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  • Bakker, Marian K.University Medical Center Groningen,University of Groningen (författare)

Analysis of Mortality among Neonates and Children with Spina Bifida : An International Registry-Based Study, 2001-2012

  • Artikel/kapitelEngelska2019

Förlag, utgivningsår, omfång ...

  • 2019-10-21
  • Wiley,2019
  • 13 s.

Nummerbeteckningar

  • LIBRIS-ID:oai:lup.lub.lu.se:1c95bc12-7f67-437d-b3f5-5b27d0f9cd6f
  • https://lup.lub.lu.se/record/1c95bc12-7f67-437d-b3f5-5b27d0f9cd6fURI
  • https://doi.org/10.1111/ppe.12589DOI

Kompletterande språkuppgifter

  • Språk:engelska
  • Sammanfattning på:engelska

Ingår i deldatabas

Klassifikation

  • Ämneskategori:art swepub-publicationtype
  • Ämneskategori:ref swepub-contenttype

Anmärkningar

  • Background: Medical advancements have resulted in better survival and life expectancy among those with spina bifida, but a significantly increased risk of perinatal and postnatal mortality for individuals with spina bifida remains. Objectives: To examine stillbirth and infant and child mortality among those affected by spina bifida using data from multiple countries. Methods: We conducted an observational study, using data from 24 population- and hospital-based surveillance registries in 18 countries contributing as members of the International Clearinghouse for Birth Defects Surveillance and Research (ICBDSR). Cases of spina bifida that resulted in livebirths or stillbirths from 20 weeks' gestation or elective termination of pregnancy for fetal anomaly (ETOPFA) were included. Among liveborn spina bifida cases, we calculated mortality at different ages as number of deaths among liveborn cases divided by total number of liveborn cases with spina bifida. As a secondary outcome measure, we estimated the prevalence of spina bifida per 10 000 total births. The 95% confidence interval for the prevalence estimate was estimated using the Poisson approximation of binomial distribution. Results: Between years 2001 and 2012, the overall first-week mortality proportion was 6.9% (95% CI 6.3, 7.7) and was lower in programmes operating in countries with policies that allowed ETOPFA compared with their counterparts (5.9% vs. 8.4%). The majority of first-week mortality occurred on the first day of life. In programmes where information on long-term mortality was available through linkage to administrative databases, survival at 5 years of age was 90%-96% in Europe, and 86%-96% in North America. Conclusions: Our multi-country study showed a high proportion of stillbirth and infant and child deaths among those with spina bifida. Effective folic acid interventions could prevent many cases of spina bifida, thereby preventing associated childhood morbidity and mortality.

Ämnesord och genrebeteckningar

Biuppslag (personer, institutioner, konferenser, titlar ...)

  • Kancherla, VijayaEmory University (författare)
  • Canfield, Mark A.Texas Department of State Health Services (författare)
  • Bermejo-Sanchez, EvaCarlos III Health Institute (författare)
  • Cragan, Janet D.Centers For Disease Control And Prevention (författare)
  • Dastgiri, SaeedTabriz University of Medical Sciences (författare)
  • De Walle, Hermien E.K.University of Groningen,University Medical Center Groningen (författare)
  • Feldkamp, Marcia L.University of Utah,Utah Birth Defect Network (UBDN) (författare)
  • Groisman, BorisNational Center of Medical Genetics (CENAGEM) (författare)
  • Gatt, MiriamDirectorate for Health Information and Research (författare)
  • Hurtado-Villa, PaulaPontificia Universidad Javeriana, Cali (författare)
  • Kallen, KarinLund University,Lunds universitet,Miljöepidemiologi,Forskargrupper vid Lunds universitet,Environmental Epidemiology,Lund University Research Groups,Socialstyrelsen / Swedish National Board of Health and Welfare(Swepub:lu)anat-kka (författare)
  • Landau, DaniellaSoroka Medical Center (författare)
  • Lelong, NathalieParis Descartes University (författare)
  • Lopez Camelo, Jorge S.Centro de Educación Médica e Investigaciones Clínicas (CEMIC) (författare)
  • Martínez, LauraUniversidad Autonoma de Nuevo Leon (författare)
  • Morgan, MargerySingleton Hospital (författare)
  • Mutchinick, Osvaldo M.Instituto Nacional de Ciencias Médicas y Nutrición (författare)
  • Nembhard, Wendy N.University of Arkansas for Medical Sciences (författare)
  • Pierini, AnnaTuscany Gabriele Monasterio Foundation,Tuscany Registry of Congenital Defects (författare)
  • Rissmann, AnkeOtto von Guericke University Magdeburg (författare)
  • Sipek, AntoninThomayer Hospital (författare)
  • Szabova, ElenaSlovak Medical University (författare)
  • Tagliabue, GiovannaIstituto Nazionale dei Tumori (författare)
  • Wertelecki, WladimirOmni-Net for Children International Charitable Fund Rivne (författare)
  • Zarante, IgnacioPontificia Universidad Javeriana (författare)
  • Mastroiacovo, PierpaoloInternational Clearinghouse for Birth Defects Surveillance and Research (författare)
  • University Medical Center GroningenUniversity of Groningen (creator_code:org_t)

Sammanhörande titlar

  • Ingår i:Paediatric and Perinatal Epidemiology: Wiley33:6, s. 436-4480269-50221365-3016

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