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LIBRIS Formathandbok  (Information om MARC21)
FältnamnIndikatorerMetadata
00007888naa a2200649 4500
001oai:DiVA.org:oru-99005
003SwePub
008220516s2022 | |||||||||||000 ||eng|
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0247 a https://urn.kb.se/resolve?urn=urn:nbn:se:oru:diva-990052 URI
0247 a https://doi.org/10.1002/pne2.120492 DOI
0247 a https://lup.lub.lu.se/record/a97a8352-da60-46f6-83f3-9240166847822 URI
0247 a https://urn.kb.se/resolve?urn=urn:nbn:se:du-414442 URI
040 a (SwePub)orud (SwePub)lud (SwePub)du
041 a engb eng
042 9 SwePub
072 7a ref2 swepub-contenttype
072 7a art2 swepub-publicationtype
1001 a Andersen, Randi Dovlandu Department of Research, Telemark Hospital, Skien, Norway; Research Center for Habilitation and Rehabilitation Services and Models (CHARM), Institute of Health and Society, University of Oslo, Oslo, Norway4 aut
2451 0a Pain burden in children with cerebral palsy (CPPain) survey :b Study protocol
264 c 2021-05-04
264 1b John Wiley & Sons,c 2022
338 a print2 rdacarrier
520 a Pain is a significant health concern for children living with cerebral palsy (CP). There are no population-level or large-scale multi-national datasets using common measures characterizing pain experience and interference (ie, pain burden) and management practices for children with CP. The aim of the CPPain survey is to generate a comprehensive understanding of pain burden and current management of pain to change clinical practice in CP. The CPPain survey is a comprehensive cross-sectional study. Researchers plan to recruit approximately 1400 children with CP (primary participants) across several countries over 6-12 months using multimodal recruitment strategies. Data will be collected from parents or guardians of children with CP (0-17 years) and from children with CP (8-17 years) who are able to self-report. Siblings (12-17 years) will be invited to participate as controls. The CPPain survey consists of previously validated and study-specific questionnaires addressing demographic and diagnostic information, pain experience, pain management, pain interference, pain coping, activity and participation in everyday life, nutritional status, mental health, health-related quality of life, and the effect of the COVID-19 pandemic on pain and access to pain care. The survey will be distributed primarily online. Data will be analyzed using appropriate statistical methods for comparing groups. Stratification will be used to investigate subgroups, and analyses will be adjusted for appropriate sociodemographic variables. The Norwegian Regional Committee for Medical and Health Research Ethics and the Research Ethics Board at the University of Minnesota in USA have approved the study. Ethics approval in Canada, Sweden, and Finland is pending. In addition to dissemination through peer-reviewed journals and conferences, findings will be communicated through the CPPain Web site (www.sthf.no/cppain), Web sites directed toward users or clinicians, social media, special interest groups, stakeholder engagement activities, articles in user organization journals, and presentations in public media.
