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Patients are doing ...
Patients are doing it for themselves : A survey on disease-specific knowledge acquisition among people with Parkinson's disease in Sweden.
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- Riggare, Sara (författare)
- Karolinska Institutet,Karolinska Institutet, Sweden
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- Höglund, Pär J (författare)
- Jönköping University,The Jönköping Academy for Improvement of Health and Welfare
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- Hvitfeldt Forsberg, Helena (författare)
- Karolinska Institutet,Karolinska Institutet, Sweden
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- Eftimovska, Elena (författare)
- Karolinska Institutet,Karolinska Institutet, Sweden
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- Svenningsson, Per (författare)
- Karolinska Institutet,Karolinska Institutet, Sweden
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- Hägglund, Maria, Lektor, 1975- (författare)
- Karolinska Institutet,Karolinska Institutet, Sweden
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(creator_code:org_t)
- 2017-04-23
- 2017
- Engelska.
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Ingår i: Health Informatics Journal. - : SAGE Publications. - 1460-4582 .- 1741-2811.
- Relaterad länk:
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https://doi.org/10.1...
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https://www.ncbi.nlm...
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https://uu.diva-port... (primary) (Raw object)
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https://journals.sag...
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https://urn.kb.se/re...
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https://doi.org/10.1...
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http://kipublication...
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https://urn.kb.se/re...
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Abstract
Ämnesord
Stäng
- Effective self-management is key to living well with Parkinson's disease and one important aspect is disease-specific knowledge. This article explores how people with Parkinson's disease in Sweden (1) acquire disease-specific knowledge and (2) use Parkinson's disease-related healthcare. Data were collected through an online survey, which had 346 respondents (16-87 years old, median age: 68 years, 51% male; time since diagnosis: 0-31 years, median time: 7 years). Our results show that disease-specific knowledge is mainly found online, especially for women with Parkinson's disease and people with Parkinson's disease of working age, that most people with Parkinson's disease in Sweden see their neurologist for 1 h or less per year and only one in two people with Parkinson's disease has regular contact with other Parkinson's disease-related healthcare professionals. We also find that people with Parkinson's disease reporting higher levels of specific knowledge also are more likely to be satisfied with the amount of time they get with their neurologist, regardless of the amount of time.
Ämnesord
- MEDICIN OCH HÄLSOVETENSKAP -- Annan medicin och hälsovetenskap (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Other Medical and Health Sciences (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Klinisk medicin -- Neurologi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Clinical Medicine -- Neurology (hsv//eng)
Nyckelord
- Parkinson
- disease-specific knowledge
- health information seeking
- online survey
- self-management
Publikations- och innehållstyp
- ref (ämneskategori)
- art (ämneskategori)
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