Web-based support for spouses of patients with life-threatening illness cared for in specialized home care: A feasibility study

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Häger Tibell, LouiseMarie Cederschiöld högskola,Palliativt forskningscentrum, PFC,Karolinska Universitetssjukhuset (författare)

Web-based support for spouses of patients with life-threatening illness cared for in specialized home care : A feasibility study

Artikel/kapitelEngelska2022

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2022
Cambridge University Press,2022
electronicrdacarrier

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LIBRIS-ID:oai:DiVA.org:shh-4699
https://urn.kb.se/resolve?urn=urn:nbn:se:shh:diva-4699URI
https://doi.org/10.1017/S1478951522001602DOI
https://urn.kb.se/resolve?urn=urn:nbn:se:esh:diva-9990URI
http://kipublications.ki.se/Default.aspx?queryparsed=id:151563470URI

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Språk:engelska
Sammanfattning på:engelska

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OBJECTIVES: Psychoeducational interventions for family caregivers have shown to be effective but not possible for all caregivers to attend; thus, web-based interventions may be a complement. This study aimed to evaluate feasibility of a web-based intervention, "narstaende.se," from the perspective of spouses of patients receiving specialized home care.METHODS: A website was developed, containing videos with conversations between health-care professionals and family caregivers (actors), informative texts, links to further information, and a chat forum. The aim of the website is to provide support and promote preparedness for caregiving and death, and the content is theoretically and empirically grounded. The study had a descriptive cross-sectional design. Altogether, 26 spouses answered a questionnaire, before accessing the website, and 4 weeks after this, 12 spouses were interviewed. Descriptive statistics and qualitative content analysis were used.RESULTS: Spouses experienced the website as being easy to use, welcoming, and with relevant content. Participating spouses would recommend "narstaende.se" to others in similar situations, and the majority found the website introduced timely. Videos seemed easily accessible and were most used, contributing to a feeling of recognition and sharing the situation. The online format was perceived as flexible, but still not all spouses visited the website, stating the desire for support in real life.SIGNIFICANCE OF RESULTS: A web-based intervention can be feasible for spouses in specialized home care; however, the digital format is not suitable for everyone. Further research is needed to determine the website's potential to provide support and increase preparedness for family caregivers in general.

Ämnesord och genrebeteckningar

MEDICIN OCH HÄLSOVETENSKAP Hälsovetenskap Omvårdnad hsv//swe
MEDICAL AND HEALTH SCIENCES Health Sciences Nursing hsv//eng
End of life
Family caregivers
Palliative care
Web-based support
eHealth/digital support

Biuppslag (personer, institutioner, konferenser, titlar ...)

Alvariza, AnetteMarie Cederschiöld högskola,Palliativt forskningscentrum, PFC,Stockholms Sjukhem(Swepub:esh)anealv (författare)
Kreicbergs, UlrikaMarie Cederschiöld högskola,Palliativt forskningscentrum, PFC,Karolinska Institutet(Swepub:esh)ulrkre (författare)
Wallin, ViktoriaMarie Cederschiöld högskola,Palliativt forskningscentrum, PFC(Swepub:esh)vikwal (författare)
Steineck, GunnarKarolinska Institutet; Sahlgrenska Universitetssjukhuset (författare)
Holm, MajaMarie Cederschiöld högskola,Sophiahemmet Högskola,Palliativt forskningscentrum, PFC(Swepub:esh)majhol (författare)
Marie Cederschiöld högskolaPalliativt forskningscentrum, PFC (creator_code:org_t)

Sammanhörande titlar

Ingår i:Palliative & Supportive Care: Cambridge University Press1478-95151478-9523

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Av författaren/redakt...: Häger Tibell, Lo ...; Alvariza, Anette; Kreicbergs, Ulri ...; Wallin, Viktoria; Steineck, Gunnar; Holm, Maja

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MEDICIN OCH HÄLSOVETENSKAP: MEDICIN OCH HÄLS ...; och Hälsovetenskap; och Omvårdnad

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Av lärosätet: Sophiahemmet Högskola; Marie Cederschiöld högskola; Karolinska Institutet

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