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Perceived needs among parents of children with a mild intellectual disability in Sweden

Huus, Karina, 1968- (author)
Jönköping University,HHJ, Avdelningen för omvårdnad,HHJ. CHILD
Olsson, Lena M. (author)
Jönköping University,HHJ. CHILD
Elgmark Andersson, Elisabeth, 1958- (author)
Jönköping University,HHJ, Avdelningen för rehabilitering,HHJ. CHILD
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Granlund, Mats (author)
Jönköping University,HHJ, Avdelningen för socialt arbete,HHJ. CHILD,HLK, CHILD
Augustine, Lilly, 1979- (author)
Jönköping University,HHJ. CHILD,Kristianstad University,Childrens and Young Peoples Health in Social Context (CYPHiSCO)
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 (creator_code:org_t)
2016-04-08
2017
English.
In: Scandinavian Journal of Disability Research. - : Taylor & Francis. - 1501-7419 .- 1745-3011. ; 19:4, s. 307-317
  • Journal article (peer-reviewed)
Abstract Subject headings
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  • Parents of children with a mild intellectual disability experience more distress and require more support than other parents. The aim was to investigate the perceived family needs of parents of children with an MID and to investigate the relationship between parents’ perceived self-efficacy in their parental role and in collaborating with professionals as well as with their perceived needs for support. Interviews were based on questionnaires to the parents of 38 children. The results revealed that parents perceived need for information, respite, and venues in which to meet other parents in similar situations. The informational needs were related to parental self-efficacy and obtaining support. A lower need for information was related to higher perceived control over services. In conclusion, it appears that professionals need to work to strengthen parents’ ability to ask for support and to express the needs. Well-informed parents will develop stronger parental self-efficacy and perceived control over services.

Subject headings

SAMHÄLLSVETENSKAP  -- Sociologi -- Socialt arbete (hsv//swe)
SOCIAL SCIENCES  -- Sociology -- Social Work (hsv//eng)
MEDICIN OCH HÄLSOVETENSKAP  -- Hälsovetenskap -- Folkhälsovetenskap, global hälsa, socialmedicin och epidemiologi (hsv//swe)
MEDICAL AND HEALTH SCIENCES  -- Health Sciences -- Public Health, Global Health, Social Medicine and Epidemiology (hsv//eng)

Keyword

Child
intellectual disability
need assessment
self-efficacy

Publication and Content Type

ref (subject category)
art (subject category)

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