Return of genomic results does not motivate intent to participate in research for all: Perspectives across 22 countries

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MARC

Fältnamn	Indikatorer	Metadata
000		09240naa a2201225 4500
001		oai:research.chalmers.se:4db4c6c5-98da-4fbd-a4c1-854c577b1bec
003		SwePub
008		220211s2022 \| \|\|\|\|\|\|\|\|\|\|\|000 \|\|eng\|
009		oai:lup.lub.lu.se:f357daa6-926e-4708-a3e5-a2733612c86c
009		oai:prod.swepub.kib.ki.se:149678417
009		oai:DiVA.org:uu-468511
024	7	a https://research.chalmers.se/publication/5286272 URI
024	7	a https://doi.org/10.1016/j.gim.2022.01.0022 DOI
024	7	a https://lup.lub.lu.se/record/f357daa6-926e-4708-a3e5-a2733612c86c2 URI
024	7	a http://kipublications.ki.se/Default.aspx?queryparsed=id:1496784172 URI
024	7	a https://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-4685112 URI
040		a (SwePub)cthd (SwePub)lud (SwePub)kid (SwePub)uu
041		a engb eng
042		9 SwePub
072	7	a art2 swepub-publicationtype
072	7	a ref2 swepub-contenttype
100	1	a Milne, Richardu University Of Cambridge,University of Cambridge4 aut
245	1 0	a Return of genomic results does not motivate intent to participate in research for all: Perspectives across 22 countries
264	1	b Elsevier BV,c 2022
338		a electronic2 rdacarrier
520		a Purpose: The aim of this study was to determine how attitudes toward the return of genomic research results vary internationally. Methods: We analyzed the “Your DNA, Your Say” online survey of public perspectives on genomic data sharing including responses from 36,268 individuals across 22 low-, middle-, and high-income countries, and these were gathered in 15 languages. We analyzed how participants responded when asked whether return of results (RoR) would motivate their decision to donate DNA or health data. We examined variation across the study countries and compared the responses of participants from other countries with those from the United States, which has been the subject of the majority of research on return of genomic results to date. Results: There was substantial variation in the extent to which respondents reported being influenced by RoR. However, only respondents from Russia were more influenced than those from the United States, and respondents from 20 countries had lower odds of being partially or wholly influenced than those from the United States. Conclusion: There is substantial international variation in the extent to which the RoR may motivate people's intent to donate DNA or health data. The United States may not be a clear indicator of global attitudes. Participants’ preferences for return of genomic results globally should be considered.
650	7	a MEDICIN OCH HÄLSOVETENSKAPx Hälsovetenskapx Annan hälsovetenskap0 (SwePub)303992 hsv//swe
650	7	a MEDICAL AND HEALTH SCIENCESx Health Sciencesx Other Health Sciences0 (SwePub)303992 hsv//eng
650	7	a SAMHÄLLSVETENSKAPx Ekonomi och näringslivx Nationalekonomi0 (SwePub)502012 hsv//swe
650	7	a SOCIAL SCIENCESx Economics and Businessx Economics0 (SwePub)502012 hsv//eng
650	7	a MEDICIN OCH HÄLSOVETENSKAPx Hälsovetenskapx Folkhälsovetenskap, global hälsa, socialmedicin och epidemiologi0 (SwePub)303022 hsv//swe
