCs) experience some degree of discontinuation of follow-up care, which is an umbrella term to describe a broken chain of follow-up. Discontinuation of follow-up care is not clearly defined, and the great plethora of terms used within this field cannot go unnoticed. Terms such as “lost to follow-up”, “lapses in care” and “care gaps”, are frequently used in published literature, but differences between terms are unclear. Lack of uniformity greatly affects comparability of study findings. The aims of the present study were to (i) provide a systematic overview of terms and definitions used in literature describing discontinuation of follow-up care in young people with CCC’s; (ii) to clarify operational components of discontinuation of follow-up care (iii); to develop conceptual definitions and suggested terms to be used; and (iv) to perform an expert-based evaluation of terms and conceptual definitions.Methods: A systematic literature search performed in PubMed was used to provide an overview of current terms used in literature. Using a modified summative content analysis, operational components were analysed, and conceptual definitions were developed. These conceptual definitions were assessed by an expert panel using a survey.Results: In total, 47 terms and definitions were retrieved, and a core set of operational components was identified. Three main types of discontinuation of follow-up care emerged from the analysis and expert evaluation, conceptually defined as follows: Lost to follow-up care: “No visit within a defined time period and within a defined context, and the patient is currently no longer engaged in follow-up care”;Gap in follow-up care: “Exceeded time interval between clinic visits within a defined context, and the patient is currently engaged in follow-up care”; andUntraceability: “Failure to make contact due to lack of contact information”.Conclusion: By creating a common vocabulary for discontinuation of follow-up care, the quality of future studies could improve. The conceptual definitions and operational components provide guidance to both researchers and healthcare professionals focusing on discontinuation of follow-up care for young people with CCCs.

Subject headings

MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Hälso- och sjukvårdsorganisation, hälsopolitik och hälsoekonomi (hsv//swe)
MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Health Care Service and Management, Health Policy and Services and Health Economy (hsv//eng)
MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap (hsv//swe)
MEDICAL AND HEALTH SCIENCES -- Health Sciences (hsv//eng)

Keyword

Adolescent
Chronic disease
Continuity of patient care: patient transfer
Delivery of health care
Lost to follow-up
Young adult

Publication and Content Type

ref (subject category)
art (subject category)

Find in a library

BMC Health Services Research (Search for host publication in LIBRIS)

To the university's database

Find more in SwePub

By the author/editor: Skogby, Sandra, ...; Bratt, Ewa-Lena, ...; Johansson, Bengt; Moons, Philip, 1 ...; Goossens, Eva

About the subject

MEDICAL AND HEALTH SCIENCES: MEDICAL AND HEAL ...; and Health Sciences; and Health Care Serv ...

MEDICAL AND HEALTH SCIENCES: MEDICAL AND HEAL ...; and Health Sciences

Articles in the publication: BMC Health Servi ...

By the university: Umeå University; University of Gothenburg

Search outside SwePub

Extend your search to:: Google; Google Book Search; Google Scholar

Kungliga biblioteket hanterar dina personuppgifter i enlighet med EU:s dataskyddsförordning (2018), GDPR. Läs mer om hur det funkar här.
Så här hanterar KB dina uppgifter vid användning av denna tjänst.

LIBRIS.kb.se