Engagement in family activities: a quantitative, comparative study of children with profound intellectual and multiple disabilities and children with typical development

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Fältnamn	Indikatorer	Metadata
000		04082naa a2200457 4500
001		oai:DiVA.org:hj-22830
003		SwePub
008		131219s2013 \| \|\|\|\|\|\|\|\|\|\|\|000 \|\|eng\|
009		oai:DiVA.org:mdh-21607
024	7	a https://urn.kb.se/resolve?urn=urn:nbn:se:hj:diva-228302 URI
024	7	a https://doi.org/10.1111/cch.120442 DOI
024	7	a https://urn.kb.se/resolve?urn=urn:nbn:se:mdh:diva-216072 URI
040		a (SwePub)hjd (SwePub)mdh
041		a engb eng
042		9 SwePub
072	7	a ref2 swepub-contenttype
072	7	a art2 swepub-publicationtype
100	1	a Axelsson, Anna Karinu Jönköping University,HHJ. CHILD,Hälsohögskolan i Jönköping,CHILD4 aut0 (Swepub:hj)axeann
245	1 0	a Engagement in family activities :b a quantitative, comparative study of children with profound intellectual and multiple disabilities and children with typical development
264		c 2013-06-13
264	1	b Wiley,c 2013
338		a print2 rdacarrier
500		a Special Issue: Participation of children with disabilities: Measuring subjective and objective outcomes
520		a BackgroundParticipation is known to be of great importance for children's development and emotional well-being as well as for their families. In the International Classification of Functioning, Disability and Health – Children and Youth version participation is defined as a person's ‘involvement in a life situation’. Engagement is closely related to involvement and can be seen as expressions of involvement or degree of involvement within a situation. This study focuses on children's engagement in family activities; one group of families with a child with profound intellectual and multiple disabilities (PIMD) and one group of families with children with typical development (TD) were compared.MethodsA descriptive study using questionnaires. Analyses were mainly performed by using Mann–Whitney U-test and Spearman's rank correlation test.ResultsEngagement in family activities differed in the two groups of children. The children with PIMD had a lower level of engagement in most family activities even though the activities that engaged the children to a higher or lesser extent were the same in both groups. Child engagement was found to correlate with family characteristics mostly in the children with TD and in the children with PIMD only negative correlations occurred. In the children with PIMD child engagement correlated with cognition in a high number of listed family activities and the children had a low engagement in routines in spite of these being frequently occurring activities.ConclusionsLevel of engagement in family activities in the group of children with PIMD was lower compared with that in the group of children with TD. Families with a child with PIMD spend much time and effort to adapt family living patterns to the child's functioning.
650	7	a SAMHÄLLSVETENSKAPx Psykologi0 (SwePub)5012 hsv//swe
650	7	a SOCIAL SCIENCESx Psychology0 (SwePub)5012 hsv//eng
650	7	a SAMHÄLLSVETENSKAPx Utbildningsvetenskap0 (SwePub)5032 hsv//swe
650	7	a SOCIAL SCIENCESx Educational Sciences0 (SwePub)5032 hsv//eng
653		a child disability
653		a comparison
653		a engagement
653		a family activities
653		a participation
653		a profound intellectual and multiple disabilities
700	1	a Granlund, Matsu Jönköping University,HHJ. CHILD,HLK, CHILD,Hälsohögskolan i Jönköping,CHILD4 aut0 (Swepub:hj)gmat
700	1	a Wilder, Jennyu Mälardalens högskola,Jönköping University,HHJ. CHILD,Akademin för utbildning, kultur och kommunikation,Hälsohögskolan i Jönköping,CHILD4 aut0 (Swepub:mdh)jwr01
710	2	a Jönköping Universityb HHJ. CHILD4 org
773	0	t Child Care Health and Developmentd : Wileyg 39:4, s. 523-534q 39:4<523-534x 0305-1862x 1365-2214
856	4 8	u https://urn.kb.se/resolve?urn=urn:nbn:se:hj:diva-22830
856	4 8	u https://doi.org/10.1111/cch.12044
856	4 8	u https://urn.kb.se/resolve?urn=urn:nbn:se:mdh:diva-21607

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Av författaren/redakt...: Axelsson, Anna K ...; Granlund, Mats; Wilder, Jenny

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SAMHÄLLSVETENSKAP: SAMHÄLLSVETENSKA ...; och Psykologi

SAMHÄLLSVETENSKAP: SAMHÄLLSVETENSKA ...; och Utbildningsveten ...

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Av lärosätet: Jönköping University; Mälardalens universitet

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