650	7	a MEDICAL AND HEALTH SCIENCESx Health Sciencesx Public Health, Global Health, Social Medicine and Epidemiology0 (SwePub)303022 hsv//eng
650	7	a MEDICIN OCH HÄLSOVETENSKAPx Hälsovetenskapx Hälso- och sjukvårdsorganisation, hälsopolitik och hälsoekonomi0 (SwePub)303012 hsv//swe
650	7	a MEDICAL AND HEALTH SCIENCESx Health Sciencesx Health Care Service and Management, Health Policy and Services and Health Economy0 (SwePub)303012 hsv//eng
650	7	a MEDICIN OCH HÄLSOVETENSKAPx Medicinska och farmaceutiska grundvetenskaperx Medicinsk genetik0 (SwePub)301072 hsv//swe
650	7	a MEDICAL AND HEALTH SCIENCESx Basic Medicinex Medical Genetics0 (SwePub)301072 hsv//eng
653		a Attitudes
653		a Return of results
653		a Genomics
653		a International
653		a Data donation
653		a Attitudes
653		a Data donation
653		a Genomics
653		a International
653		a Return of results
700	1	a Morley, Katherine I.u King's College London,University of Melbourne,RAND corporation4 aut
700	1	a Almarri, Mohamed A.u Wellcome Trust Sanger Institute,Dubai Police GHQ4 aut
700	1	a Atutornu, Jeromeu Wellcome Trust4 aut
700	1	a Baranova, Elena E.u Russian Medical Academy of Continuous Professional Education (RMAPE)4 aut
700	1	a Bevan, Paulu Wellcome Trust Sanger Institute4 aut
700	1	a Cerezo, Mariau European Bioinformatics Institute,Wellcome Trust4 aut
700	1	a Cong, Yaliu Peking University4 aut
700	1	a Costa, Alessiau Wellcome Trust4 aut
700	1	a Feijao, Carolinau RAND corporation4 aut
700	1	a de Freitas, Cláudiau Universidade do Porto,University of Porto4 aut
700	1	a Fernow, Josepineu Uppsala universitet,Centrum för forsknings- och bioetik4 aut0 (Swepub:uu)josefern
700	1	a Goodhand, Peter4 aut
700	1	a Hasan, Qurratulain4 aut
700	1	a Hibino, Aikou Hirosaki University4 aut
700	1	a Houeland, Gryu Uppsala universitet,Centrum för forsknings- och bioetik4 aut
700	1	a Howard, Heidi,d 1974u Chalmers University of Technology,Lund University,Lunds universitet,Medicinsk etik,Sektion II,Institutionen för kliniska vetenskaper, Lund,Medicinska fakulteten,Medical Ethics,Section II,Department of Clinical Sciences, Lund,Faculty of Medicine4 aut0 (Swepub:lu)he1724ho
700	1	a Hussain Sheikh, Zakir4 aut
700	1	a Ingvoldstad Malmgren, Charlottau Uppsala universitet,Karolinska Institutet,Centrum för forsknings- och bioetik,Karolinska institutet4 aut0 (Swepub:uu)cin24816
700	1	a Izhevskaya, Vera L.4 aut
700	1	a Jędrzejak, Aleksandra4 aut
700	1	a Jinhong, Caou Wuhan University4 aut
700	1	a Kimura, Megumiu Hitotsubashi University4 aut
700	1	a Kleiderman, Erikau McGill University4 aut
700	1	a Liu, Keyingu Osaka University4 aut
700	1	a Mascalzoni, Deborah,d 1973-u Uppsala universitet,Centrum för forsknings- och bioetik,Institute for Biomedicine, Eurac Research, Affiliated Institute of the University of Lübeck, Bolzano, Italy4 aut0 (Swepub:uu)debma696
700	1	a Mendes, Alvarou Instituto de Biologia Molecular e Celular4 aut
700	1	a Minari, Jusaku4 aut
700	1	a Nicol, Dianneu University of Tasmania4 aut
700	1	a Niemiec, Emiliau Lund University,Lunds universitet,Medicinsk etik,Sektion II,Institutionen för kliniska vetenskaper, Lund,Medicinska fakulteten,Medical Ethics,Section II,Department of Clinical Sciences, Lund,Faculty of Medicine4 aut0 (Swepub:lu)em7154ni
