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FältnamnIndikatorerMetadata
00003714naa a2200457 4500
001oai:gup.ub.gu.se/201936
003SwePub
008240910s2014 | |||||||||||000 ||eng|
0247 a https://gup.ub.gu.se/publication/2019362 URI
0247 a https://doi.org/10.1159/0003588322 DOI
040 a (SwePub)gu
041 a eng
042 9 SwePub
072 7a ref2 swepub-contenttype
072 7a art2 swepub-publicationtype
1001 a Bullinger, M.4 aut
2451 0a Cross-Cultural Equivalence of the Patient- and Parent-Reported Quality of Life in Short Stature Youth (QoLISSY) Questionnaire
264 c 2014-06-11
264 1b S. Karger AG,c 2014
520 a BACKGROUND: Testing cross-cultural equivalence of patient-reported outcomes requires sufficiently large samples per country, which is difficult to achieve in rare endocrine paediatric conditions. We describe a novel approach to cross-cultural testing of the Quality of Life in Short Stature Youth (QoLISSY) questionnaire in five countries by sequentially taking one country out (TOCO) from the total sample and iteratively comparing the resulting psychometric performance. METHODS: Development of the QoLISSY proceeded from focus group discussions through pilot testing to field testing in 268 short-statured patients and their parents. To explore cross-cultural equivalence, the iterative TOCO technique was used to examine and compare the validity, reliability, and convergence of patient and parent responses on QoLISSY in the field test dataset, and to predict QoLISSY scores from clinical, socio-demographic and psychosocial variables. RESULTS: Validity and reliability indicators were satisfactory for each sample after iteratively omitting one country. Comparisons with the total sample revealed cross-cultural equivalence in internal consistency and construct validity for patients and parents, high inter-rater agreement and a substantial proportion of QoLISSY variance explained by predictors. CONCLUSION: The TOCO technique is a powerful method to overcome problems of country-specific testing of patient-reported outcome instruments. It provides an empirical support to QoLISSY's cross-cultural equivalence and is recommended for future research. (c) 2014 S. Karger AG, Basel.
650 7a MEDICIN OCH HÄLSOVETENSKAPx Klinisk medicinx Pediatrik0 (SwePub)302212 hsv//swe
650 7a MEDICAL AND HEALTH SCIENCESx Clinical Medicinex Pediatrics0 (SwePub)302212 hsv//eng
650 7a MEDICIN OCH HÄLSOVETENSKAPx Klinisk medicinx Endokrinologi och diabetes0 (SwePub)302052 hsv//swe
650 7a MEDICAL AND HEALTH SCIENCESx Clinical Medicinex Endocrinology and Diabetes0 (SwePub)302052 hsv//eng
7001 a Quitmann, J.4 aut
7001 a Silva, N.4 aut
7001 a Rohenkohl, A.4 aut
7001 a Chaplin, John,d 1955u Gothenburg University,Göteborgs universitet,Institutionen för kliniska vetenskaper, Avdelningen för pediatrik,Institute of Clinical Sciences, Department of Pediatrics4 aut0 (Swepub:gu)xchajo
7001 a DeBusk, K.4 aut
7001 a Mimoun, E.4 aut
7001 a Feigerlova, E.4 aut
7001 a Herdman, M.4 aut
7001 a Sanz, D.4 aut
7001 a Wollmann, H.4 aut
7001 a Pleil, A.4 aut
7001 a Power, M.4 aut
7102 a Göteborgs universitetb Institutionen för kliniska vetenskaper, Avdelningen för pediatrik4 org
7730 t Hormone Research in Paediatricsd : S. Karger AGg 82:1, s. 18-30q 82:1<18-30x 1663-2818x 1663-2826
8564 u https://estudogeral.sib.uc.pt/bitstream/10316/45419/1/Cross-cultural%20QoLISSY%20equivalence.pdf
8564 8u https://gup.ub.gu.se/publication/201936
8564 8u https://doi.org/10.1159/000358832

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