Patient empowerment and its correlates in young persons with congenital heart disease

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Patient empowerment and its correlates in young persons with congenital heart disease

Acuña Mora, Mariela, 1990 (author): Gothenburg University,Göteborgs universitet,Institutionen för vårdvetenskap och hälsa,Institute of Health and Care Sciences,Institute of Health and Care Sciences, University of Gothenburg, Sweden;KU Leuven Department of Public Health and Primary Care, Belgium

Sparud Lundin, Carina, 1964 (author): Gothenburg University,Göteborgs universitet,Institutionen för vårdvetenskap och hälsa,Institute of Health and Care Sciences,Institute of Health and Care Sciences, University of Gothenburg, Sweden

Burström, Åsa (author): Karolinska Institutet,Institution for Women’s and Children’s Health, Karolinska Institute, Sweden;Department of Paediatric Cardiology, Astrid Lindgren Children’s Hospital, Sweden

Hanseus, Katarina (author): Department of Pediatric Cardiology, Skåne University Hospital, Sweden

Rydberg, Annika (author): Umeå universitet,Pediatrik,Department of Clinical Sciences, Pediatrics, Umeå University, Sweden

Moons, Philip, 1968 (author): Gothenburg University,Göteborgs universitet,Institutionen för vårdvetenskap och hälsa,Institute of Health and Care Sciences,Institute of Health and Care Sciences, University of Gothenburg, Sweden;KU Leuven Department of Public Health and Primary Care, Belgium;Department of Paediatrics and Child Health, University of Cape Town, South Africa

Bratt, Ewa-Lena, 1970 (author): Gothenburg University,Göteborgs universitet,Institutionen för vårdvetenskap och hälsa,Institute of Health and Care Sciences,Institute of Health and Care Sciences, University of Gothenburg, Sweden;Department of Pediatric Cardiology, The Queen Silvia Children’s Hospital, Sweden

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2019-03-05
2019
English.
In: European Journal of Cardiovascular Nursing. - : Oxford University Press (OUP). - 1474-5151 .- 1873-1953. ; 18:5, s. 389-398

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Journal article (peer-reviewed)

Abstract Subject headings

Objective: The objective of this study was to measure the level of empowerment and identify its correlates in young persons with congenital heart disease. Study design: Patients aged 14–18 years with congenital heart disease, and under active follow-up in one of four paediatric cardiology centres in Sweden were invited to participate in a cross-sectional study. A total of 202 young persons returned the questionnaires. Patient empowerment was measured with the Gothenburg Young Persons Empowerment Scale that allows the calculation of total and subscale scores. Univariate and multivariate linear regression analyses were undertaken to analyse possible correlates, including: sex, age, health behaviours, knowledge of congenital heart disease, quality of life, patient-reported health, congenital heart disease complexity, transition readiness and illness perception. Results: The mean empowerment score was 54.6±10.6 (scale of 15–75). Univariate analyses showed that empowerment was associated with age, quality of life, transition readiness, illness perception, health behaviours and patient-reported health (perceived physical appearance, treatment anxiety, cognitive problems and communication issues). However, multivariable linear regression analyses identified that only transition readiness (β=0.28, P<0.001) and communication (β=0.36, P<0.001) had a positive association with patient empowerment. These variables were also significantly associated with the subscale scores of the empowerment scale of knowledge and understanding (P<0.001), shared decision-making (P<0.001) and enabling others (P<0.01). The overall models’ explained variance ranged from 8% to 37%. Conclusion: Patient empowerment was associated with transition readiness and fewer problems communicating. While it is not possible to establish the directionality of the associations, interventions looking to increase empowerment could benefit from using these variables (or measurements) for evaluation purposes.

Subject headings

MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Omvårdnad (hsv//swe)
MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Nursing (hsv//eng)
MEDICIN OCH HÄLSOVETENSKAP -- Klinisk medicin -- Pediatrik (hsv//swe)
MEDICAL AND HEALTH SCIENCES -- Clinical Medicine -- Pediatrics (hsv//eng)
MEDICIN OCH HÄLSOVETENSKAP -- Klinisk medicin -- Kardiologi (hsv//swe)
MEDICAL AND HEALTH SCIENCES -- Clinical Medicine -- Cardiac and Cardiovascular Systems (hsv//eng)

Keyword

Adolescents
heart defects
congenital
correlates
patient empowerment
young persons
Adolescents

Publication and Content Type

ref (subject category)
art (subject category)

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By the author/editor: Acuña Mora, Mari ...; Sparud Lundin, C ...; Burström, Åsa; Hanseus, Katarin ...; Rydberg, Annika; Moons, Philip, 1 ...; show more...; Bratt, Ewa-Lena, ...; show less...

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MEDICAL AND HEALTH SCIENCES: MEDICAL AND HEAL ...; and Health Sciences; and Nursing

MEDICAL AND HEALTH SCIENCES: MEDICAL AND HEAL ...; and Clinical Medicin ...; and Pediatrics

MEDICAL AND HEALTH SCIENCES: MEDICAL AND HEAL ...; and Clinical Medicin ...; and Cardiac and Card ...

Articles in the publication: European Journal ...

By the university: University of Gothenburg; Umeå University; Karolinska Institutet; University of Borås

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