700	1	a Patch, Christineu Queen Mary University of London4 aut
700	1	a Prainsack, Barbarau King's College London,Universität Wien,University of Vienna4 aut
700	1	a Rivière, Marie4 aut
700	1	a Robarts, Lauren4 aut
700	1	a Roberts, Jonathan4 aut
700	1	a Romano, Virginiau Uppsala universitet,Uppsala University,Institute for Biomedicine, Eurac Research, Affiliated Institute of the University of Lübeck, Bolzano, Italy,Centrum för forsknings- och bioetik4 aut0 (Swepub:uu)virro507
700	1	a Sheerah, Haytham A.u Osaka University4 aut
700	1	a Smith, Jamesu Wellcome Trust Sanger Institute4 aut
700	1	a Soulier, Alexandrau Uppsala universitet,Centrum för forsknings- och bioetik4 aut0 (Swepub:uu)aleso183
700	1	a Steed, Claireu Wellcome Trust Sanger Institute4 aut
700	1	a Stefansdottir, Vigdisu Landspitali University Hospital4 aut
700	1	a Tandre, Corneliau Uppsala universitet,Centrum för forsknings- och bioetik4 aut
700	1	a Thorogood, Adrianu Université du Luxembourg,University of Luxembourg,McGill University4 aut
700	1	a Voigt, Torsten H.u Rheinisch-Westfaelische Technische Hochschule Aachen,RWTH Aachen University4 aut
700	1	a Wang, Nan4 aut
700	1	a Yoshizawa, Go4 aut
700	1	a Middleton, Anna4 aut
710	2	a University Of Cambridgeb University of Cambridge4 org
773	0	t Genetics in Medicined : Elsevier BVg 24:5, s. 1120-1129q 24:5<1120-1129x 1098-3600x 1530-0366
856	4	u https://research.chalmers.se/publication/528627/file/528627_Fulltext.pdfx primaryx freey FULLTEXT
856	4	u http://www.gimjournal.org/article/S1098360022000028/pdf
856	4	u http://dx.doi.org/10.1016/j.gim.2022.01.002x freey FULLTEXT
856	4	u https://doi.org/10.1016/j.gim.2022.01.002y Fulltext
856	4	u https://uu.diva-portal.org/smash/get/diva2:1640721/FULLTEXT01.pdfx primaryx Raw objecty fulltext:print
856	4	u https://uu.diva-portal.org/smash/get/diva2:1640721/FULLTEXT02.pdfx primaryx Raw objecty fulltext:print
856	4 8	u https://research.chalmers.se/publication/528627
856	4 8	u https://doi.org/10.1016/j.gim.2022.01.002
856	4 8	u https://lup.lub.lu.se/record/f357daa6-926e-4708-a3e5-a2733612c86c
856	4 8	u http://kipublications.ki.se/Default.aspx?queryparsed=id:149678417
856	4 8	u https://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-468511

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By the author/editor: Milne, Richard; Morley, Katherin ...; Almarri, Mohamed ...; Atutornu, Jerome; Baranova, Elena ...; Bevan, Paul; show more...; Cerezo, Maria; Cong, Yali; Costa, Alessia; Feijao, Carolina; de Freitas, Cláu ...; Fernow, Josepine; Goodhand, Peter; Hasan, Qurratula ...; Hibino, Aiko; Houeland, Gry; Howard, Heidi, 1 ...; Hussain Sheikh, ...; Ingvoldstad Malm ...; Izhevskaya, Vera ...; Jędrzejak, Aleks ...; Jinhong, Cao; Kimura, Megumi; Kleiderman, Erik ...; Liu, Keying; Mascalzoni, Debo ...; Mendes, Alvaro; Minari, Jusaku; Nicol, Dianne; Niemiec, Emilia; Patch, Christine; Prainsack, Barba ...; Rivière, Marie; Robarts, Lauren; Roberts, Jonatha ...; Romano, Virginia; Sheerah, Haytham ...; Smith, James; Soulier, Alexand ...; Steed, Claire; Stefansdottir, V ...; Tandre, Cornelia; Thorogood, Adria ...; Voigt, Torsten H ...; Wang, Nan; Yoshizawa, Go; Middleton, Anna; show less...

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