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WFRF:(Walle L. E.)
 

Sökning: WFRF:(Walle L. E.) > Analysis of Mortali...

LIBRIS Formathandbok  (Information om MARC21)
FältnamnIndikatorerMetadata
00006187naa a2200697 4500
001oai:lup.lub.lu.se:1c95bc12-7f67-437d-b3f5-5b27d0f9cd6f
003SwePub
008191115s2019 | |||||||||||000 ||eng|
0247 a https://lup.lub.lu.se/record/1c95bc12-7f67-437d-b3f5-5b27d0f9cd6f2 URI
0247 a https://doi.org/10.1111/ppe.125892 DOI
040 a (SwePub)lu
041 a engb eng
042 9 SwePub
072 7a art2 swepub-publicationtype
072 7a ref2 swepub-contenttype
1001 a Bakker, Marian K.u University Medical Center Groningen,University of Groningen4 aut
2451 0a Analysis of Mortality among Neonates and Children with Spina Bifida : An International Registry-Based Study, 2001-2012
264 c 2019-10-21
264 1b Wiley,c 2019
300 a 13 s.
520 a Background: Medical advancements have resulted in better survival and life expectancy among those with spina bifida, but a significantly increased risk of perinatal and postnatal mortality for individuals with spina bifida remains. Objectives: To examine stillbirth and infant and child mortality among those affected by spina bifida using data from multiple countries. Methods: We conducted an observational study, using data from 24 population- and hospital-based surveillance registries in 18 countries contributing as members of the International Clearinghouse for Birth Defects Surveillance and Research (ICBDSR). Cases of spina bifida that resulted in livebirths or stillbirths from 20 weeks' gestation or elective termination of pregnancy for fetal anomaly (ETOPFA) were included. Among liveborn spina bifida cases, we calculated mortality at different ages as number of deaths among liveborn cases divided by total number of liveborn cases with spina bifida. As a secondary outcome measure, we estimated the prevalence of spina bifida per 10 000 total births. The 95% confidence interval for the prevalence estimate was estimated using the Poisson approximation of binomial distribution. Results: Between years 2001 and 2012, the overall first-week mortality proportion was 6.9% (95% CI 6.3, 7.7) and was lower in programmes operating in countries with policies that allowed ETOPFA compared with their counterparts (5.9% vs. 8.4%). The majority of first-week mortality occurred on the first day of life. In programmes where information on long-term mortality was available through linkage to administrative databases, survival at 5 years of age was 90%-96% in Europe, and 86%-96% in North America. Conclusions: Our multi-country study showed a high proportion of stillbirth and infant and child deaths among those with spina bifida. Effective folic acid interventions could prevent many cases of spina bifida, thereby preventing associated childhood morbidity and mortality.
650 7a MEDICIN OCH HÄLSOVETENSKAPx Klinisk medicinx Pediatrik0 (SwePub)302212 hsv//swe
650 7a MEDICAL AND HEALTH SCIENCESx Clinical Medicinex Pediatrics0 (SwePub)302212 hsv//eng
650 7a MEDICIN OCH HÄLSOVETENSKAPx Hälsovetenskapx Folkhälsovetenskap, global hälsa, socialmedicin och epidemiologi0 (SwePub)303022 hsv//swe
650 7a MEDICAL AND HEALTH SCIENCESx Health Sciencesx Public Health, Global Health, Social Medicine and Epidemiology0 (SwePub)303022 hsv//eng
653 a epidemiology
653 a mortality
653 a registry-based study
653 a spina bifida
7001 a Kancherla, Vijayau Emory University4 aut
7001 a Canfield, Mark A.u Texas Department of State Health Services4 aut
7001 a Bermejo-Sanchez, Evau Carlos III Health Institute4 aut
7001 a Cragan, Janet D.u Centers For Disease Control And Prevention4 aut
7001 a Dastgiri, Saeedu Tabriz University of Medical Sciences4 aut
7001 a De Walle, Hermien E.K.u University of Groningen,University Medical Center Groningen4 aut
7001 a Feldkamp, Marcia L.u University of Utah,Utah Birth Defect Network (UBDN)4 aut
7001 a Groisman, Borisu National Center of Medical Genetics (CENAGEM)4 aut
7001 a Gatt, Miriamu Directorate for Health Information and Research4 aut
7001 a Hurtado-Villa, Paulau Pontificia Universidad Javeriana, Cali4 aut
7001 a Kallen, Karinu Lund University,Lunds universitet,Miljöepidemiologi,Forskargrupper vid Lunds universitet,Environmental Epidemiology,Lund University Research Groups,Socialstyrelsen / Swedish National Board of Health and Welfare4 aut0 (Swepub:lu)anat-kka
7001 a Landau, Daniellau Soroka Medical Center4 aut
7001 a Lelong, Nathalieu Paris Descartes University4 aut
7001 a Lopez Camelo, Jorge S.u Centro de Educación Médica e Investigaciones Clínicas (CEMIC)4 aut
7001 a Martínez, Laurau Universidad Autonoma de Nuevo Leon4 aut
7001 a Morgan, Margeryu Singleton Hospital4 aut
7001 a Mutchinick, Osvaldo M.u Instituto Nacional de Ciencias Médicas y Nutrición4 aut
7001 a Nembhard, Wendy N.u University of Arkansas for Medical Sciences4 aut
7001 a Pierini, Annau Tuscany Gabriele Monasterio Foundation,Tuscany Registry of Congenital Defects4 aut
7001 a Rissmann, Ankeu Otto von Guericke University Magdeburg4 aut
7001 a Sipek, Antoninu Thomayer Hospital4 aut
7001 a Szabova, Elenau Slovak Medical University4 aut
7001 a Tagliabue, Giovannau Istituto Nazionale dei Tumori4 aut
7001 a Wertelecki, Wladimiru Omni-Net for Children International Charitable Fund Rivne4 aut
7001 a Zarante, Ignaciou Pontificia Universidad Javeriana4 aut
7001 a Mastroiacovo, Pierpaolou International Clearinghouse for Birth Defects Surveillance and Research4 aut
7102 a University Medical Center Groningenb University of Groningen4 org
7730 t Paediatric and Perinatal Epidemiologyd : Wileyg 33:6, s. 436-448q 33:6<436-448x 0269-5022x 1365-3016
8564 u http://dx.doi.org/10.1111/ppe.12589x freey FULLTEXT
8564 u https://onlinelibrary.wiley.com/doi/pdfdirect/10.1111/ppe.12589
8564 8u https://lup.lub.lu.se/record/1c95bc12-7f67-437d-b3f5-5b27d0f9cd6f
8564 8u https://doi.org/10.1111/ppe.12589

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