Burnout in parents of chronically ill children

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Fältnamn	Indikatorer	Metadata
000		04687nam a2200469 4500
001		oai:DiVA.org:oru-47391
003		SwePub
008		160113s2016 \| \|\|\|\|\|\|\|\|\|\|\|000 \|\|eng\|
020		a 9789175291161q print
024	7	a https://urn.kb.se/resolve?urn=urn:nbn:se:oru:diva-473912 URI
040		a (SwePub)oru
041		a engb eng
042		9 SwePub
072	7	a vet2 swepub-contenttype
072	7	a dok2 swepub-publicationtype
100	1	a Lindström, Caisa,d 1955-u Örebro universitet,Institutionen för medicinska vetenskaper4 aut0 (Swepub:oru)cslm
245	1 0	a Burnout in parents of chronically ill children
264	1	a Örebro :b Örebro university,c 2016
300		a 101 s.
338		a electronic2 rdacarrier
490	0	a Örebro Studies in Medicine,x 1652-4063 ;v 131
520		a Parents of children with a chronic disease are usually highly involved in their child’s treatment and may be affected by the heavy demands and constant stress. This can increase the risk of developing burnout, which is an individual reaction to long-term stress consisting of symptoms associated with emotional exhaustion, as well as physical and cognitive fatigue. The overall aim was to estimate the prevalence of burnout in parents of children with Type 1 Diabetes Mellitus (T1DM) and inflammatory bowel disease (IBD) (paper I), identify the risk factors associated with parenting a child with T1DM (paper II), explore how mothers suffering from burnout describe their mothering of a child with diabetes, with special focus on their need for control and Performance-based self-esteem (PBSE) (paper IV), and to evaluate the effect of a group intervention aimed at reducing stress-related symptoms (paper III). A total of 251 parents of children with T1DM, 38 parents of children with IBD and 124 parents of healthy children participated in a population-based study (I, II). The validated Shirom-Melamed Burnout Questionnaire (SMBQ) was used to assess burnout. 16 parents (SMBQ ≥3.75) participated in a group intervention and were evaluated for changes in SMBQ and PBSE (III). A total of 21 mothers of children with T1DM who scored for clinical burnout (SMBQ) participated in a qualitative study. Semi-structured interviews were conducted and Inductive content analysis was used (IV). In the study group 36.0% parents of children with a chronic disease scored for clinical burnout (SMBQ ≥3.75) compared to 20.2% of the reference parents (p=0.001) with a preponderance of mothers compared to fathers, 42% vs. 20.5% (p=0.001), respectively (I). Less support from the social network, sleep disturbances and lack of personal leisure time and recovery seem to be important risk factors for clinical burnout in parents of children with T1DM, especially mothers (II). Mothers’ experiences of mothering a child with T1DM were interpreted as one theme; Mission impossible, illustrating the extremely difficult circumstances under which they bring up the child with diabetes to adulthood (IV). Parents’ subjective evaluation of the intervention group was mainly positive and SMBQ (p=0.01) and PBSE scale (p= 0.04) measurements were significantly reduced 6 months after completion of the intervention (III). It is important to pay attention to how parents and especially mothers experience their daily life in order to support those who are at risk of developing burnout.
650	7	a MEDICIN OCH HÄLSOVETENSKAPx Klinisk medicinx Allmänmedicin0 (SwePub)302242 hsv//swe
650	7	a MEDICAL AND HEALTH SCIENCESx Clinical Medicinex General Practice0 (SwePub)302242 hsv//eng
653		a Burnout
653		a long-term stress
653		a parents
653		a children
653		a chronic illness
653		a T1DM
653		a IBD
653		a intervention group
653		a Family Medicine
653		a Allmänmedicin
700	1	a Åman, Jan,c Professoru Örebro University4 ths0 (Swepub:oru)jnaa
700	1	a Lindahl Norberg, Annikau Centre for occupational and Environmental Medicine, Stockholm County Council, Stockholm, Sweden; Karolinska Institute, Stockholm, Sweden4 ths
700	1	a Anderzén Carlsson, Agneta,c Docentu Örebro universitet,Institutionen för hälsovetenskaper4 ths0 (Swepub:oru)atan
700	1	a Sparud Lundin, Carina,c Professoru Göteborgs universitet4 opn
710	2	a Örebro universitetb Institutionen för medicinska vetenskaper4 org
856	4	u https://oru.diva-portal.org/smash/get/diva2:893756/FULLTEXT01.pdfx primaryx Raw objecty fulltext
856	4	u https://oru.diva-portal.org/smash/get/diva2:893756/SPIKBLAD01.pdfy spikblad
856	4 8	u https://urn.kb.se/resolve?urn=urn:nbn:se:oru:diva-47391

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