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  • Linehan, ChristineUCD Centre for Disability Studies, University College Dublin, Dublin, Ireland (författare)

Exploring the prevalence and profile of epilepsy across Europe using a standard retrospective chart review : Challenges and opportunities

  • Artikel/kapitelEngelska2021

Förlag, utgivningsår, omfång ...

  • 2021-09-02
  • John Wiley & Sons,2021
  • electronicrdacarrier

Nummerbeteckningar

  • LIBRIS-ID:oai:DiVA.org:umu-189576
  • https://urn.kb.se/resolve?urn=urn:nbn:se:umu:diva-189576URI
  • https://doi.org/10.1111/epi.17057DOI
  • http://kipublications.ki.se/Default.aspx?queryparsed=id:147538254URI

Kompletterande språkuppgifter

  • Språk:engelska
  • Sammanfattning på:engelska

Ingår i deldatabas

Klassifikation

  • Ämneskategori:ref swepub-contenttype
  • Ämneskategori:art swepub-publicationtype

Anmärkningar

  • Objective: This study aimed to determine the prevalence of epilepsy in four European countries (Austria, Denmark, Ireland, and Romania) employing a standard methodology. The study was conducted under the auspices of ESBACE (European Study on the Burden and Care of Epilepsy).Methods: All hospitals and general practitioners serving a region of at least 50 000 persons in each country were asked to identify patients living in the region who had a diagnosis of epilepsy or experienced a single unprovoked seizure. Medical records were accessed, where available, to complete a standardized case report form. Data were sought on seizure frequency, seizure type, investigations, etiology, comorbidities, and use of antiseizure medication. Cases were validated in each country, and the degree of certainty was graded as definite, probable, or suspect cases.Results: From a total population of 237 757 in the four countries, 1988 (.8%) patients were identified as potential cases of epilepsy. Due to legal and ethical issues in the individual countries, medical records were available for only 1208 patients, and among these, 113 had insufficient clinical information. The remaining 1095 cases were classified as either definite (n = 706, 64.5%), probable (n = 191, 17.4%), suspect (n = 153, 14.0%), or not epilepsy (n = 45, 4.1%).Significance: Although a precise prevalence estimate could not be generated from these data, the study found a high validity of epilepsy classification among evaluated cases (95.9%). More generally, this study highlights the significant challenges facing epidemiological research methodologies that are reliant on patient consent and retrospective chart review, largely due to the introduction of data protection legislation during the study period. Documentation of the epilepsy diagnosis was, in some cases, relatively low, indicating a need for improved guidelines for assessment, follow-up, and documentation. This study highlights the need to address the concerns and requirements of recruitment sites to engage in epidemiological research.

Ämnesord och genrebeteckningar

Biuppslag (personer, institutioner, konferenser, titlar ...)

  • Benson, AilbheUCD Centre for Disability Studies, University College Dublin, Dublin, Ireland (författare)
  • Gunko, AlexUCD Centre for Disability Studies, University College Dublin, Dublin, Ireland (författare)
  • Christensen, JakobDepartment of Neurology, Aarhus University Hospital, Aarhus, Denmark (författare)
  • Sun, YuelianDepartment of Neurology, Aarhus University Hospital, Aarhus, Denmark; Department of Clinical Epidemiology, Aarhus University Hospital, Aarhus, Denmark; National Center for Register-Based Research, Department of Economics and Business Economics, Business, and Social Science, Aarhus University, Aarhus, Denmark (författare)
  • Tomson, TorbjornKarolinska Institutet (författare)
  • Marson, AnthonyInstitute of Translational Medicine, University of Liverpool, Liverpool, United Kingdom (författare)
  • Forsgren, LarsUmeå universitet,Neurovetenskaper(Swepub:umu)lafo0001 (författare)
  • Trinka, EugenDepartment of Neurology, Christian Doppler Clinic, Paracelsus Medical University and Center for Cognitive Neuroscience, Salzburg, Austria; EpiCARE European Reference Network, Salzburg, Austria; Neuroscience Institute, Christian Doppler University Hospital, Paracelsus Medical University, Salzburg, Austria; Department of Public Health, Health Services Research, and Health Technology Assessment, University for Health Sciences, Medical Informatics, and Technology, Hall in Tirol, Austria (författare)
  • Iliescu, CatrinelClinical Neurosciences Department, Carol Davila University of Medicine and Pharmacy, Bucharest, Romania; Pediatric Neurology Department, Expertise Center for Rare Diseases in Pediatric Neurology, Prof Dr Alexandru Obregia Clinical Hospital, Bucharest, Romania; EpiCARE European Reference Network, Bucharest, Romania (författare)
  • Althoehn Sonderup, JulieDepartment of Neurology, Aarhus University Hospital, Aarhus, Denmark (författare)
  • Werenberg Dreier, JulieNational Center for Register-Based Research, Department of Economics and Business Economics, Business, and Social Science, Aarhus University, Aarhus, Denmark (författare)
  • Sandu, CarmenClinical Neurosciences Department, Carol Davila University of Medicine and Pharmacy, Bucharest, Romania (författare)
  • Leanca, MadalinaClinical Neurosciences Department, Carol Davila University of Medicine and Pharmacy, Bucharest, Romania (författare)
  • Rainer, LucasDepartment of Neurology, Christian Doppler Clinic, Paracelsus Medical University and Center for Cognitive Neuroscience, Salzburg, Austria (författare)
  • Kobulashvili, TeiaDepartment of Neurology, Christian Doppler Clinic, Paracelsus Medical University and Center for Cognitive Neuroscience, Salzburg, Austria (författare)
  • Granbichler, Claudia A.Department of Neurology, Christian Doppler Clinic, Paracelsus Medical University and Center for Cognitive Neuroscience, Salzburg, Austria; Department of Neurology, Chaim Sheba Medical Center, Ramat Gan, Israel; Sacker Faculty of Medicine, Tel Aviv University, Tel Aviv, Israel (författare)
  • Delanty, NormanBeaumont Hospital, Dublin, Ireland; School of Pharmacy and Biomolecular Sciences, Royal College of Surgeons in Ireland, Ireland (författare)
  • Doherty, ColinFutureNeuro Research Centre for Rare and Chronic Diseases, Royal College of Surgeons in Ireland, Dublin, Ireland; Academic Unit of Neurology, Trinity College Dublin, Dublin, Ireland (författare)
  • Staines, AnthonySchool of Nursing, Psychotherapy, and Community Health, Dublin City University, Dublin, Ireland (författare)
  • Shahwan, AmreTemple Street Children's University Hospital, Dublin, Ireland (författare)
  • UCD Centre for Disability Studies, University College Dublin, Dublin, IrelandDepartment of Neurology, Aarhus University Hospital, Aarhus, Denmark (creator_code:org_t)

Sammanhörande titlar

  • Ingår i:Epilepsia: John Wiley & Sons62:11, s. 2651-26660013-95801528-1167

Internetlänk

Hitta via bibliotek

  • Epilepsia (Sök värdpublikationen i LIBRIS)

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