650 7a MEDICIN OCH HÄLSOVETENSKAPx Klinisk medicinx Pediatrik0 (SwePub)302212 hsv//swe
650 7a MEDICAL AND HEALTH SCIENCESx Clinical Medicinex Pediatrics0 (SwePub)302212 hsv//eng
650 7a MEDICIN OCH HÄLSOVETENSKAPx Klinisk medicinx Neurologi0 (SwePub)302072 hsv//swe
650 7a MEDICAL AND HEALTH SCIENCESx Clinical Medicinex Neurology0 (SwePub)302072 hsv//eng
653 a cerebral palsy
653 a disability
653 a pain
653 a survey
7001 a Genik, Larau Department of Psychology, University of Guelph, Guelph, ON, Canada4 aut
7001 a Alriksson-Schmidt, Ann Iu Lund University,Lunds universitet,Ortopedi, Lund,Sektion III,Institutionen för kliniska vetenskaper, Lund,Medicinska fakulteten,CPUP - barnortopedisk forskningsgrupp,Forskargrupper vid Lunds universitet,Att leva med funktionsnedsättning: Forskning ur ett folkhälsoperspektiv,Orthopaedics (Lund),Section III,Department of Clinical Sciences, Lund,Faculty of Medicine,CPUP - Children's Orthopedics Group,Lund University Research Groups,Living with a Disability: Research from a Public Health Perspective,Department of Clinical Sciences Lund Skåne University Hospital Orthopedics Lund University Lund Sweden4 aut0 (Swepub:lu)med-aai
7001 a Anderzen-Carlsson, Agneta,d 1966-u Örebro University,Örebro universitet,Institutionen för hälsovetenskaper,Region Örebro län,University Health Care Research Center and Swedish Institute for Disability Research Faculty of Medicine and Health Örebro University Örebro Sweden4 aut0 (Swepub:oru)atan
7001 a Burkitt, Chantelu Gillette Children's Specialty Healthcare, Saint Paul, MN, USA; Department of Educational Psychology, University of Minnesota, Minneapolis, MN, USA4 aut
7001 a Bruflot, Sindre Ku Telemark Chapter of the Norwegian Cerebral Palsy Association, Skien, Norway4 aut
7001 a Chambers, Christine Tu Departments of Psychology & Neuroscience and Pediatrics, Dalhousie University, Halifax, NS, Canada; Centre for Pediatric Pain Research, IWK Health Centre, Nova Scotia, Canada4 aut
7001 a Jahnsen, Reidun Bu Research Center for Habilitation and Rehabilitation Services and Models (CHARM), Institute of Health and Society, University of Oslo, Oslo, Norway; Department of Clinical Neurosciences for Children, Oslo University Hospital, Oslo, Norway4 aut
7001 a Jeglinsky-Kankainen, Irau Department of Health and Welfare, Arcada University of Applied Sciences, Helsinki, Finland4 aut
7001 a Kildal, Olav Agau Research Center for Habilitation and Rehabilitation Services and Models (CHARM), Institute of Health and Society, University of Oslo, Oslo, Norway; Department of Child and Adolescent Health Services, Telemark Hospital Trust, Skien, Norway4 aut
7001 a Ramstad, Kjerstiu Department of Paediatric Neurology, Oslo University Hospital, Oslo, Norway4 aut
7001 a Sheriko, Jordanu Department of Pediatrics, Dalhousie University, Halifax, NS, Canada; Rehabilitation Services, IWK Health, Halifax, NS, Canada4 aut
7001 a Symons, Frank Ju Department of Educational Psychology, University of Minnesota, Minneapolis, MN, USA4 aut
7001 a Wallin, Larsu Högskolan Dalarna,Dalarna University College,Omvårdnad4 aut0 (Swepub:du)lwa
7001 a Andersen, Guro Lu The Cerebral Palsy Registry of Norway, Vestfold Hospital Trust, Tønsberg, Norway; Department of Clinical and Molecular Medicine, Faculty of Medicine and Health Sciences, Norwegian University of Science and Technology, Trondheim, Norway4 aut
7102 a Department of Research, Telemark Hospital, Skien, Norway; Research Center for Habilitation and Rehabilitation Services and Models (CHARM), Institute of Health and Society, University of Oslo, Oslo, Norwayb Department of Psychology, University of Guelph, Guelph, ON, Canada4 org
7730 t Paediatric and Neonatal Paind : John Wiley & Sonsg 4:1, s. 11-21q 4:1<11-21x 2379-5824x 2637-3807
8564 u https://doi.org/10.1002/pne2.12049y Fulltext
8564 u https://onlinelibrary.wiley.com/doi/pdfdirect/10.1002/pne2.12049
8564 u http://dx.doi.org/10.1002/pne2.12049x freey FULLTEXT
8564 u https://du.diva-portal.org/smash/get/diva2:1658647/FULLTEXT01.pdfx primaryx Raw objecty fulltext:print
8564 8u https://urn.kb.se/resolve?urn=urn:nbn:se:oru:diva-99005
8564 8u https://doi.org/10.1002/pne2.12049
8564 8u https://lup.lub.lu.se/record/a97a8352-da60-46f6-83f3-924016684782
8564 8u https://urn.kb.se/resolve?urn=urn:nbn:se:du-41444

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