Crossing the border: Different ways cancer patients, family members and physicians experience information in the transition to the late palliative phase

↓ Direkt till sidans innehåll
↓ Direkt till sidans sekundära innehåll (sidomenyn)

Sökning: WFRF:(Strang Peter) > Crossing the border :

Friedrichsen, Maria,1966-Östergötlands Läns Landsting,Linköpings universitet,Hälsa, Aktivitet, Vård (HAV),Hälsouniversitetet,LAH/Linnéa-enheten (författare)

Crossing the border : Different ways cancer patients, family members and physicians experience information in the transition to the late palliative phase

BokEngelska2002

Förlag, utgivningsår, omfång ...

Linköping :Linköping University Electronic Press,2002
68 s.
electronicrdacarrier

Nummerbeteckningar

LIBRIS-ID:oai:DiVA.org:liu-5231
ISBN:9173731668
https://urn.kb.se/resolve?urn=urn:nbn:se:liu:diva-5231URI

Kompletterande språkuppgifter

Språk:engelska
Sammanfattning på:engelska

Ingår i deldatabas

SwePubSwePub

Klassifikation

Ämneskategori:vet swepub-contenttype
Ämneskategori:dok swepub-publicationtype

Serie

Linköping University Medical Dissertations,0345-0082 ;727

Anmärkningar

On the day of the public defence the status of the article II was: In press and the title was: Patient interpretation of verbal expressions when given information about ending cancer treatment.; the status of article V was: Submitted.
Information in the transition to the late palliative phase is not a well-studied area, especially not from the perspective of patients and family members. The aim of this thesis was to describe how cancer patients, family members and physicians experience information during the transition from a curative or early palliative phase to a late palliative phase, i.e. when tumour-specific treatment could not be offered. Cancer patients (n=30) admitted to palliative hospital based home care, family members (n=20) of cancer patients, and physicians (n=30) working with cancer patients in different settings were included in order to create a maximum variation sampling.Tape-recorded, semi-structured interviews and qualitative, phenomenographic analyses were done in all the studies.Patients described the physician as an expert (study I), an important person during this event, despite characterising him/her in different ways ranging from the empathetic professional to the rough and ready expert. Their relationship with the physician was also stressed. Their own resources, i.e. a sense of well being, a sense of security and individual strength, and their previous knowledge, were important components regarding their ability to take part in the communication (study II). Patients interpret words and phrases carefully and can perceive them as forewarnings, as being emotionally trying, and as fortifying and strengthening (study III). The overall message could be interpreted as either focused on quality if life, on treatment or on death and threat.Family members wanted to protect the patient during this period and could be very active and prominent in their protective role (study IV). However, other family members described themselves as being in the background more or less involuntarily. Family members also felt that there were expectations regarding their behaviour, either that they should take over in terms of communication, or that they should restrict their participation. When giving information, the physicians had a clear goal - to make the patient understand while being as considerate toward the patient as possible. However, the strategies for reaching this goal differed and included: explaining and convincing, softening the impact and vaguely suggesting, preparing and adapting. Some physicians had a main strategy while others mixed different strategies depending on the context.The experience of receiving and providing information about discontinuing tumour specific treatment is like crossing a border, where patients experience the behaviour of the physician and the words they express of great significance. Family members assume the role of protectors. Physicians use different strategies in order to help patients cross the border.

Ämnesord och genrebeteckningar

communication
information
patient-physician relationship
family
prognosis
palliative care
cancer
MEDICINE
MEDICIN

Biuppslag (personer, institutioner, konferenser, titlar ...)

Strang, PeterLinköpings universitet,Institutionen för biomedicin och kirurgi,Hälsouniversitetet(Swepub:liu)petst78 (preses)
Birgegård, GunnarInstitutionen för medicinska vetenskaper, Uppsala universitet (opponent)
Linköpings universitetHälsa, Aktivitet, Vård (HAV) (creator_code:org_t)

Internetlänk

Hitta via bibliotek

Crossing the border Different ways cancer patients, family members and physician... (Sök publikationen i LIBRIS)

Till lärosätets databas

Hitta mer i SwePub

Av författaren/redakt...: Friedrichsen, Ma ...; Strang, Peter; Birgegård, Gunna ...

Delar i serien: Linköping Univer ...

Av lärosätet: Linköpings universitet

Sök utanför SwePub

Sök vidare i:: Google; Google Book Search; Google Scholar

Kungliga biblioteket hanterar dina personuppgifter i enlighet med EU:s dataskyddsförordning (2018), GDPR. Läs mer om hur det funkar här.
Så här hanterar KB dina uppgifter vid användning av denna tjänst.

LIBRIS.kb.se