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LIBRIS Formathandbok  (Information om MARC21)
FältnamnIndikatorerMetadata
00003859naa a2200493 4500
001oai:lup.lub.lu.se:c6166ccf-8904-4768-b90a-462f3de98399
003SwePub
008160401s2015 | |||||||||||000 ||eng|
0247 a https://lup.lub.lu.se/record/54030882 URI
0247 a https://doi.org/10.1002/pbc.253102 DOI
040 a (SwePub)lu
041 a engb eng
042 9 SwePub
072 7a art2 swepub-publicationtype
072 7a ref2 swepub-contenttype
1001 a Brown, Morven C.4 aut
2451 0a The Views of European Clinicians on Guidelines for Long-Term Follow-Up of Childhood Cancer Survivors
264 c 2014-11-08
264 1b Wiley,c 2015
520 a Background. Evidence-based guidelines are needed to guide effective long-term follow-up (LTFU) of childhood cancer survivors (CCS) at risk of late adverse effects (LAEs). We aimed to ascertain the use of LTFU guidelines throughout Europe, and seek views on the need for pan-European LTFU guidelines. Procedures. One expert clinician from each of 44 European countries was invited to participate in an online survey. Information was sought regarding the use and content of LTFU guidelines in the respondent's centre and country, and their views about developing pan-European LTFU guidelines. Results. Thirty-one countries (70%) responded, including 24 of 26 full EU countries (92%). LTFU guidelines were implemented nationally in 17 countries (55%). All guidelines included recommendations about physical LAEs, specific risk groups and frequency of surveillance, and the majority about psychosocial LAEs (70%), and healthy lifestyle promotion (65%). A minority of guidelines described recommendations about transition to age-appropriate LTFU services (22%), where LTFU should be performed (22%) and by whom (30%). Most respondents (94%) agreed on the need for pan-European LTFU guidelines, specifically including recommendations about surveillance for specific physical LAEs (97%), action to be taken if a specific LAE is detected (90%), minimum requirements for LTFU (93%), transition and health promotion (both 87%). Conclusions. Guidelines are not universally used throughout Europe. However, there is strong support for developing pan-European LTFU guidelines for CCS. PanCareSurFup (www.pancare.eu) will collaborate with partners to develop such guidelines, including recommendations for hitherto relatively neglected topics, such as minimum LTFU requirements, transition and health promotion. Pediatr Blood Cancer 2015;62:322-328. (C) 2014 Wiley Periodicals, Inc.
650 7a MEDICIN OCH HÄLSOVETENSKAPx Klinisk medicinx Pediatrik0 (SwePub)302212 hsv//swe
650 7a MEDICAL AND HEALTH SCIENCESx Clinical Medicinex Pediatrics0 (SwePub)302212 hsv//eng
653 a adolescent
653 a adverse effects
653 a child
653 a neoplasms
653 a practice guideline
653 a survivors
7001 a Levitt, Gillian A.4 aut
7001 a Frey, Eva4 aut
7001 a Bardi, Edit4 aut
7001 a Haupt, Riccardo4 aut
7001 a Hjorth, Larsu Lund University,Lunds universitet,Pediatrik, Lund,Sektion V,Institutionen för kliniska vetenskaper, Lund,Medicinska fakulteten,Paediatrics (Lund),Section V,Department of Clinical Sciences, Lund,Faculty of Medicine4 aut0 (Swepub:lu)pedi-lhj
7001 a Kremer, Leontien4 aut
7001 a Kuehni, Claudia E.4 aut
7001 a Lettner, Christina4 aut
7001 a Mulder, Renee L.4 aut
7001 a Michel, Gisela4 aut
7001 a Skinner, Roderick4 aut
7102 a Pediatrik, Lundb Sektion V4 org
7730 t Pediatric Blood & Cancerd : Wileyg 62:2, s. 322-328q 62:2<322-328x 1545-5017x 1545-5009
8564 u http://dx.doi.org/10.1002/pbc.25310y FULLTEXT
8564 8u https://lup.lub.lu.se/record/5403088
8564 8u https://doi.org/10.1002/pbc.25310

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