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The Association Between Stuttering Burden and Psychosocial Aspects of Life in Adults

Engelen, Marscha M. (author)
Language and Genetics Department, Max Planck Institute for Psycholinguistics, Nijmegen, the Netherlands
Franken, Marie-Christine J. P. (author)
Department of Otorhinolaryngology and Head and Neck Surgery, Erasmus University Medical Center, Rotterdam, the Netherlands
Stipdonk, Lottie W. (author)
Department of Otorhinolaryngology and Head and Neck Surgery, Erasmus University Medical Center, Rotterdam, the Netherlands
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Horton, Sarah E. (author)
Speech and Language, Murdoch Children's Research Institute, Melbourne, Victoria, Australia;Department of Audiology and Speech Pathology, University of Melbourne, Parkville, Victoria, Australia
Jackson, Victoria E. (author)
Population Health and Immunity Division, The Walter and Eliza Hall Institute of Medical Research, Parkville, Victoria, Australia;Department of Medical Biology, University of Melbourne, Parkville, Victoria, Australia
Reilly, Sheena (author)
Speech and Language, Murdoch Children's Research Institute, Melbourne, Victoria, Australia;Menzies Health Institute Queensland, Griffith University, Southport, Australia
Morgan, Angela T. (author)
Speech and Language, Murdoch Children's Research Institute, Melbourne, Victoria, Australia;Department of Audiology and Speech Pathology, University of Melbourne, Parkville, Victoria, Australia;Royal Children's Hospital, Melbourne, Victoria, Australia
Fisher, Simon E. (author)
Language and Genetics Department, Max Planck Institute for Psycholinguistics, Nijmegen, the Netherlands;Donders Institute for Brain, Cognition and Behaviour, Radboud University, Nijmegen, the Netherlands
van Dulmen, Sandra (author)
Högskolan i Borås,Akademin för vård, arbetsliv och välfärd,NIVEL (Netherlands Institute for Health Services Research), Utrecht, the Netherlands;Department of Primary and Community Care, Radboud Institute for Health Sciences, Radboud University Medical Center, Nijmegen, the Netherlands;Faculty of Caring Science, Work Life and Social Welfare, University of Borås, Sweden
Eising, Else (author)
Language and Genetics Department, Max Planck Institute for Psycholinguistics, Nijmegen, the Netherlands
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 (creator_code:org_t)
2024
2024
English.
In: Journal of Speech, Language and Hearing Research. - 1092-4388 .- 1558-9102. ; 67:5, s. 1385-1399
  • Journal article (peer-reviewed)
Abstract Subject headings
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  • PURPOSE: Stuttering is a speech condition that can have a major impact on a person's quality of life. This descriptive study aimed to identify subgroups of people who stutter (PWS) based on stuttering burden and to investigate differences between these subgroups on psychosocial aspects of life.METHOD: The study included 618 adult participants who stutter. They completed a detailed survey examining stuttering symptomatology, impact of stuttering on anxiety, education and employment, experience of stuttering, and levels of depression, anxiety, and stress. A two-step cluster analytic procedure was performed to identify subgroups of PWS, based on self-report of stuttering frequency, severity, affect, and anxiety, four measures that together inform about stuttering burden.RESULTS: We identified a high- (n = 230) and a low-burden subgroup (n = 372). The high-burden subgroup reported a significantly higher impact of stuttering on education and employment, and higher levels of general depression, anxiety, stress, and overall impact of stuttering. These participants also reported that they trialed more different stuttering therapies than those with lower burden.CONCLUSIONS: Our results emphasize the need to be attentive to the diverse experiences and needs of PWS, rather than treating them as a homogeneous group. Our findings also stress the importance of personalized therapeutic strategies for individuals with stuttering, considering all aspects that could influence their stuttering burden. People with high-burden stuttering might, for example, have a higher need for psychological therapy to reduce stuttering-related anxiety. People with less emotional reactions but severe speech distortions may also have a moderate to high burden, but they may have a higher need for speech techniques to communicate with more ease. Future research should give more insights into the therapeutic needs of people highly burdened by their stuttering.SUPPLEMENTAL MATERIAL: https://doi.org/10.23641/asha.25582980.

Subject headings

MEDICIN OCH HÄLSOVETENSKAP  -- Hälsovetenskap -- Omvårdnad (hsv//swe)
MEDICAL AND HEALTH SCIENCES  -- Health Sciences -- Nursing (hsv//eng)

Keyword

Människan i vården
The Human Perspective in Care

Publication and Content Type

ref (subject category)
art (subject category)

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