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LIBRIS Formathandbok  (Information om MARC21)
FältnamnIndikatorerMetadata
00003212naa a2200481 4500
001oai:prod.swepub.kib.ki.se:146500321
003SwePub
008240701s2021 | |||||||||||000 ||eng|
024a http://kipublications.ki.se/Default.aspx?queryparsed=id:1465003212 URI
024a https://doi.org/10.1136/bmjopen-2020-0445442 DOI
040 a (SwePub)ki
041 a engb eng
042 9 SwePub
072 7a ref2 swepub-contenttype
072 7a art2 swepub-publicationtype
100a Hermelijn, S4 aut
2451 0a Development of a core outcome set for congenital pulmonary airway malformations: study protocol of an international Delphi survey
264 c 2021-04-12
264 1b BMJ,c 2021
520 a A worldwide lack of consensus exists on the optimal management of asymptomatic congenital pulmonary airway malformation (CPAM) even though the incidence is increasing. Either a surgical resection is performed or a wait-and-see policy is employed, depending on the treating physician. Management is largely based on expert opinion and scientific evidence is scarce. Wide variations in outcome measures are seen between studies making comparison difficult thus highlighting the lack of universal consensus in outcome measures as well. We aim to define a core outcome set which will include the most important core outcome parameters for paediatric patients with an asymptomatic CPAM.Methods and analysisThis study will include a critical appraisal of the current literature followed by a three-stage Delphi process with two stakeholder groups. One surgical group including paediatric as well as thoracic surgeons, and a non-surgeon group including paediatric pulmonologists, intensive care and neonatal specialists. All participants will score outcome parameters according to their level of importance and the most important parameters will be determined by consensus.Ethics and disseminationElectronic informed consent will be obtained from all participants. Ethical approval is not required. After the core outcome set has been defined, we intend to design an international randomised controlled trial: the COllaborative Neonatal NEtwork for the first CPAM Trial, which will be aimed at determining the optimal management of patients with asymptomatic CPAM.
700a Kersten, C4 aut
700a Mullassery, D4 aut
700a Muthialu, N4 aut
700a Cobanoglu, N4 aut
700a Gartner, S4 aut
700a Bagolan, P4 aut
700a Burgos, CMu Karolinska Institutet4 aut
700a Sgro, A4 aut
700a Heyman, S4 aut
700a Till, H4 aut
700a Suominen, J4 aut
700a Schurink, M4 aut
700a Desender, L4 aut
700a Losty, P4 aut
700a Ertresvag, K4 aut
700a Tiddens, HAWM4 aut
700a Wijnen, RMH4 aut
700a Schnater, M4 aut
710a Karolinska Institutet4 org
773t BMJ opend : BMJg 11:4, s. e044544-q 11:4<e044544-x 2044-6055
856u https://bmjopen.bmj.com/content/bmjopen/11/4/e044544.full.pdf
8564 8u http://kipublications.ki.se/Default.aspx?queryparsed=id:146500321
8564 8u https://doi.org/10.1136/bmjopen-2020-044544

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