Support from healthcare services during transition to adulthood: experiences of young adult survivors of pediatric cancer

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Support from healthcare services during transition to adulthood : experiences of young adult survivors of pediatric cancer

Svedberg, Petra (author): Halmstad University

Einberg, Eva-Lena (author): Halmstad University and Jönköping University

Wärnestål, Pontus (author): Halmstad University

Stigmar, Jennie (author): Skåne University Hospital

Castor, Anders (author): Jönköping University

Enskär, Karin (author): Jönköping University

Nygren, Jens (author): Halmstad University

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(creator_code:org_t)

2016
2016
English.
In: European Journal of Oncology Nursing. - 1462-3889 .- 1532-2122. ; 21, s. 105-112

Related links:: https://doi.org/10.1...

Journal article (peer-reviewed)

Abstract Subject headings

PURPOSE:Improved survival rates of pediatric cancer have drawn attention on how to best facilitate long-term follow up and transition from pediatric to adult care. The transition process is multifactorial and necessitates the joint involvement of the patient, the family and the healthcare providers. The purpose of this study was to explore the experiences of support from healthcare services during the transition from adolescence to adulthood described by young adult survivors of pediatric cancer.METHODS:A mixed method with a convergent parallel design was used to evaluate the experiences of receiving support from healthcare services (eg pediatric oncology and pediatric clinic) during transition from adolescence to adulthood described by young adult survivors of pediatric cancer (n = 213) in a nation wide cross-sectional survey.RESULTS:A quantitative assessment of the experienced extent and satisfaction of support from healthcare services to handle physical, mental and social changes to continue life after the disease showed that a majority of the participants had received insufficient support. The qualitative analysis indicated a need for equal roles in healthcare to promote participation, a need to manage and process consequences of the disease, and a need for continuous support.CONCLUSIONS:During transition to adulthood, there's a need for a personalized care plan that takes a holistic approach towards supporting the young cancer survivor in managing life in the best way. Identifying and handling the individual needs of pediatric cancer survivors is important for providing the resources and support required to increase the likelihood of successful transition to adulthood.

Subject headings

MEDICAL AND HEALTH SCIENCES -- Health Sciences (hsv//eng)
MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskaper (hsv//swe)
MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Nursing (hsv//eng)
MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskaper -- Omvårdnad (hsv//swe)

Keyword

Pediatric; Cancer; Survivor; Experience; Transition

Publication and Content Type

ref (subject category)
art (subject category)

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European Journal of Oncology Nursing (Search for host publication in LIBRIS)

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Kristianstad University College

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By the author/editor: Svedberg, Petra; Einberg, Eva-Len ...; Wärnestål, Pontu ...; Stigmar, Jennie; Castor, Anders; Enskär, Karin; show more...; Nygren, Jens; show less...

About the subject

MEDICAL AND HEALTH SCIENCES: MEDICAL AND HEAL ...; and Health Sciences

MEDICAL AND HEALTH SCIENCES: MEDICAL AND HEAL ...; and Health Sciences; and Nursing

Articles in the publication: European Journal ...

By the university: Kristianstad University College

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