Recruitment of Adolescent Young Carers to a Psychosocial Support Intervention Study in Six European Countries: Lessons Learned from the ME-WE Project

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Barbabella, Francesco,Dr.1984-Linnéuniversitetet,Institutionen för hälso- och vårdvetenskap (HV),The Swedish Family Care Competence Centre (NKA), Sweden (författare)

Recruitment of Adolescent Young Carers to a Psychosocial Support Intervention Study in Six European Countries : Lessons Learned from the ME-WE Project

Artikel/kapitelEngelska2023

Förlag, utgivningsår, omfång ...

2023-03-14
MDPI,2023
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LIBRIS-ID:oai:DiVA.org:lnu-119739
https://urn.kb.se/resolve?urn=urn:nbn:se:lnu:diva-119739URI
https://doi.org/10.3390/ijerph20065074DOI

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Språk:engelska
Sammanfattning på:engelska

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Anmärkningar

Young carers provide a substantial amount of care to family members and support to friends, yet their situation has not been actively addressed in research and policy in many European countries or indeed globally. Awareness of their situation by professionals and among children and young carers themselves remains low overall. Thus, young carers remain a largely hidden group within society. This study reports and analyses the recruitment process in a multi-centre intervention study offering psychosocial support to adolescent young carers (AYCs) aged 15–17 years. A cluster-randomised controlled trial was designed, with recruitment taking place in Italy, the Netherlands, Slovenia, Sweden, Switzerland and the United Kingdom exploiting various channels, including partnerships with schools, health and social services and carers organisations. In total, 478 AYCs were recruited and, after screening failures, withdrawals and initial dropouts, 217 were enrolled and started the intervention. Challenges encountered in reaching, recruiting and retaining AYCs included low levels of awareness among AYCs, a low willingness to participate in study activities, uncertainty about the prevalence of AYCs, a limited school capacity to support the recruitment; COVID-19 spreading in 2020–2021 and related restrictions. Based on this experience, recommendations are put forward for how to better engage AYCs in research.

Ämnesord och genrebeteckningar

MEDICIN OCH HÄLSOVETENSKAP Hälsovetenskap hsv//swe
MEDICAL AND HEALTH SCIENCES Health Sciences hsv//eng
young carers; adolescent young carers; recruitment; co-design; COVID-19; psychosocial support; cluster-randomised controlled trial; intervention study
Health and Caring Sciences
Hälsovetenskap

Biuppslag (personer, institutioner, konferenser, titlar ...)

Magnusson, Lennart,1961-Linnéuniversitetet,Institutionen för hälso- och vårdvetenskap (HV),The Swedish Family Care Competence Centre (NKA), Sweden(Swepub:lnu)qmale (författare)
Boccaletti, LiciaAnziani e Non Solo Società Cooperativa Sociale, Italy (författare)
Casu, GiuliaAnziani e Non Solo Società Cooperativa Sociale, Italy;University of Bologna, Italy (författare)
Hlebec, ValentinaUniversity of Ljubljana, Slovenia (författare)
Bolko, IrenaUniversity of Ljubljana, Slovenia (författare)
Lewis, FeylynVanderbilt University, USA;University of Sussex, UK (författare)
Hoefman, RenskeThe Netherlands Institute for Social Research (SCP), Netherlands (författare)
Brolin, Rosita,1958-Linnéuniversitetet,Institutionen för hälso- och vårdvetenskap (HV),The Swedish Family Care Competence Centre (NKA), Sweden(Swepub:lnu)robraa (författare)
Santini, SaraIRCCS INRCA-National Institute of Health and Science on Aging, Italy (författare)
Socci, MarcoIRCCS INRCA-National Institute of Health and Science on Aging, Italy (författare)
D’Amen, BarbaraIRCCS INRCA-National Institute of Health and Science on Aging, Italy (författare)
de Jong, YvonneVilans—The National Centre of Expertise for Long-Term Care in The Netherlands, Netherlands (författare)
Bouwman, TamaraVilans—The National Centre of Expertise for Long-Term Care in The Netherlands, Netherlands (författare)
de Jong, NynkeVilans—The National Centre of Expertise for Long-Term Care in The Netherlands, Netherlands (författare)
Leu, AgnesUniversity of Basel, Switzerland;Kalaidos University of Applied Sciences, Switzerland (författare)
Phelps, DanielKalaidos University of Applied Sciences, Switzerland; University of Winchester, UK (författare)
Guggiari, ElenaKalaidos University of Applied Sciences, Switzerland (författare)
Wirth, AlexandraKalaidos University of Applied Sciences, Switzerland; Careum, Switzerland (författare)
Morgan, VickyCarers Trust, UK (författare)
Becker, SaulUniversity of Sussex, UK;Manchester Metropolitan University, UK (författare)
Hanson, Elizabeth,1961-Linnéuniversitetet,Institutionen för hälso- och vårdvetenskap (HV),The Swedish Family Care Competence Centre (NKA), Sweden(Swepub:lnu)vhael (författare)
LinnéuniversitetetInstitutionen för hälso- och vårdvetenskap (HV) (creator_code:org_t)

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Ingår i:International Journal of Environmental Research and Public Health: MDPI20:61661-78271660-4601

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